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Valuing Disability, Causing Disability

Ethics 125 (1):88-113 (2014)

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  1. Radical enhancement as a moral status de-enhancer.Jesse Gray - 2020 - Monash Bioethics Review 1 (2):146-165.
    Nicholas Agar, Jeff McMahan and Allen Buchanan have all expressed concerns about enhancing humans far outside the species-typical range. They argue radically enhanced beings will be entitled to greater and more beneficial treatment through an enhanced moral status, or a stronger claim to basic rights. I challenge these claims by first arguing that emerging technologies will likely give the enhanced direct control over their mental states. The lack of control we currently exhibit over our mental lives greatly contributes to our (...)
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  • Epigenetics and Responsibility: Ethical Perspectives.Emma Moormann, Anna Smajdor & Daniela Cutas (eds.) - 2024 - Bristol University Press.
    EPUB and EPDF available Open Access under CC-BY-NC-ND licence. We tend to hold people responsible for their choices, but not for what they can’t control: their nature, genes or biological makeup. This thought-provoking collection redefines the boundaries of moral responsibility. It shows how epigenetics reveals connections between our genetic make-up and our environment. The essays challenge established notions of human nature and the nature/nurture divide and suggest a shift in focus from individual to collective responsibility. Uncovering the links between our (...)
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  • Natural goodness without natural history.Parisa Moosavi - 2022 - Philosophy and Phenomenological Research:78-100.
    Neo‐Aristotelian ethical naturalism purports to show that moral evaluation of human action and character is an evaluation of natural goodness—a kind of evaluation that applies to living things in virtue of their nature and based on their form of life. The standard neo‐Aristotelian view defines natural goodness by way of generic statements describing the natural history, or the ‘characteristic’ life, of a species. In this paper, I argue that this conception of natural goodness commits the neo‐Aristotelian view to a problematic (...)
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  • Ableism and Ageism: Insights from Disability Studies for Aging Studies.Joel Michael Reynolds & Anna Landre - 2022 - In Kate de Meideros, Marlene Goldman & Thomas Cole (eds.), Critical Humanities and Aging. Routledge. pp. 118-29.
    [This piece is written for those working in social gerontology and aging studies, with the aim of bringing insights from disability studies and philosophy of disability to bear on enduring debates in those fields.] The guiding question of humanistic age-studies—What does it mean to grow old?—cannot be answered without reflecting on disability. This is not simply because growing old invariably means becoming impaired in various ways, but also because the discriminations and stigmas involved in ageism are often rooted in ableism. (...)
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  • Feminism and Disability.Joel Michael Reynolds & Anita Silvers - 2017 - In Hay Carol (ed.), Philosophy: Feminism. Farmington Hills, Mich.: Macmillan Reference USA. pp. 295-316.
    The article introduces readers to the study of disability, both with respect to the interdisciplinary field of disability studies and the field of philosophy of disability. We then offer an overview of three central areas of philosophical inquiry where feminist work in philosophy and disability has made significant contributions: (1) metaphysics and ontology, (2) epistemology and phenomenology, and (3) ethical, social, and political philosophy.
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  • Well-being, Disability, and Choosing Children.Matthew J. Barker & Robert A. Wilson - 2019 - Mind 128 (510):305-328.
    The view that it is better for life to be created free of disability is pervasive in both common sense and philosophy. We cast doubt on this view by focusing on an influential line of thinking that manifests it. That thinking begins with a widely-discussed principle, Procreative Beneficence, and draws conclusions about parental choice and disability. After reconstructing two versions of this argument, we critique the first by exploring the relationship between different understandings of well-being and disability, and the second (...)
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  • Epistemic Oppression and Ableism in Bioethics.Christine Wieseler - 2020 - Hypatia 35 (4):714-732.
    Disabled people face obstacles to participation in epistemic communities that would be beneficial for making sense of our experiences and are susceptible to epistemic oppression. Knowledge and skills grounded in disabled people's experiences are treated as unintelligible within an ableist hermeneutic, specifically, the dominant conception of disability as lack. My discussion will focus on a few types of epistemic oppression—willful hermeneutical ignorance, epistemic exploitation, and epistemic imperialism—as they manifest in some bioethicists’ claims about and interactions with disabled people. One of (...)
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  • Disability, Diversity, and Preference for the Status Quo: Bias or Justifiable Preference?David Wasserman - 2015 - American Journal of Bioethics 15 (6):11-12.
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  • Is it ever morally permissible to select for deafness in one’s child?Jacqueline Mae Wallis - 2020 - Medicine, Health Care and Philosophy 23 (1):3-15.
    As reproductive genetic technologies advance, families have more options to choose what sort of child they want to have. Using preimplantation genetic diagnosis (PGD), for example, allows parents to evaluate several existing embryos before selecting which to implant via in vitro fertilization (IVF). One of the traits PGD can identify is genetic deafness, and hearing embryos are now preferentially selected around the globe using this method. Importantly, some Deaf families desire a deaf child, and PGD–IVF is also an option for (...)
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  • New perspectives on person-centered care: an affordance-based account.Juan Toro & Kristian Martiny - 2020 - Medicine, Health Care and Philosophy 23 (4):631-644.
    Despite the growing interest and supporting evidence for person-centered care, there is still a fundamental disagreement about what makes healthcare person-centered. In this article, we define PCC as operating with three fundamental conditions: personal, participatory and holistic. To further understand these concepts, we develop a framework based on the theory of affordances, which we apply to the healthcare case of rehabilitation and a concrete experiment on social interactions between persons with cerebral palsy and physio- and occupational therapists. Based on the (...)
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  • Denying a Unified Concept of Disability.Kevin Timpe - 2022 - Journal of Medicine and Philosophy 47 (5):583-596.
    This paper argues that there are reasons to believe that there is no single concept or category which demarcates all individuals who have a disability from those individuals who do not. The paper begins by describing that I call ‘a Unified Concept View of Disability’ and the role that such a view plays in debates about the nature of disability. After considering reasons to think that our concept of disability is not unified in the way that the Unified Concept View (...)
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  • Adaptive preferences: merging political accounts and well-being accounts.Rosa Terlazzo - 2015 - Canadian Journal of Philosophy 45 (2):179-196.
    Accounts of adaptive preferences are of two kinds: well-being accounts fully theorized for their own sake and political accounts theorized to facilitate the political project of reducing oppression and marginalization. Given their practical role, the latter are often less fully theorized, and are therefore less robust to theoretical criticism. In this paper, I first draw on well-being accounts to identify the well-theorized elements that political accounts should want to adopt in order to strengthen their project and avoid common criticisms. Second, (...)
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  • Critical Notice of Jason Stanley’s How Propaganda Works.Eric Swanson - 2017 - Mind 126 (503):937-947.
    © Swanson 2017How Propaganda Works is a brilliant, rich, and wide-ranging exploration of the interactions between ideology, inequality, democracy and propaganda. Read as a piece of analytic political philosophy, it is radical, arguing for bold theses about democracy: legitimate democratic deliberation, Stanley contends, requires not only political equality but also substantive material equality. Read as a piece of analytic epistemology and philosophy of language, it is more modest, but nevertheless very compelling, extending well-established work in fascinating but methodologically conservative ways. (...)
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  • The right to assistive technology.Joseph A. Stramondo - 2020 - Theoretical Medicine and Bioethics 41 (5):247-271.
    In this paper, I argue that disabled people have a right to assistive technology, but this right cannot be grounded simply in a broader right to health care or in a more comprehensive view like the capabilities approach to justice. Both of these options are plagued by issues that I refer to as the problem of constriction, where the theory does not justify enough of the AT that disabled people should have access to, and the problem of overextension, where the (...)
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  • From ‘if‐then’ to ‘what if?’ Rethinking healthcare algorithmics with posthuman speculative ethics.Jamie Smith, Goda Klumbyte & Ren Loren Britton - 2023 - Nursing Philosophy 24 (3):e12447.
    This article discusses the role that algorithmic thinking and management play in health care and the kind of exclusions this might create. We argue that evidence‐based medicine relies on research and data to create pathways for patient journeys. Coupled with data‐based algorithmic prediction tools in health care, they establish what could be called health care algorithmics—a mode of management of healthcare that produces forms of algorithmic governmentality. Relying on a critical posthumanist perspective, we show how healthcare algorithmics is contingent on (...)
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  • Philosophy and Disability: What Should Philosophy Do?Anita Silvers - 2016 - Res Philosophica 93 (4):843-863.
    Elizabeth Barnes’s recently proposed value-neutral model for disability provoked a familiar storm of oft-made objections from philosophers who appear committed to equating being disabled with being intrinsically or inescapably disadvantaged. Their narrow framing of the options for disabled people is influenced, I suggest, by purposes to which “disability” (on my analysis, a term of art) now is put. But there are both epistemic and moral reasons to refrain from importing the normative narrowness imposed by these purposes into our philosophical investigation (...)
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  • In Defense of Artificial Replacement.Derek Shiller - 2017 - Bioethics 31 (5):393-399.
    If it is within our power to provide a significantly better world for future generations at a comparatively small cost to ourselves, we have a strong moral reason to do so. One way of providing a significantly better world may involve replacing our species with something better. It is plausible that in the not‐too‐distant future, we will be able to create artificially intelligent creatures with whatever physical and psychological traits we choose. Granted this assumption, it is argued that we should (...)
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  • A Dilemma For Neurodiversity.Kenneth Shields & David Beversdorf - 2020 - Neuroethics 14 (2):125-141.
    One way to determine whether a mental condition should be considered a disorder is to first give necessary and sufficient conditions for something to be a disorder and then see if it meets these conditions. But this approach has been criticized for begging normative questions. Concerning autism (and other conditions), a neurodiversity movement has arisen with essentially two aims: (1) advocate for the rights and interests of individuals with autism, and (2) de-pathologize autism. We argue that denying autism’s disorder status (...)
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  • Bioethics: why philosophy is essential for progress.Julian Savulescu - 2015 - Journal of Medical Ethics 41 (1):28-33.
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  • The Perfect Bikini Body: Can We All Really Have It? Loving Gaze as an Antioppressive Beauty Ideal.Sara Protasi - 2017 - Thought: A Journal of Philosophy 6 (2):93-101.
    In this paper, I ask whether there is a defensible philosophical view according to which everybody is beautiful. I review two purely aesthetical versions of this claim. The No Standards View claims that everybody is maximally and equally beautiful. The Multiple Standards View encourages us to widen our standards of beauty. I argue that both approaches are problematic. The former fails to be aspirational and empowering, while the latter fails to be sufficiently inclusive. I conclude by presenting a hybrid ethical–aesthetical (...)
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  • Liberal Neutrality and the Nonidentity Problem: The Right to Procreate Deaf Children.Cristian Puga-Gonzalez - 2019 - Journal of Social Philosophy 50 (3):363-381.
    Journal of Social Philosophy, EarlyView.
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  • Disability, Transition Costs, and the Things That Really Matter.Tommy Ness & Linda Barclay - 2023 - Journal of Medicine and Philosophy 48 (6):591-602.
    This article develops a detailed, empirically driven analysis of the nature of the transition costs incurred in becoming disabled. Our analysis of the complex nature of these costs supports the claim that it can be wrong to cause disability, even if disability is just one way of being different. We also argue that close attention to the nature of transition costs gives us reason to doubt that well-being, including transitory impacts on well-being, is the only thing that should determine the (...)
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  • Epigenetics and Forward-Looking Collective Responsibility.Emma Moormann - 2024 - In Emma Moormann, Anna Smajdor & Daniela Cutas (eds.), Epigenetics and Responsibility: Ethical Perspectives. Bristol University Press. pp. 37-56.
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  • From assistive to enhancing technology: should the treatment-enhancement distinction apply to future assistive and augmenting technologies?Francesca Minerva & Alberto Giubilini - 2017 - Journal of Medical Ethics:medethics-2016-104014.
    The treatment-enhancement distinction is often used to delineate acceptable and unacceptable medical interventions. It is likely that future assistive and augmenting technologies will also soon develop to a level that they might be considered to provide users, in particular those with disabilities, with abilities that go beyond natural human limits, and become in effect an enhancing technology. In this paper, we describe how this process might take place, and discuss the moral implications of such developments. We argue that such developments (...)
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  • Reasons and Reproduction: Gene Editing and Genetic Selection.Jeff McMahan & Julian Savulescu - forthcoming - American Journal of Bioethics:1-11.
    The dominant view in bioethics is that embryo selection is in general morally preferable to gene editing because the latter involves risks that are absent in the former. What is less widely appreci...
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  • On Respecting Animals, or Can Animals be Wronged Without Being Harmed?Angela K. Martin - 2019 - Res Publica 25 (1):83-99.
    There is broad agreement that humans can be wronged independently of their incurring any harm, that is, when their welfare is not affected. Examples include unnoticed infringements of privacy, ridiculing unaware individuals, or disregarding individuals’ autonomous decision-making in their best interest. However, it is less clear whether the same is true of animals—that is, whether moral agents can wrong animals in situations that do not involve any harm to the animals concerned. In order to answer this question, I concentrate on (...)
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  • Protestant Christian Supremacy and Status Inequality.Jon Mahoney - 2022 - Radical Philosophy Review 25 (1):55–82.
    In the United States, Protestant Christian identity is the dominant religious identity. Protestant Christian identity confers status privileges, yet also creates objectionable status inequalities. Historical and contemporary evidence includes the unfair treatment of Mormons, Native Americans, Muslims, and other religious minorities. Protestant Christian supremacy also plays a significant role in bolstering anti LGBTQ prejudice, xenophobia, and white supremacy. Ways that Protestant Christian identity correlates with objectionable status inequalities are often neglected in contemporary political philosophy. This paper aims to make a (...)
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  • Is it unjust that elderly people suffer from poorer health than young people? Distributive and relational egalitarianism on age-based health inequalities.Kasper Lippert-Rasmussen - 2019 - Politics, Philosophy and Economics 18 (2):145-164.
    In any normal population, health is unequally distributed across different age groups. Are such age-based health inequalities unjust? A divide has recently developed within egalitarian theories of...
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  • Reviewing resistances to reconceptualizing disability.Chong-Ming Lim - 2017 - Proceedings of the Aristotelian Society 117 (3):321-331.
    I attempt to adjudicate the disagreement between those who seek to reconceptualize disability as mere difference and their opponents. I do so by reviewing a central conviction motivating the resistance, concerning the relationship between disability and well-being. I argue that the conviction depends on further considerations about the costs and extent of change involved in accommodating individuals with a particular disability trait. I conclude by considering three pay-offs of this clarification.
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  • The medical model, with a human face.Justis Koon - 2022 - Philosophical Studies 179 (12):3747-3770.
    In this paper, I defend a version of the medical model of disability, which defines disability as an enduring biological dysfunction that causes its bearer a significant degree of impairment. We should accept the medical model, I argue, because it succeeds in capturing our judgments about what conditions do and do not qualify as disabilities, because it offers a compelling explanation for what makes a condition count as a disability, and because it justifies why the federal government should spend hundreds (...)
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  • Disability and Mere Difference.Guy Kahane & Julian Savulescu - 2016 - Ethics 126 (3):774-788.
    Some disability activists argue that disability is merely a difference. It is often objected that this view has unacceptable implications, implying, for example, that it is permissible to cause disability. In reply, Elizabeth Barnes argues that viewing disability as a difference needn’t entail such implications and that seeing such implications as unacceptable is question-begging. We argue that Barnes misconstrues this objection to the mere difference view of disability: it’s not question-begging to regard its implications as unacceptable, and the grounds that (...)
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  • How to allocate scarce health resources without discriminating against people with disabilities.Tyler M. John, Joseph Millum & David Wasserman - 2017 - Economics and Philosophy 33 (2):161-186.
    One widely used method for allocating health care resources involves the use of cost-effectiveness analysis (CEA) to rank treatments in terms of quality-adjusted life-years (QALYs) gained. CEA has been criticized for discriminating against people with disabilities by valuing their lives less than those of non-disabled people. Avoiding discrimination seems to lead to the ’QALY trap’: we cannot value saving lives equally and still value raising quality of life. This paper reviews existing responses to the QALY trap and argues that all (...)
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  • Ways to Be Worse Off.Ian Stoner - 2016 - Res Philosophica 93 (4):921-949.
    Does disability make a person worse off? I argue that the best answer is yes AND no, because we can be worse off in two conceptually distinct ways. Disabilities usually make us worse off in one way (typified by facing hassles) but not in the other (typified by facing loneliness). Acknowledging two conceptually distinct ways to be worse off has fundamental implications for philosophical theories of well-being. (This paper won the APA’s Routledge, Taylor & Francis Prize in 2017.).
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  • Fanciful Examples.Ian Stoner & Jason Swartwood - 2017 - Metaphilosophy 48 (3):325-344.
    This article defends the use of fanciful examples within the method of wide reflective equilibrium. First, it characterizes the general persuasive role of described cases within that method. Second, it suggests three criteria any example must meet in order to succeed in this persuasive role; fancifulness has little or nothing to do with whether an example is able to meet these criteria. Third, it discusses several general objections to fanciful examples and concludes that they are objections to the abuse of (...)
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  • "Transforming Others: On the Limits of "You "ll Be Glad I Did It" Reasoning.Dana Sarah Howard - 2015 - Res Philosophica 92 (2):341-370.
    We often find ourselves in situations where it is up to us to make decisions on behalf of others. How can we determine whether such decisions are morally justified, especially if those decisions may change who it is these others end up becoming? In this paper, I will evaluate one plausible kind of justification that may tempt us: we may want to justify our decision by appealing to the likelihood that the other person will be glad we made that specific (...)
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  • Maternal Autonomy and Prenatal Harm.Nathan Robert Howard - 2023 - Bioethics 37 (3):246-255.
    Inflicting harm is generally preferable to inflicting death. If you must choose between the two, you should generally choose to harm. But prenatal harm seems different. If a mother must choose between harming her fetus or aborting it, she may choose either, at least in many cases. So it seems that prenatal harm is particularly objectionable, sometimes on a par with death. This paper offers an explanation of why prenatal harm seems particularly objectionable by drawing an analogy to the all-or-nothing (...)
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  • Aristotle on Co-causes of One’s Dispositions.Filip Grgić - 2017 - Elenchos 38 (1-2):107-126.
    In this paper I offer a close reading of Aristotle’s argument in the Nicomachean Ethics 3.5.1114a31–b25 and try to show that despite considerable interpretive difficulties, some clear structure can nevertheless be discerned. While Aristotle’s main concern in this passage is to refute the so-called asymmetry thesis – the thesis that virtue is voluntary, but vice is not – there is much more in it than just a dialectical encounter. Aristotle wants to respond to a more general objection, which has as (...)
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  • A Life Worth Living: Value and Responsibility.Audra L. Goodnight - 2019 - Journal of Medicine and Philosophy 44 (2):133-149.
    Value and responsibility are two central concepts in philosophy and bioethics. The articles that comprise this issue of The Journal of Medicine and Philosophy engage topics of moral injury, madness, transhumanism, cognitive enhancement, and the woman’s responsibility to assist her fetus. Clearly diverse in matter, these subject articles univocally present fruitful ground for engagement with contemporary questions that impact society today. The ability to cure or to enhance, to treat or to terminate through advances in medical technology are all actions (...)
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  • Elective Impairment Minus Elective Disability: The Social Model of Disability and Body Integrity Identity Disorder.Richard B. Gibson - 2020 - Journal of Bioethical Inquiry 17 (1):145-155.
    Individuals with body integrity identity disorder seek to address a non-delusional incongruity between their body image and their physical embodiment, sometimes via the surgical amputation of healthy body parts. Opponents to the provision of therapeutic healthy-limb amputation in cases of BIID make appeals to the envisioned harms that such an intervention would cause, harms such as the creation of a lifelong physical disability where none existed before. However, this concept of harm is often based on a normative biomedical model of (...)
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  • Elective Impairment Minus Elective Disability: The Social Model of Disability and Body Integrity Identity Disorder.Richard B. Gibson - 2020 - Journal of Bioethical Inquiry 17 (1):145-155.
    Individuals with body integrity identity disorder seek to address a non-delusional incongruity between their body image and their physical embodiment, sometimes via the surgical amputation of healthy body parts. Opponents to the provision of therapeutic healthy-limb amputation in cases of BIID make appeals to the envisioned harms that such an intervention would cause, harms such as the creation of a lifelong physical disability where none existed before. However, this concept of harm is often based on a normative biomedical model of (...)
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  • Elective Impairment Minus Elective Disability: The Social Model of Disability and Body Integrity Identity Disorder.Richard B. Gibson - 2020 - Journal of Bioethical Inquiry 17 (1):145-155.
    Individuals with body integrity identity disorder seek to address a non-delusional incongruity between their body image and their physical embodiment, sometimes via the surgical amputation of healthy body parts. Opponents to the provision of therapeutic healthy-limb amputation in cases of BIID make appeals to the envisioned harms that such an intervention would cause, harms such as the creation of a lifelong physical disability where none existed before. However, this concept of harm is often based on a normative biomedical model of (...)
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  • Elective Impairment Minus Elective Disability: The Social Model of Disability and Body Integrity Identity Disorder.Richard B. Gibson - 2020 - Journal of Bioethical Inquiry 17 (1):145-155.
    Individuals with body integrity identity disorder seek to address a non-delusional incongruity between their body image and their physical embodiment, sometimes via the surgical amputation of healthy body parts. Opponents to the provision of therapeutic healthy-limb amputation in cases of BIID make appeals to the envisioned harms that such an intervention would cause, harms such as the creation of a lifelong physical disability where none existed before. However, this concept of harm is often based on a normative biomedical model of (...)
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  • Body integrity dysphoria and medical necessity: Amputation as a step towards health.Richard B. Gibson - 2023 - Clinical Ethics (3):321-329.
    Interventions are medically necessary when they are vital in achieving the goal of medicine. However, with varying perspectives comes varying views on what interventions are (un)necessary and, thus, what potential treatment options are available for those suffering from the myriad of conditions, pathologies and disorders afflicting humanity. Medical necessity's teleological nature is perhaps best illustrated in cases where there is debate over using contentious medical interventions as a last resort. For example, whether it is appropriate for those suffering from body (...)
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  • When Good Things Happen to Harmed People.Molly Gardner - 2019 - Ethical Theory and Moral Practice 22 (4):893-908.
    The problem of justified harm is the problem of explaining why it is permissible to inflict harm for the sake of future benefits in some cases but not in others. In this paper I first motivate the problem by comparing a case in which a lifeguard breaks a swimmer’s arm in order to save her life to a case in which Nazis imprison a man who later grows wiser as a result of the experience. I consider other philosophers’ attempts to (...)
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  • The Ethics of Prenatal Injury.Jessica Flanigan - 2020 - Journal of Moral Philosophy 18 (1):1-23.
    I argue that it is permissible for pregnant women to expose their unborn children to risks and injury. I begin with the premise that abortion is permissible. If so, then just as a pregnant woman may permissibly prevent an unborn child from experiencing any future wellbeing, she also may permissibly provide her child relatively poorer prospects for wellbeing. Therefore, it is permissible for pregnant women to take risks and cause prenatal injury. This argument has revisionary implications for policies that prevent (...)
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  • Harm and the concept of medical disorder.Neil Feit - 2017 - Theoretical Medicine and Bioethics 38 (5):367-385.
    According to Jerome Wakefield’s harmful dysfunction analysis of medical disorder, the inability of some internal part or mechanism to perform its natural function is necessary, but not sufficient, for disorder. HDA also requires that the part dysfunction be harmful to the individual. I consider several problems for HDA’s harm criterion in this article. Other accounts on which harm is necessary for disorder will suffer from all or almost all of these problems. Comparative accounts of harm imply that one is harmed (...)
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  • Defining Disability: Creating a Monster?Marissa D. Espinoza & Addison S. Tenorio - 2022 - Journal of Medicine and Philosophy 47 (5):573-582.
    Disability is often defined as deviation from putative norms of physical, cognitive, or affective function. This definition is normatively laden, causing people with disabilities to be thought of as “different” and treated with pity. We address the predominant theme of this issue on “Disability Identity”: defining and imposing the category of “disability” and attempting to overcome it through medical intervention. The issue culminates in a call for courageous humility as the proper response to encounters with disability, providing medical professionals with (...)
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  • Disability as solidarity: political not (only) metaphysical.Tom Dougherty - 2020 - Philosophy and Phenomenological Research 100 (1):219-224.
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  • Culpable Ignorance and Mental Disorders.Matthieu Doucet & Dylon McChesney - 2019 - Journal of Ethics and Social Philosophy 14 (3).
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  • No Mere Difference.David Devidi & Catherine Klausen - 2017 - Dialogue 56 (2):357-379.
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