While it is well-established that poverty and disease are intimately connected, the nature of this connection and the role of poverty in disease causation remains contested in scientific and social studies of disease. Using the case of HIV/AIDS in South Africa and drawing on a theoretically grounded analysis, this paper reconceptualises disease and poverty as ontologically entangled. In the context of the South African HIV epidemic, this rethinking of the poverty-disease dynamic enables an account of how social forces such as (...) poverty become embodied in the very substance of disease to produce ontologies of HIV/AIDS unique to South Africa. (shrink)

Defecation has received limited attention within the social sciences and humanities. Toilets not a great deal. Urination even less. However, examining the practice of composting faeces and ‘pee[ing] on any tree’ by white, West Coast US ‘hippies’ and ‘drop-outs’ living in Hawai’i suggests that the disposal of excreta is never simple disposal. Rather, it entails engagement with the state, one’s own body and sense of placedness. Through looking at the everyday defecatory practices of hippies and drop-outs in Hawai’i, this article (...) seeks to examine the interplay of the acts of defecation and urination with the materiality of toilets themselves. Each depends on the other, and both exist in relation to various others: other toilet designs, other communities, other people. As such, it becomes possible to extend beyond Douglas’s argument that ‘dirt is matter out of place’ to explore the notion that — at least in relation to toilets — ‘dirt is relations out of place’. By placing relationships at the heart of this analysis of defecation and urination, this article provides fertile ground for the exploration of embodiment at its most base level, as site of generative action and social critique. (shrink)

Much bioethical scholarship is concerned with the social, legal and philosophical implications of new and emerging science and medicine, as well as with the processes of research that under-gird these innovations. Science and technology studies (STS), and the related and interpenetrating disciplines of anthropology and sociology, have also explored what novel technoscience might imply for society, and how the social is constitutive of scientific knowledge and technological artefacts. More recently, social scientists have interrogated the emergence of ethical issues: they have (...) documented how particular matters come to be regarded as in some way to do with ‘ethics’, and how this in turn enjoins particular types of social action. In this paper, I will discuss some of this and other STS (and STS-inflected) literature and reflect on how it might complement more ‘traditional’ modes of bioethical enquiry. I argue that STS might (1) cast new light on current bioethical issues, (2) direct the gaze of bioethicists towards matters that may previously have escaped their attention, and (3) indicate the import not only of the ethical implications of biomedical innovation, but also how these innovative and other processes feature ethics as a dimension of everyday laboratory and clinical work. In sum, engagements between STS and bioethics are increasingly important in order to understand and manage the complex dynamics between science, medicine and ethics in society. (shrink)

This paper explores the dynamic potential inherent in stable looking technological systems. I follow a small Finnish heating business and describe how alternative production practices were established within Finnish forestry. The case shows an interesting development in a sector where local activities have traditionally been coordinated through standardised practices and the physical structure of the forest. My focus is on micro-level shifts of power and I analyse the changing position of local actors in the margins of conventional forestry to understand (...) the fragile nature of the forestry standards. They not only stabilise forestry practices but enable complex interactions and new combinations of actors. Therefore, they also increase the degrees of freedom. My analysis draws from theoretical perspectives of technology studies, actor-network theory and recent discussions in geography on the spatial distribution of power. (shrink)

How do institutions respond to expert contests over epistemologies of sex and gender? In this article, I consider how epistemological ascendancy in debates over the regulation of women athletes with high testosterone is established within a legal setting. Approaching regulation as an institutional act that defines forms of embodied difference, the legitimacy of which may be called into question, I show how sexed bodies are enacted through and as part of determinations of expertise. I focus on proceedings from 2015 when (...) the Court of Arbitration for Sport was asked to decide whether an Indian sprinter, Dutee Chand, could compete as a female athlete. Despite acknowledging that sexed bodies are unruly, the court ultimately endorsed the use of testosterone as seemingly essential to women’s athletic performance, thereby reasserting a two-category model of biological difference. The legitimacy of these regulatory efforts was established through the concurrent narrowing of expertise and the body, a process that is also revealed to be gendered. (shrink)

The model of mind and body in Tibetan medical practice is based on Buddhist theory, and is neither dualistic in a Cartesian sense, nor monistic. Rather, it represents a genuine alternative to these positions by presenting mind/body interaction as a dynamic process that is situated within the context of the individual’s relationships with others and the environment. Due to the distinctiveness, yet interdependence, of mind and body, the physician’s task is to heal the patient’s mind (blo-gso) as well as body. (...) This in turn emphasizes the central importance of ‘compassion’ in the physician/patient relationship. This article investigates how Tibetan medical practitioners understand and enact the mind/ body and physician/patient relationships, and how this relates to theoretical explications of these relationships in Tibetan medical and Buddhist teachings. Furthermore, Tibetan medicine provides an interesting model for comparison with embodied theories of cognition, which see consciousness, the body and its environment as integral parts of a complex, dynamical cognitive system. (shrink)

This article presents a discussion about using one’s body – in its several occurrences, forms and meanings – for sex, affection and money transactions, within and beyond the scope of prostitution. It results from research carried out with young women involved in prostitution in two Brazilian north-eastern towns. The women’s views, conceptualisations and experiences reveal a prolific construction of discursive differentiation categories, which are linked to a set of moralities within local/regional economies and within notions of family. Through the women’s (...) personal narratives and experiences, our study demystifies the persistent idea of victimisation; it aims at understanding the young women prostitutes in their own contexts – loci that are highly stigmatised and seen as needing to be controlled or ‘developed’. We collected data that allows us to build a counter-discourse to oppose the ever-present attempts at weakening these voices and effacing their meaning-making. Within this context of knowledge production, our research is meaningful and purposeful in addressing the situation of young women in contexts of prostitution. Our main argument is that in certain contexts, such as those studied in this project, sex, affection and kinship are structured as normative – rather than exceptional – ways for women to have access to money. (shrink)

The study of ancient DNA has gained increasing attention in science and society as a tool for tracing hominin evolution. While aDNA research overlaps with the history of population genetics, it embodies a specific configuration of technology, temporality, temperature, and place that, this article suggests, cannot be fully unpacked with existing science and technology studies approaches to population genetics. This article explores this configuration through the 2010 discovery of the Denisovan hominin based on aDNA retrieved from a finger bone and (...) tooth in Siberia. The analysis explores how the Denisovan was enacted as a technoscientific object through the cool and even temperatures of Denisova Cave, assumptions about the connection between individual and population, the status of populations as evolutionary entities, and underlying colonialist and imperialist imaginaries of Siberia and Melanesia. The analysis sheds light on how aDNA research is changing the parameters within which evolutionary history is imagined and conceptualized. Through the case study, it also outlines some ways in which the specific technoscientific and cultural entanglements of aDNA can be critically explored. (shrink)

Against the backdrop of an aging world population increasingly affected by a diverse range of abilities and disabilities as well as the rise of ubiquitous computing and digital app cultures, this paper questions how mobile technologies mediate between heterogeneous environments and sensing beings. To approach the current technological manufacturing of the senses, two lines of thought are of importance: First, there is a need to critically reflect upon the concept of assistive technologies as artifacts providing tangible solutions for a specific (...) disability. Second, the conventional distinction between user and environment requires a differentiated consideration. This contribution will first review James Gibson’s concept of “affordances” and modify this approach by introducing theories and methods of Science and Technology Studies and Actor-Network Theory. Then, we present two case studies where we explore the relations between recent “assistive” app technologies and human sensory perception. As hearing and seeing are key in this regard, we concentrate on two specific media technologies: ReSound LINX2, a hearing aid which allows for direct connect with iPhone, iPad, or iPod Touch, and Camassia, an IOS app for sonic wayfinding for blind people. We emphasize the significance of dis-/abling practices for manufacturing novel forms of hearing and seeing and drawing on sources like promotional materials by manufacturers, ads, or user testimonials and reviews. Our analysis is interested in the reciprocal relationships between users and their socio-technical and media environments. By and large, this contribution will provide crucial insights into the contemporary entanglement of algorithm-driven technologies, daily practices, and sensing subjects: the production of techno-sensory arrangements. (shrink)

Medical schools are among the most important spaces for the history of the body. It is here that students come to know the anatomical bodies of their future patients and, through a process of cognitive and embodied practice, that the knowing bodies of future clinicians are also shaped. Practical and theoretical understandings of medicine are formed in these affective and historied buildings and in collaboration with a broad material culture of education. Medical schools are, however, both under-theorised and under-historicised. This (...) article integrates ‘materialist’ considerations of the body with Henri Lefebvre’s philosophy of space and rhythm in order to compare two markedly different spaces – the 19th-century Anatomy Department at Semmelweis University in Hungary and the mid-20th-century ‘skills laboratory’ at Maastricht University in the Netherlands. This comparison suggests that biomedical bodies are variously shaped by the agential and affective material histories present in the everyday experience of contemporary medical education. (shrink)

Actor-network theory has contributed greatly to the development of science and technology studies. However, recent critiques appear to have left ANT in a gloomy theoretical black box. What is the likelihood of ANT exiting its current theoretical discontent? Is ANT worthy of salvation and on what grounds? Law argues that recent critiques stem from ANT’s development into a particular theoretical strategy. However, this article will argue that by focusing on strategy as messy and impure, ANT can be afforded the opportunity (...) to shift from a fixed approach to an ambiguous and contingent strategy, well placed to carry on. The article achieves such an argument by first highlighting how ANT has contributed to a recent study of strategy in action; second, by outlining the strategic aspects of ANT; and third, by using the study of strategy in action as a means of engaging with ANT’s current theoretical discontent. (shrink)

In 2008 Science Magazine and the American Academy for the Advancement of Science hosted the first ever Dance Your PhD Contest in Vienna, Austria. Calls for submission to the second, third, and fourth annual Dance Your PhD contests followed suit, attracting hundreds of entries and featuring scientists based in the US, Canada, Australia, Europe and the UK. These contests have drawn significant media attention. While much of the commentary has focused on the novelty of dancing scientists and the function of (...) dance as an effective distraction for overworked researchers, this article takes seriously the relationship between movement and scientific inquiry and draws on ethnographic research among structural biologists to examine the ways that practitioners use their bodies to animate biological phenomena. It documents how practitioners transform their bodies into animating media and how they conduct body experiments to test their hypotheses. This ‘body-work’ helps them to figure out how molecules move and interact, and simultaneously offers a medium through which they can communicate the nuanced details of their findings among students and colleagues. This article explores the affective and kinaesthetic dexterities scientists acquire through their training, and it takes a close look at how this body-work is tacitly enabled and constrained through particular pedagogical techniques and differential relations of gender and power. This article argues that the Dance Your PhD contests, as well as other performative modalities, can expand and extend what it is possible for scientific researchers to see, say, imagine and feel. (shrink)

Set within the socio-political context of standards-based education reform, this article explores the constitutive role of teaching standards in the production of the practice and identity of the ‘accomplished’ teacher. It contrasts two idioms for thinking about and studying these standards, the representational and the performative. Utilising the material-semiotic approach of actor-network theory, it addresses the issue of how the representational idiom of teaching standards has become so authoritative that it readily eclipses other ways to think and ‘do’ them. In (...) tracing the development of a specific set of teaching standards as part of a national research project, the argument is made that standards should be understood as performative knowledge and identity practices. And, accounting them should also be performative. Accordingly, attention is given to key locales in which this development is taking place. Teaching standards emerge as ontologically variable and it is struggles around this variability that can create conditions for a renewed practice and politics of education reform. (shrink)

In feminist and cultural studies, there is a growing body of work concerned with how people’s lives are subjected to multiple, intersecting axes of differentiation and power. There is growing concern that we seem unable to address more than one difference at a time, thus failing to interrogate enactments of class, race, ethnicity, gender, and sexuality in science, technology, and medicine. This article aims to contribute to the effort to conceptualize the making of and interactions between differences. It explores how (...) differences such as disability, gender, and class are made and unmade in sociotechnical practices. It shows that interactions between enactments of differences are complex, contradictory, unpredictable, and surprising and defy simple conclusions about effects and politics. These patterns of interference need to be investigated in situated practices, and we have to examine carefully how processes of differentiation interact to support and reinforce but also to challenge and undermine each other. (shrink)

It is often assumed that it was the alliance between patient associations and neuroscience, which originally made dementia a matter for intervention. In parallel ways, science and technology studies often attributes the power to define and act upon matters of life to biomedicine and science. The concern here is that the science centrism of STS contributes to the dominance of science and biomedicine by granting these analytical privileges. As a result, alternative modes of acting, for instance in care, are disarticulated (...) and made absent. This article mobilizes the sensibilities of anthropology to difference and draws upon excerpts of data from fieldwork in dementia care to show this and argue that there are different practices that act upon life and its limits; that these enact different versions of life and dementia; and that they matter because they shape how people are cared for and live and die with dementia. (shrink)

This article asks how contexts are made in science as well as in social science, and how the making of contexts relates to political agency and intervention. To explore these issues, it traces contexting for foot-and-mouth disease and the strategies used to control the epidemic in the United Kingdom in 2001. It argues that to depict the world is to assemble contexts and to hold them together in a mode that may be descriptive, explanatory, or predictive. In developing this argument, (...) it explores how contexts are assembled in a series of different descriptive and explanatory narratives in epidemiology, policy, critical social science, and social studies of science. (shrink)

A friend once told me I was wasting my time writing about cross-cultural perspectives on the beginnings of life. “Your work is interesting for its curiosity value,” he said, “but fundamentally worthless. What happens in other cultures is totally irrelevant to what is happening here.” Those were discouraging words, but as I followed the American debates about the beginnings and ends of life, it seemed he was right. Anthropologists have written a great deal about birth and death rites in other (...) societies and about non-western notions of personhood, but to date our findings have had little impact on American policy, ethics, or law. The recognized experts on contentious topics such as abortion and euthanasia tend to come from the fields of philosophy, bioethics, theology, law, and biology, but rarely from the social sciences. I was a bit surprised, therefore, to be invited to address the Thomas A. Pitts Memorial Lectureship on “Defining the Beginning and the End of Human Life.”. (shrink)

In this paper, I outline several methodological questions that we need to confront. The chief question is how can we identify the nature of technological change and its varied cultural consequences—including social, political, institutional, and economic dimensions—when our different research methods, using distinct ‘levels’ or ‘scales’ of analysis, yield contradictory results. What can we say, in other words, when our findings about technology follow from the framings of our inquiries? In slightly different terms, can we combine insights from the fine-grained (...) “social shaping of technology” as well as from complementary approaches accenting the “technological shaping of society?” As a way forward, I will suggest conducting multi-scale inquiries into the processes of technological and cultural change. This will involve recognizing and conceptualizing the analytical scales or levels on which we conduct inquiry (very roughly, micro, meso, macro) as well as outlining strategies for moving within and between these scales or levels. Of course we want and need diverse methodologies for analyzing technology and culture. I find myself in sympathy with geographer Brenner (New state spaces: urban governance and the rescaling of statehood, 2004, p. 7), who aspires to a “theoretically precise yet also historically specific conceptualization of [technological change] as a key dimension of social, political and economic life.”. (shrink)

We examine pregnant women's experiences with routinised obstetric ultrasound as entailed in their antenatal care during planned pregnancies. This paper highlights the ambiguity of ultrasound technology in the constitution of maternal–foetal connections. Our analysis focusses on Australian women's experiences of the ontological, aesthetic and epistemological ambiguities afforded by ultrasound. We argue that these ambiguities offer possibilities for connecting to the foetus in ways that maintain a kind of unknowability; they afford an openness and ethical responsiveness irrespective of the future of (...) the foetus. This suggests that elucidating women's experience has implications for theorising ethics across maternal–foetal relations and, more specifically, for the ‘moral pioneering’ (Rapp, 2000) that reproductive technologies can demand of women. Moral pioneering cannot be reduced to moments or processes of decision-making; it must allow for greater recognition of the affective commitments entailed in and incited by ultrasound. Furthermore, focussing on experiences of the ambiguity of ultrasound allows for understanding the ways in which affectivity circulates across domains commonly understood as medical or social, public or private. In doing so, it contributes to undermining a series of tensions that currently shape feminist analysis of obstetric ultrasound, often at the expense of the experience of women. (shrink)

Engagement events—whether interviews, installations, or participatory encounters—can entail a range of happenings which, in one way or another, “overspill” the empirical, analytic, or political framing of those engagement events. This article looks at how we might attend to these overspills—for instance, forms of “misbehavior” on the part of lay participants—not only to provide accounts of them but also to explore ways of deploying them creatively. In particular, Stengers’ figure of the “idiot” is proposed as a device for deploying those overspills (...) to interrogate “what we are busy doing” as social science researchers in engagement events. This interrogation is furthered by considering the proactive idiocy of “Speculative Design’s” version of the public engagement with science which seems directly to engender “overspilling.” Providing examples of speculative design prototypes and practices, the article develops an ideal typical contrast between social scientific and designerly perspectives on public engagement. It is suggested that speculative design can serve as a resource for supplementing “science and technology studies” conceptualizations of, and practices toward, public, engagement, and science. (shrink)

This exploratory paper investigates the enactment of a number of “publics” in relation to a recent, ostensibly “technical”, innovation, namely, the nanotechnology Vertically Aligned Nanotube Array-black. In particular, we show how various representations of VANTAblack—as technical artifact, as an exclusive artist’s material, as an exciting coating for a mass-produced commercial product, and as an object of science communication—implicate different “aesthetic experiences”. We discuss these aesthetic experiences in terms of the enactment of four distinct “aesthetic publics.” We then consider the possible (...) analytic value of the concept of aesthetic publics, not least in relation to the “opening up” and “closing down” of the potential debates that might attach to emerging technologies. (shrink)

This article explores the idea of agential multiplicity in medical treatment of childlessness. The analysis illustrates the kinds of agencies that emerge in the use of assisted reproductive technologies. The article begins with a discussion on feelings as participants in IVF treatment and as elements of women’s embodied experience. This is followed by an analysis of three consecutive steps of IVF: ovulation induction, assisted fertilization in the laboratory and embryo transfer. The article aims to show that feminist theory and praxis (...) benefits from empirical analyses of lived bodily experiences as they take form in relation to non-human agencies. Also, it provides a view into how biological processes and material elements can be taken into account in anti-essentializing ways in feminist research. (shrink)

Scientific knowledge is the outcome of a collective, for example, of experts, methods, equipment, and experimental sites. The configuration of the collective shapes the scientific findings, allowing some interactions to become visible and meaningful at the expense of others. PROTEE is a methodology that aims to increase the reflexivity of research and innovation projects by helping to sensitize practitioners to the demarcations their projects enact and to think through how these may affect the relevance of the outcomes. We used PROTEE (...) to structure a series of dialogues with a research project that wanted its findings to make a contribution to the heated debate on transgenic trees. Through this process, the project did indeed become more articulated while we ourselves became engaged with the project in a very particular way, by becoming loyal to it. The dialogues also made the risks that engagement with public debate entails for scientists very apparent. Like us, the scientific project chose its loyalties, but what PROTEE did was to help make these explicit. (shrink)

Engages and extends the feminist philosopher Lorraine Code's groundbreaking work on epistemology and ethics.

This article is about the materiality of difference, about race, sex and sexual differences among others. To find out about these differences and their materialities, this article looks not into bodies but rather at how bodies are positioned in spaces and how they are enacted in practice. In the first part of the article, the focus is on the relationality of identities and how they are made and unmade in specific practices. The second part of the article attends to the (...) various histories and practices that are drawn together in one specific body and how they help to enact a particular version of the body. Differences, it is argued, are not given ‘entities’ out there, awaiting dis-covery; rather they are effects that come about in relational practices. This indicates that materiality is not simply a given that can be taken on board, but it is the very configuration through which differences can be articulated. (shrink)

This article takes stock of recent efforts to implement controversy analysis as a digital method in the study of science, technology, and society and beyond and outlines a distinctive approach to address the problem of digital bias. Digital media technologies exert significant influence on the enactment of controversy in online settings, and this risks undermining the substantive focus of controversy analysis conducted by digital means. To address this problem, I propose a shift in thematic focus from controversy analysis to issue (...) mapping. The article begins by distinguishing between three broad frameworks that currently guide the development of controversy analysis as a digital method, namely, demarcationist, discursive, and empiricist. Each has been adopted in STS, but only the last one offers a digital “move beyond impartiality.” I demonstrate this approach by analyzing issues of Internet governance with the aid of the social media platform Twitter. (shrink)

This paper progresses the original argument of Richard Ratzan that formal presentation of the medical case history follows a Homeric oral-formulaic tradition. The everyday work routines of doctors involve a ritual poetics, where the language of recounting the patient's ‘history’ offers an explicitly aesthetic enactment or performance that can be appreciated and given meaning within the historical tradition of Homeric oral poetry and the modernist aesthetic of Minimalism. This ritual poetics shows a reliance on traditional word usages that crucially act (...) as tools for memorisation and performance and can be linked to forms of clinical reasoning; both contain a tension between the oral and the written record, questioning the priority of the latter; and the performance of both helps to create the Janus-faced identity of the doctor as a ‘performance artist’ or ‘medical bard’ in identifying with medical culture and maintaining a positive difference from the patient as audience, offering a valid form of patient-centredness. (shrink)

Next SectionIn a series of previous articles, we have considered how we might reconceptualise central themes in medicine and medical education through ‘thinking with Homer’. This has involved using textual approaches, scenes and characters from the Iliad and Odyssey for rethinking what is a ‘communication skill’, and what do we mean by ‘empathy’ in medical practice; in what sense is medical practice formulaic, like a Homeric ‘song’; and what is lyrical about medical practice. Our approach is not to historicise medicine (...) and medical education, but to use thinking with Homer as a medium and metaphor for questioning the habitual and the taken-for-granted in contemporary practice. In this article, we tackle the complex theme of ‘translation’. We use the lens of translation studies to examine the process of turning the patient's story into medical language. We address the questions: what makes a ‘good’ translation? What are the consequences of mistranslation and poor translation? And, while things are inevitably lost in translation, does this matter? (shrink)

Computer vision aims to produce an understanding of digital image’s content and the generation or transformation of images through software. Today, a significant amount of computer vision algorithms rely on techniques of machine learning which require large amounts of data assembled in collections, or named data sets. To build these data sets a large population of precarious workers label and classify photographs around the clock at high speed. For computers to learn how to see, a scale articulates macro and micro (...) dimensions: the millions of images culled from the internet with the few milliseconds given to the workers to perform a task for which they are paid a few cents. This paper engages in details with the production of this scale and the labour it relies on: its elaboration. This elaboration does not only require hands and retinas, it also crucially zes mobilises the photographic apparatus. To understand the specific character of the scale created by computer vision scientists, the paper compares it with a previous enterprise of scaling, Malraux’sLe Musée Imaginaire, where photography was used as a device to undo the boundaries of the museum’s collection and open it to an unlimited access to the world’s visual production. Drawing on Douglas Crimp’s argument that the “musée imaginaire”, a hyperbole of the museum, relied simultaneously on the active role of the photographic apparatus for its existence and on its negation, the paper identifies a similar problem in computer vision’s understanding of photography. The double dismissal of the role played by the workers and the agency of the photographic apparatus in the elaboration of computer vision foreground the inherent fragility of the edifice of machine vision and a necessary rethinking of its scale. (shrink)

This paper examines two reasons anthropological expertise has recently come to be considered relevant to American debates about the beginnings and ends of life. First, bioethicists and clinicians working to accommodate diverse perspectives into clinical decision-making have come to appreciate the importance of culture. Second, anthropologists are the recognized authorities on the cultural logic and behaviors of the “Other.” Yet the definitions of culture with which bioethicists and clinicians operate may differ from those used by contemporary anthropologists, who view culture (...) as a contingent, contested set of social practices that are continually formulated and re-negotiated in daily interactions. Using ethnographic examples, the author argues that the qualities that constitute “personhood” should be sought in social practices rather than in cognitive capacities or moral attributes. (shrink)

This commentary is an attempt to begin to identify and think through some of the ways in which sociocultural theory may contribute to understandings of the relationship between humans and digital data. I develop an argument that rests largely on the work of two scholars in the field of science and technology studies: Donna Haraway and Annemarie Mol. Both authors emphasised materiality and multiple ontologies in their writing. I argue that these concepts have much to offer critical data studies. I (...) employ the tropes of companion species, drawn from Haraway, and eating data, from Mol, and demonstrate how these may be employed to theorise digital data–human assemblages. (shrink)

Alzheimer’s disease is emerging into public view in unprecedented ways. Foremost among these is the embodied form of elderly men and women appearing in commercial imagery for patient advocacy groups or pharmaceutical advertisements, but scientific imagery also seeps into the visual media cultures that surround us. The recent reconfiguration of Alzheimer’s disease is due to expanding ageing populations, an aggressive biopharmaceutical industry becoming a fast-growing material-semiotic realm that is providing powerful images of both gendered and racialized embodiment. Such a visual, (...) and yet highly material, realm is in need of feminist interventions, engaging with the images and ideas that circulate around ageing, medicine, human and non-human embodiment. From a non-representationalist and posthumanist perspective identified as feminist visual studies of technoscience, the authors seek to further the discussion in the direction of understanding the ‘scattered ontologies’ of Alzheimer’s — in laboratory practice, the realm of medical media and in commercial appeals to coherent individuality and human cognition — as gendered domains of figural reality and performative matter. (shrink)

The prevalence of dementia is increasing worldwide but there is still no hope of a cure. Huge resources go into biomedical research, whose reductive ‘enactment’ has severe consequences for women, who are predominantly affected by dementia. To challenge such tragic enactment, this article considers ‘multiple ontologies’ of the most common type of dementia – Alzheimer’s disease – in the popular fictional film adaptations Still Alice and A Song for Martin. Using a post-humanist account of feminist visual studies of technoscience, this (...) comparative film analysis reveals how gender supersedes AD oversteering the hierarchical dualisms between health and pathology, human and nonhuman, and biomedical and artistic modes of knowing about Alzheimer’s. The author argues that these films stress the potential of the arts, as a multisensorial post-humanist embodied state of becoming with AD, to challenge hierarchical dualisms and innovatively contribute to dementia care. (shrink)

In recent years, several authors have argued that the desirability of novel technologies should be assessed early, when they are still emerging. Such an ethical assessment of emerging technologies is by definition focused on an elusive object. Usually promises, expectations, and visions of the technology are taken as a starting point. As Nordmann and Rip have pointed out in a recent article, however, ethicists should not take for granted the plausibility of such expectations and visions. In this paper, we explore (...) how the quality of expectations on emerging technologies might be assessed when engaging in a reflection on the desirability of emerging technologies. We propose that an assessment of expectations’ plausibility should focus on statements on technological feasibility, societal usability, and desirability of the expected technology. Whereas the feasibility statement and, to a lesser extent, the usability statements are frequently quite futuristic, the claims on desirability, by contrast, often display a conservative stance towards the future. Assessing the quality of expectations and visions on behalf of emerging technologies requires, then, a careful and well-directed use of both skepticism and imagination. We conclude with a brief overview of the tools and methods ethicists could use to assess claims made on behalf of emerging technologies and improve the ethical reflection on them. (shrink)

Standards that codify sustainability, such as Ethical Trade, Fairtrade, Organic and Rainforest Alliance, have become a common means for value chain actors in the Global North to make statements about the values of their products and the practices of producers in the Global South. This case study of Tanzanian tea value chains takes a closer look at how sustainability, in the form of SustainabiliTea, is done by actors who did not participate in defining and standardizing the form of sustainability with (...) which they are meant to comply. Based on data collected during a multisited ethnography, I explore the performative nature of sustainability standards. The analysis reveals sustainable projects, sustainable markets, sustainable farm management, and sustainable qualities. These multiple SustainabiliTeas work together to construct a single vision of SustainabiliTea, which is a means to sustain the enterprise. I argue that the use of standards to guide performances makes some technical and political stakes visible while rendering others invisible. By paying attention to the residual categories, the tensions between knowledge and materiality, and listening to those voices at the margins, we see what is at stake in the maintenance of SustainabiliTea: survival in the tea market. (shrink)

Review of: Sophia Roosth, Synthetic: How Life Got Made (University of Chicago Press, 2017); and Andrew S. Balmer, Katie Bulpin, and Susan Molyneux-Hodgson, Synthetic Biology: A Sociology of Changing Practices (Palgrave Macmillan, 2016).

How might the agency of the subaltern be conceptualized within the intersection of multiple worlds? Actor-network theory’s translation framework for understanding agency portraying this as entrepreneur and talking of a world in the making is arguably “imperialist,” “managerial,” and “monolithic.” Draws from the enactment turn of ANT and insights into the politics of representation, this article elaborates an alternative framework which focuses on displacement. By examining the case of dialysis patients, the article explores the displacing practices that follow the disruption (...) of routines in dialysis. Patients have to go through a process of problematization, distribution, hybridization, and restabilization, in order to sustain the coexistence of their alternative practices with dialysis. Unlike entrepreneurs in the translation model who transform the world by interesting others, enduring trials, and becoming spokespersons for all, those patients who manage to displace and sustain the coexistence of multiple worlds avoid interesting, still less confronting, the hegemonic actors and claiming representation for themselves. This article suggests the displacement of agency as a generic alternative. (shrink)

In “Materialized Oppression in Medical Tools and Technologies”, we show how oppression can be inscribed in medical devices. We consider oximeters and spirometers, drawing heavily on the work of anthropologist Amy Moran-Thomas and historian Lundy Braun. Both devices encode racial biases: oximeters because they do not correct for race, and spirometers because they do. We zoom out from these particular devices to examine a wide range of tools and technologies, and we build a theoretical framework that covers not only race (...) but other axes of oppression: gender, ability, class, etc. -/- We are inspired by the peer commentaries and the guest editorial, and we are grateful to the contributors for engaging with our work and sharing their expertise. Their responses to our target article advance our understanding in three directions. First, a set of responses contextualize our framework within the histories of medicine, bioethics, and science and technology studies. Second, a set of responses provide additional examples of oppressive medical tools and technologies: not only material artifacts like oximeters and spirometers, but also spatial environments like inpatient psychiatric units, and cognitive niches comprised of digital technologies like electronic medical records and medical data classifications. Third, a set of responses propose countermeasures: operationalizing anti-oppressive practices for device design and testing; mapping the complex causal relationships involved in real-world problems; and repairing the harms done by materialized oppression through racism-conscious praxis. We reply to these three sets of responses—respectively, the “past, present, and future” of oppressive medical objects and spaces—in what follows. (shrink)

The process of translation has both an excluding and including character. The analysis of actor networks, the process of mobilizing alliances, and constructing networks is a common and worthwhile focus. However, the simultaneous betrayals, dissidences, and controversies are often only implied in network construction stories. We aim to nuance the construction aspect of actor–network theory by shining the analytical searchlight elsewhere, where the theoretical tools of ANT have not yet systematically ventured. We argue that we need to understand every process (...) of translation in relation to its simultaneous process of treason, and to add antonyms for Callon’s problematization, intressement, enrollment, and mobilization. This enables us to describe powerlessness not as a state but as a process. Our case focuses on the network building around measures for disabled people in the construction of the Athens Metro, during the period 1991-1993. The discussion highlights the efforts of disability organizations to intervene in the initial construction works of the metro project and the simultaneous actions of the Greek government to exclude disability organizations from the design process and to disrupt the accessibility-metro actor network. (shrink)

Should the remains of aborted fetuses be treated as human corpses or medical waste? How can feminists defend abortion rights without erasing the experiences of women who mourn fetal death or lending support to pro-life constructions of fetal personhood? To answer these questions, I trace the role of abjection and mourning in debates over fetal remains disposal regulations. Critiquing pro-life views of fetal personhood while challenging feminists to develop richer and more compelling accounts of fetal remains, I argue that embracing (...) the ambiguity and diversity of pregnant bodies can strengthen rather than undermine reproductive autonomy. I conceptualize reproductive autonomy relationally, contending that it entails the pregnant subject’s authority to construct as well as to interpret her lived body, including the fetus. Additionally, because the embodied self is inextricable from social context, reproductive autonomy also requires community support. To support these claims, I develop an account of pregnant bodies as ontologically multiple and advocate embracing abjection rather than suppressing it. Finally, I object to fetal remains regulations because they inscribe fetal grievability into the law. (shrink)

We all know that we have and are our bodies. But might it be possible to leave this common place? In the present article we try to do this by attending to the way we do our bodies. The site where we look for such action is that of handling the hypoglycaemias that sometimes happen to people with diabetes. In this site it appears that the body, active in measuring, feeling and countering hypoglycaemias is not a bounded whole: its boundaries (...) leak. Bits and pieces of the outside get incorporated within the active body; while the centre of some bodily activities is beyond the skin. The body thus enacted is not self-evidently coherent either. There are tensions between the body’s organs; between the control under which we put our bodies and the erratic character of their behaviour; and between the various needs and desires single bodies somehow try to combine. Thus to say that a body is a whole, or so we conclude, skips over a lot of work. One does not hang together as a matter of course: keeping oneself together is something the embodied person needs to do. The person who fails to do so dies. (shrink)

This paper discusses the operations meant to act on situations of ontological uncertainties for chemicals. Using examples related to substances developed as part of nanotechnology programs, it analyses technical and social instruments meant to define the existence of these substances, as « new » or « existing » chemicals. Carbon nanotubes developed by a French company offer an illustration of containment, while the legal disputes about nano silver in the U.S. display oppositions about whether or not these compounds are equivalent (...) to colloïdal silver. The operations meant to deal with the ontological uncertainty of these substances define categories and craft political organizations. As such, they suggest developing an analytical approach able to jointly examine the ontologies of material objects and the forms of political ordering. (shrink)

This article traces the multiple enactments of sex in clinical practices of transgender medicine to argue against the presumed singularity of ‘transexuality’. Using autoethnography to analyse my own experience as a trans patient, I describe my clinical encounters with doctors, psychiatrists and surgeons in order to theorise sex as multiple. Following recent developments in science and technology studies (STS) that advance the work of Judith Butler on sex as performatively reproduced, I use a praxiographic approach to argue that treatment practices (...) produce particular iterations of what sex (and transexuality) ‘is’ and how these processes limit and foreclose other trans possibilities. I consider the ethical, political and material-discursive implications of treatment practices and offer a series of reflections about the effects and effectiveness of current clinical practices and the possibilities for intervening in such processes in order that, following Annemarie Mol, we might (re)make sex (and transexuality) differently. (shrink)

The current article looks into the development of an organic market segment in Norway by following organic milk and the controversies that have emerged in the trail of this morally infused artefact. In particular focus is the reformatting of organic milk around the turn of the millennium and the following attempts by various actors to make this product more accessible for a larger group of consumers. The approach favored in this undertaking is actor-network theory (ANT), which stresses the distributed nature (...) of moral agency and that human and non-human elements of actor networks should be given equal attention when accounting for societal practices. Economic narratives such as the sovereign consumer are also used to shed light on the constitution of organic milk as a moral object and the positioning of this product relative to products stemming from conventional agriculture. (shrink)

Though it has been claimed that modern yoga retains little of its origins of religious austerity, I will argue that even if yoga as a physical practice has taken a strong position among the modern fitness trends, there are still important links to the philosophic­al and religious traditions of India – not least in the minds of many of its practitioners. Reorientations of these traditions to more modern settings have an impact on the practitioners’ bodies, and the embodied experience of (...) the practice in turn influences yoga. (shrink)

This article explores the moral significance of technology, reviewing a microfluidic chip for sperm sorting and its use for non-medical sex selection. I explore how a specific material setting of this new iteration of pre-pregnancy sex selection technology—with a promised low cost, non-invasive nature and possibility to use at home—fosters new and exacerbates existing ethical concerns. I compare this new technology with the existing sex selection methods of sperm sorting and Prenatal Genetic Diagnosis. Current ethical and political debates on emerging (...) technologies predominantly focus on the quantifiable risk-and-benefit logic that invites an unequivocal “either-or” decision on their future and misses the contextual ethical impact of technology. The article aims to deepen the discussion on sex selection and supplement it with the analysis of the new technology’s ethical potential to alter human practices, perceptions and the evaluative concepts with which we approach it. I suggest that the technological mediation approach can be useful to ethically contextualize technologies and highlight the value of such considerations for the informed deliberation regarding their use, design and governance. (shrink)

In this paper, I argue that AI-powered voice assistants, just as all technologies, actively mediate our interpretative structures, including values. I show this by explaining the productive role of technologies in the way people make sense of themselves and those around them. More specifically, I rely on the hermeneutics of Gadamer and the material hermeneutics of Ihde to develop a hermeneutic lemniscate as a principle of technologically mediated sense-making. The lemniscate principle links people, technologies and the sociocultural world in the (...) joint production of meaning and explicates the feedback channels between the three counterparts. When people make sense of technologies, they necessarily engage their moral histories to comprehend new technologies and fit them in daily practices. As such, the lemniscate principle offers a chance to explore the moral dynamics taking place during technological appropriation. Using digital voice assistants as an example, I show how these AI-guided devices mediate our moral inclinations, decisions and even our values, while in parallel suggesting how to use and design them in an informed and critical way. (shrink)

As the number of medical and health humanities degree programs in the United States rapidly increases, it is especially timely to consider the range of specific disciplinary perspectives that might benefit students enrolled in these programs. This paper discusses the inclusion of one such perspective from the field of Science and Technology Studies The author asserts that STS benefits students in the medical and health humanities in four particular ways, by: challenging the “progress narrative” around the advancement of biomedicine as (...) scientific practice, evaluating the meaning of technology, especially in how technology orients us towards sickness and how health technology is in turn shaped by social and cultural values, assessing the plurality of biomedical epistemologies, rather than assuming biomedicine is one, cohesive body of knowledge that does not differ across contexts, and critiquing bias in biomedical practice and science, especially in the marginalization of women’s voices and in the racial and postcolonial trajectories of contemporary biomedicine. The paper discusses the theoretical importance of these four trajectories to the medical and health humanities, as well as the venues for inclusion of STS within coursework and programming at Case Western Reserve University. The paper also comments on how programming at other institutions might be adapted to incorporate STS scholarship. By drawing on numerous examples of research in the anthropology, sociology, history, and the philosophy of science, this article seeks to open a conversation about the value of science and technology studies to health humanities pedagogy. (shrink)