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  1. The Rejected Body: Feminist Philosophical Reflections on Disability.Susan Wendell - 1997 - Hypatia 12 (2):219-223.
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  • Toward a Critical Theory of Harm: Ableism, Normativity, and Transability (BIID).Joel Michael Reynolds - 2016 - APA Newsletter on Philosophy and Medicine 16 (1):37-45.
    Body Integrity Identity Disorder (BIID) is a very rare condition describing those with an intense desire or need to move from a state of ability to relative impairment, typically through the amputation of one or more limbs. In this paper, I draw upon research in critical disability studies and philosophy of disability to critique arguments based upon the principle of nonmaleficence against such surgery. I demonstrate how the action-relative concept of harm in such arguments relies upon suspect notions of biological (...)
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  • Body Integrity Identity Disorder (BIID) and the Limits of Autonomy.Alan Jotkowitz & Ari Zivotofsky - 2009 - American Journal of Bioethics 9 (1):55-56.
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  • Body Integrity Identity Disorder —Is the Amputation of Healthy Limbs Ethically Justified?Sabine Müller - 2009 - American Journal of Bioethics 9 (1):36-43.
    The term body integrity identity disorder describes the extremely rare phenomenon of persons who desire the amputation of one or more healthy limbs or who desire a paralysis. Some of these persons mutilate themselves; others ask surgeons for an amputation or for the transection of their spinal cord. Psychologists and physicians explain this phenomenon in quite different ways; but a successful psychotherapeutic or pharmaceutical therapy is not known. Lobbies of persons suffering from BIID explain the desire for amputation in analogy (...)
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  • The Structure of Scientific Revolutions.Thomas S. Kuhn - 1962 - University of Chicago Press.
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  • The Personal is Philosophical is Political: A Philosopher and Mother of a Cognitively Disabled Person Sends Notes From the Battlefield.Eva Feder Kittay - 2009 - Metaphilosophy 40 (3-4):606-627.
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  • [Book Chapter].P. Thagard & C. P. Shelley - 1997
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  • Why Bioethics Needs a Disability Moral Psychology.Joseph A. Stramondo - 2016 - Hastings Center Report 46 (3):22-30.
    The deeply entrenched, sometimes heated conflict between the disability movement and the profession of bioethics is well known and well documented. Critiques of prenatal diagnosis and selective abortion are probably the most salient and most sophisticated of disability studies scholars’ engagements with bioethics, but there are many other topics over which disability activists and scholars have encountered the field of bioethics in an adversarial way, including health care rationing, growth-attenuation interventions, assisted reproduction technology, and physician-assisted suicide. -/- The tension between (...)
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  • Health as a Theoretical Concept.Christopher Boorse - 1977 - Philosophy of Science 44 (4):542-573.
    This paper argues that the medical conception of health as absence of disease is a value-free theoretical notion. Its main elements are biological function and statistical normality, in contrast to various other ideas prominent in the literature on health. Apart from universal environmental injuries, diseases are internal states that depress a functional ability below species-typical levels. Health as freedom from disease is then statistical normality of function, i.e., the ability to perform all typical physiological functions with at least typical efficiency. (...)
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  • Making Sense of Intersex: Changing Ethical Perspectives in Biomedicine.Ellen K. Feder - 2014 - Indiana University Press.
    Putting the ethical tools of philosophy to work, Ellen K. Feder seeks to clarify how we should understand "the problem" of intersex. Adults often report that medical interventions they underwent as children to "correct" atypical sex anatomies caused them physical and psychological harm. Proposing a philosophical framework for the treatment of children with intersex conditions—one that acknowledges the intertwined identities of parents, children, and their doctors—Feder presents a persuasive moral argument for collective responsibility to these children and their families.
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  • Needing to Acquire a Physical Impairment/Disability: (Re)Thinking the Connections Between Trans and Disability Studies Through Transability.Alexandre Baril - 2015 - Hypatia 30 (1):30-48.
    This article discusses the acquisition of a physical impairment/disability through voluntary body modification, or transability. From the perspectives of critical genealogy and feminist intersectional analysis, the article considers the ability and cis*/trans* axes in order to question the boundaries between trans and transabled experience and examines two assumptions impeding the conceptualization of their placement on the same continuum: 1) trans studies assumes an able-bodied trans identity and able-bodied trans subject of analysis; and 2) disability studies assumes a cis* disabled identity. (...)
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  • Forward: Renewing Medicine's Basic Concept.Edmund D. Pellegrino - 2004 - In Arthur Caplan, James J. McCartney & Dominic A. Sisti (eds.), Health, Disease, and Illness: Concepts in Medicine. Georgetown University Press.
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  • Against Normal Function.Ron Amundson - 2000 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 31 (1):33-53.
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  • The Ethics of Ambiguity.Robert Cumming - 1949 - Journal of Philosophy 46 (26):857-868.
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  • Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives.J. Patrick Woolley, Michelle L. McGowan, Harriet J. A. Teare, Victoria Coathup, Jennifer R. Fishman, Richard A. Settersten, Sigrid Sterckx, Jane Kaye & Eric T. Juengst - 2016 - BMC Medical Ethics 17 (1):1.
    The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists. Originally, these labels were invoked by volunteer research efforts propelled by amateurs outside of traditional research institutions and aimed at appealing to those looking for more “democratic,” “patient-centric,” or “lay” alternatives to the professional science establishment. As mainstream translational biomedical research requires increasingly larger participant pools, however, corporate, academic and governmental research programs (...)
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  • Looking for Trouble: Preventive Genomic Sequencing in the General Population and the Role of Patient Choice.Gabriel Lázaro-Muñoz, John M. Conley, Arlene M. Davis, Marcia Van Riper, Rebecca L. Walker & Eric T. Juengst - 2015 - American Journal of Bioethics 15 (7):3-14.
    Advances in genomics have led to calls for developing population-based preventive genomic sequencing programs with the goal of identifying genetic health risks in adults without known risk factors. One critical issue for minimizing the harms and maximizing the benefits of PGS is determining the kind and degree of control individuals should have over the generation, use, and handling of their genomic information. In this article we examine whether PGS programs should offer individuals the opportunity to selectively opt out of the (...)
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  • “A Study in Nature”: The Tuskegee Experiments and the New South Plantation. [REVIEW]Britt Rusert - 2009 - Journal of Medical Humanities 30 (3):155-171.
    This essay rethinks the Tuskegee Syphilis Experiments in light of a long history of experimentation in plantation geographies of the U.S. South. Turning to late nineteenth- and early twentieth-century discourses of the New South and to Booker T. Washington’s Tuskegee Institute, this essay illuminates the extension of the laboratory life of the plantation into the twentieth century. The focus on personal hygiene at the Tuskegee Institute opened the door for alliances with public health initiatives early on, making the school’s student (...)
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  • Why Bioethics Needs a Disability Moral Psychology.Joseph A. Stramondo - 2016 - Hastings Center Report 46 (3):22-30.
    The deeply entrenched, sometimes heated conflict between the disability movement and the profession of bioethics is well known and well documented. Critiques of prenatal diagnosis and selective abortion are probably the most salient and most sophisticated of disability studies scholars’ engagements with bioethics, but there are many other topics over which disability activists and scholars have encountered the field of bioethics in an adversarial way, including health care rationing, growth-attenuation interventions, assisted reproduction technology, and physician-assisted suicide. The tension between the (...)
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