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  1. Bidirectional Shaping and Spaces of Convergence: Interactions between Biology and Computing from the First DNA Sequencers to Global Genome Databases. [REVIEW]Miguel García-Sancho & Peter A. Chow-White - 2012 - Science, Technology, and Human Values 37 (1):124-164.
    This article proposes a new bi-directional way of understanding the convergence of biology and computing. It argues for a reciprocal interaction in which biology and computing have shaped and are currently reshaping each other. In so doing, we qualify both the view of a natural marriage and of a digital shaping of biology, which are common in the literature written by scientists, STS, and communication scholars. The DNA database is at the center of this interaction. We argue that DNA databases (...)
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  • The harm of medical disorder as harm in the damage sense.David G. Limbaugh - 2019 - Theoretical Medicine and Bioethics 40 (1):1-19.
    Jerome Wakefield has argued that a disorder is a harmful dysfunction. This paper develops how Wakefield should construe harmful in his harmful dysfunction analysis. Recently, Neil Feit has argued that classic puzzles involved in analyzing harm render Wakefield’s HDA better off without harm as a necessary condition. Whether or not one conceives of harm as comparative or non-comparative, the concern is that the HDA forces people to classify as mere dysfunction what they know to be a disorder. For instance, one (...)
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  • The political economy of death in the age of information: a critical approach to the digital afterlife industry.Carl Öhman & Luciano Floridi - 2017 - Minds and Machines 27 (4):639-662.
    Online technologies enable vast amounts of data to outlive their producers online, thereby giving rise to a new, digital form of afterlife presence. Although researchers have begun investigating the nature of such presence, academic literature has until now failed to acknowledge the role of commercial interests in shaping it. The goal of this paper is to analyse what those interests are and what ethical consequences they may have. This goal is pursued in three steps. First, we introduce the concept of (...)
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  • The moral limits of the criminal law.Joel Feinberg - 1984 - New York,USA: Oxford University Press.
    These four volumes address the question of the kinds of conduct may the state make criminal without infringing on the moral autonomy of individual citizens.
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  • Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.Isabelle Budin-Ljøsne, Harriet J. A. Teare, Jane Kaye, Stephan Beck, Heidi Beate Bentzen, Luciana Caenazzo, Clive Collett, Flavio D’Abramo, Heike Felzmann, Teresa Finlay, Muhammad Kassim Javaid, Erica Jones, Višnja Katić, Amy Simpson & Deborah Mascalzoni - 2017 - BMC Medical Ethics 18 (1):4.
    BackgroundInnovations in technology have contributed to rapid changes in the way that modern biomedical research is carried out. Researchers are increasingly required to endorse adaptive and flexible approaches to accommodate these innovations and comply with ethical, legal and regulatory requirements. This paper explores how Dynamic Consent may provide solutions to address challenges encountered when researchers invite individuals to participate in research and follow them up over time in a continuously changing environment.MethodsAn interdisciplinary workshop jointly organised by the University of Oxford (...)
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  • Why We Should Reject S.Derek Parfit - 1984 - In Reasons and Persons. Oxford, GB: Oxford University Press.
    An argument against the bias towards the near; how a defence of temporal neutrality is not a defence of S; an appeal to inconsistency; why we should reject S and accept CP.
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  • On human dignity as a foundation for the right to privacy.Luciano Floridi - 2016 - Philosophy and Technology 29 (4):307-312.
    In 2016, the European Parliament approved the General Data Protection Regulation (GDPR) whose core aim is the safeguarding of information privacy, and, by corollary, human dignity. Drawing on the field of philosophical anthropology, this paper analyses various interpretations of human dignity and human exceptionalism. It concludes that privacy is essential for humans to flourish and enable individuals to build a sense of self and the world.
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  • The ethics of information.Luciano Floridi - 2013 - Oxford, England: Oxford University Press UK.
    Luciano Floridi develops the first ethical framework for dealing with the new challenges posed by Information and Communication Technologies. He establishes the conceptual foundations of Information Ethics by exploring important metatheoretical and introductory issues, and answering key theoretical questions of great philosophical interest.
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  • The ethics of big data: current and foreseeable issues in biomedical contexts.Brent Daniel Mittelstadt & Luciano Floridi - 2016 - Science and Engineering Ethics 22 (2):303–341.
    The capacity to collect and analyse data is growing exponentially. Referred to as ‘Big Data’, this scientific, social and technological trend has helped create destabilising amounts of information, which can challenge accepted social and ethical norms. Big Data remains a fuzzy idea, emerging across social, scientific, and business contexts sometimes seemingly related only by the gigantic size of the datasets being considered. As is often the case with the cutting edge of scientific and technological progress, understanding of the ethical implications (...)
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  • Genetics and Reductionism.Sahotra Sarkar - 2012 - Cambridge University Press.
    With the advent of the Human Genome Project there have been many claims for the genetic origins of complex human behavior including insanity, criminality, and intelligence. But what does it really mean to call something 'genetic'? This is the fundamental question that Sahotra Sarkar's book addresses. The author analyses the nature of reductionism in classical and molecular genetics. He shows that there are two radically different kinds of reductionist explanation: genetic reduction (as found in classical genetics) and physical reduction (found (...)
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  • Embodiment as a Paradigm for Anthropology.Thomas J. Csordas - 1990 - Ethos: Journal of the Society for Psychological Anthropology 18 (1):5-47.
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  • ‚Mirroring‘ the Ethics of Biobanking: What Analysis of Consent Documents Can Tell Us?Serepkaite Jurate, Valuckiene Zivile & Gefenas Eugenijus - 2014 - Science and Engineering Ethics 20 (4):1-15.
    Biobanks have been recognized as a key research infrastructure and how to approach ethical questions has been a topic of discussion for at least a decade by now. This article explores the characteristics of donors’ participation in European biobanks as reflected in the consent documents of a selection of different biobanks from various European countries. The primary aim of this study is to understand how donors are informed about their participation in biobanking. Also the paper discusses what the most important (...)
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  • The art of happiness. Epicurus - 2012 - New York: Penguin Books. Edited by George K. Strodach.
    "First published in the United States of America as The philisophy of Epicurus: letters, doctrines, and parallel passages from Lucretius."--T.p, verso.
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  • The philosophy of information.Luciano Floridi - 2011 - New York: Oxford University Press.
    Luciano Floridi presents a book that will set the agenda for the philosophy of information. PI is the philosophical field concerned with the critical investigation of the conceptual nature and basic principles of information, including its dynamics, utilisation, and sciences, and the elaboration and application of information-theoretic and computational methodologies to philosophical problems. This book lays down, for the first time, the conceptual foundations for this new area of research. It does so systematically, by pursuing three goals. Its metatheoretical goal (...)
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  • Groundwork for the metaphysics of morals.Immanuel Kant - 1785 - New York: Oxford University Press. Edited by Thomas E. Hill & Arnulf Zweig.
    In this classic text, Kant sets out to articulate and defend the Categorical Imperative - the fundamental principle that underlies moral reasoning - and to lay the foundation for a comprehensive account of justice and human virtues. This new edition and translation of Kant's work is designed especially for students. An extensive and comprehensive introduction explains the central concepts of Groundwork and looks at Kant's main lines of argument. Detailed notes aim to clarify Kant's thoughts and to correct some common (...)
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  • Death.Thomas Nagel - 1970 - Noûs 4 (1):73-80.
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  • The ontological interpretation of informational privacy.Luciano Floridi - 2005 - Ethics and Information Technology 7 (4):185–200.
    The paper outlines a new interpretation of informational privacy and of its moral value. The main theses defended are: (a) informational privacy is a function of the ontological friction in the infosphere, that is, of the forces that oppose the information flow within the space of information; (b) digital ICTs (information and communication technologies) affect the ontological friction by changing the nature of the infosphere (re-ontologization); (c) digital ICTs can therefore both decrease and protect informational privacy but, most importantly, they (...)
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  • Reasons and Persons.Derek Parfit - 1984 - Oxford, GB: Oxford University Press.
    Challenging, with several powerful arguments, some of our deepest beliefs about rationality, morality, and personal identity, Parfit claims that we have a false view about our own nature. It is often rational to act against our own best interersts, he argues, and most of us have moral views that are self-defeating. We often act wrongly, although we know there will be no one with serious grounds for complaint, and when we consider future generations it is very hard to avoid conclusions (...)
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  • Genomic Contextualism: Shifting the Rhetoric of Genetic Exceptionalism.John A. Lynch, Aaron J. Goldenberg, Kyle B. Brothers & Nanibaa' A. Garrison - 2019 - American Journal of Bioethics 19 (1):51-63.
    As genomic science has evolved, so have policy and practice debates about how to describe and evaluate the ways in which genomic information is treated for individuals, institutions, and society. The term genetic exceptionalism, describing the concept that genetic information is special or unique, and specifically different from other kinds of medical information, has been utilized widely, but often counterproductively in these debates. We offer genomic contextualism as a new term to frame the characteristics of genomic science in the debates. (...)
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  • The moral limits of the criminal Law.Joël Feinberg - 1984 - Revue de Métaphysique et de Morale 93 (2):279-279.
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  • Genetics and Reductionism.Sahotra Sarkar - 2000 - Philosophical Quarterly 50 (198):128-130.
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  • The philosophy of information.Luciano Floridi - 2010 - The Philosophers' Magazine 50:42-43.
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  • How Distinctive is Genetic Information?Martin Richards - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):663-687.
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  • Posthumous interests and posthumous respect.Ernest Partridge - 1981 - Ethics 91 (2):243-264.
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  • Ethical medical data donation: a pressing issue.Jenny Krutzinna & Luciano Floridi - 2019 - In Peter Dabrock, Matthias Braun & Patrik Hummel (eds.), The Ethics of Medical Data Donation. Springer Verlag.
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  • The Inorganic Body in the Early Marx: A Limit-Concept of Anthropocentrism.Judith Butler - 2019 - Radical Philosophy 2 (6):3-17.
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  • Enabling posthumous medical data donation: an appeal for the ethical utilisation of personal health data.Jenny Krutzinna, Mariarosaria Taddeo & Luciano Floridi - 2019 - Science and Engineering Ethics 25 (5):1357-1387.
    This article argues that personal medical data should be made available for scientific research, by enabling and encouraging individuals to donate their medical records once deceased, similar to the way in which they can already donate organs or bodies. This research is part of a project on posthumous medical data donation developed by the Digital Ethics Lab at the Oxford Internet Institute at the University of Oxford. Ten arguments are provided to support the need to foster posthumous medical data donation. (...)
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  • The Myth of Posthumous Harm.James Stacey Taylor - 2005 - American Philosophical Quarterly 42 (4):311 - 322.
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  • Archaeology and respect for the dead.Geoffrey Scarre - 2003 - Journal of Applied Philosophy 20 (3):237–249.
    abstract Contemporary archaeologists commonly acknowledge moral responsibilities to the descendants of the subjects whose remains they disturb. There has been comparatively little reflection within the professional community on whether they have duties to the dead themselves. I argue that doing wrong to the dead is not reducible to harming their successors; that there are ways in which archaeologists can wrong the dead qua the living persons they once were; and that nevertheless this may not have such radical implications for the (...)
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  • Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.Dick L. Willems, Hanno L. Tan, Marieke T. Blom, Rens Veeken & Marieke A. R. Bak - 2021 - BMC Medical Ethics 22 (1):1-15.
    BackgroundConsent for data research in acute and critical care is complex as patients become at least temporarily incapacitated or die. Existing guidelines and regulations in the European Union are of limited help and there is a lack of literature about the use of data from this vulnerable group. To aid the creation of a patient-centred framework for responsible data research in the acute setting, we explored views of patients and next-of-kin about the collection, storage, sharing and use of genetic and (...)
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  • Posthumous Interests: Legal and Ethical Perspectives.Daniel Sperling - 2008 - Cambridge University Press.
    Daniel Sperling discusses the legal status of posthumous interests and their possible defeat by actions performed following the death of a person. The author first explores the following questions: Do the dead have interests and/or rights, the defeat of which may constitute harm? What does posthumous harm consist of and when does it occur, if at all? This is followed by a more detailed analysis of three categories of posthumous interests arising in the medico-legal context: the proprietary interest in the (...)
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  • Body Fragmentation: Native American Community Members’ Views on Specimen Disposition in Biomedical/Genetics Research.Puneet Chawla Sahota - 2014 - AJOB Empirical Bioethics 5 (3):19-30.
    Background: Genetics research is controversial in Native American communities, and the disposition and ownership of biological specimens are central issues. Within Native communities, there is considerable variety in tribal members’ views. This article reports the results from an ethnographic study conducted with a Native American community in the southwestern United States. The purpose of this study was to examine the relationship (past and present) between the tribe and biomedical/genetics research. Methods: Qualitative interviews were conducted with 53 members of a Native (...)
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  • Understanding the care.data conundrum: New information flows for economic growth.Stephen Timmons & Paraskevas Vezyridis - 2017 - Big Data and Society 4 (1).
    The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical Science and Technology Studies lens, it examines the (...)
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  • Medicine, market and communication: ethical considerations in regard to persuasive communication in direct-to-consumer genetic testing services.Manuel Schaper & Silke Schicktanz - 2018 - BMC Medical Ethics 19 (1):1-11.
    Commercial genetic testing offered over the internet, known as direct-to-consumer genetic testing (DTC GT), currently is under ethical attack. A common critique aims at the limited validation of the tests as well as the risk of psycho-social stress or adaption of incorrect behavior by users triggered by misleading health information. Here, we examine in detail the specific role of advertising communication of DTC GT companies from a medical ethical perspective. Our argumentative analysis departs from the starting point that DTC GT (...)
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  • Deletion as second death: the moral status of digital remains.Patrick Stokes - 2015 - Ethics and Information Technology 17 (4):237-248.
    There has been increasing attention in sociology and internet studies to the topic of ‘digital remains’: the artefacts users of social network services (SNS) and other online services leave behind when they die. But these artefacts also pose philosophical questions regarding what impact, if any, these artefacts have on the ontological and ethical status of the dead. One increasingly pertinent question concerns whether these artefacts should be preserved, and whether deletion counts as a harm to the deceased user and therefore (...)
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  • Persons, lives, and posthumous Harms.Walter Glannon - 2001 - Journal of Social Philosophy 32 (2):127–142.
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  • The particularity of dignity: relational engagement in care at the end of life.Jeannette Pols, Bernike Pasveer & Dick Willems - 2018 - Medicine, Health Care and Philosophy 21 (1):89-100.
    This paper articulates dignity as relational engagement in concrete care situations. Dignity is often understood as an abstract principle that represents inherent worth of all human beings. In actual care practices, this principle has to be substantiated in order to gain meaning and inform care activities. We describe three exemplary substantiations of the principle of dignity in care: as a state or characteristic of a situation; as a way to differentiate between socio-cultural positions; or as personal meaning. We continue our (...)
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  • “We the Scientists”: a Human Right to Citizen Science.Effy Vayena & John Tasioulas - 2015 - Philosophy and Technology 28 (3):479-485.
    The flourishing of citizen science is an exciting phenomenon with the potential to contribute significantly to scientific progress. However, we lack a framework for addressing in a principled and effective manner the pressing ethical questions it raises. We argue that at the core of any such framework must be the human right to science. Moreover, we stress an almost entirely neglected dimension of this right—the entitlement it confers on all human beings to participate in the scientific process in all of (...)
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  • The Visible Human Project: Informatic Bodies and Posthuman Medicine.Cathy Waldby - 2000 - Psychology Press.
    The Visible Human Project examines how the VHP provides visual access to every organ of the body, viewable from every angle and capable of being manipulated to simulate living processes like respiration.
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  • Feinberg's Theory of “Preposthumous” Harm.W. J. Waluchow - 1986 - Dialogue 25 (4):727-.
    In his recent book, Harm to Others, Joel Feinberg addresses the question whether a person can be harmed after his or her own death, that is, whether posthumous harm is a logical possibility. There is a very strong tendency to suppose that harm to the dead is simply inconceivable. After all, there cannot be harm without a subject to be harmed, but when death occurs it appears to obliterate the subject thus excluding the possibility of harm. On the other hand, (...)
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  • How distinctive is genetic information?M. Richards - 2001 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 32 (4):663-687.
    There is extensive discussion of the ethical, social, economic and political issues associated with the use of technologies based on DNA techniques. Many of these debates are premised on the assumption that DNA, and the genetic information that may be derived from it, have unique features which raise new social and ethical issues. In this paper it is argued that several of the features associated with DNA which are sometimes regarded as unique are shared with other biological materials. Others owe (...)
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  • Is Genetic Exceptionalism Past Its Sell-By Date? On Genomic Diaries, Context, and Content.Thomas H. Murray - 2019 - American Journal of Bioethics 19 (1):13-15.
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  • Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations.George J. Annas, Leonard H. Glantz & Patricia A. Roche - 1995 - Journal of Law, Medicine and Ethics 23 (4):360-366.
    Only 27 percent of Americans in a 1995 Harris poll said they had read or heard “quite a lot” about genetic tests. Nonetheless, 68 percent said they would be either “very likely” or “somewhat likely” to undergo genetic testing even for diseases “for which there is presently no cure or treatment.” Perhaps most astonishing, 56 percent found it either “very” or “somewhat acceptable” to develop a government computerized DNA bank with samples taken from all newborns, and their names attached to (...)
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  • Drafting the Genetic Privacy Act: Science, Policy, and Practical Considerations.George J. Annas, Leonard H. Glantz & Patricia A. Roche - 1995 - Journal of Law, Medicine and Ethics 23 (4):360-366.
    Only 27 percent of Americans in a 1995 Harris poll said they had read or heard “quite a lot” about genetic tests. Nonetheless, 68 percent said they would be either “very likely” or “somewhat likely” to undergo genetic testing even for diseases “for which there is presently no cure or treatment.” Perhaps most astonishing, 56 percent found it either “very” or “somewhat acceptable” to develop a government computerized DNA bank with samples taken from all newborns, and their names attached to (...)
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  • Persons and Their Bodies: The Körper/Leib Distinction and Helmuth Plessner’s Theories of Ex-centric Positionality and Homo absconditus.Hans-Peter Krüger - 2010 - Journal of Speculative Philosophy 24 (3):256-274.
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  • Defining Data Donation After Death: Metadata, Families, Directives, Guardians and the Route to Big Consent.David Shaw - 2019 - In Peter Dabrock, Matthias Braun & Patrik Hummel (eds.), The Ethics of Medical Data Donation. Springer Verlag.
    This chapter explores what we actually mean by data donation after death, and what different types of data donation metadata are involved in the process. It then provides an analysis of the ethical ramifications of each of these different types of data, outlines the concepts of data advance directives and data donation guardians as one way of dealing with these issues, and considers alternative governance mechanisms. The degree of control given to the first data donors may need to be high (...)
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  • Sharing whilst caring: solidarity and public trust in a data-driven healthcare system.Ruth Horn & Angeliki Kerasidou - 2020 - BMC Medical Ethics 21 (1):1-7.
    Background In the UK, the solidaristic character of the NHS makes it one of the most trusted public institutions. In recent years, the introduction of data-driven technologies in healthcare has opened up the space for collaborations with private digital companies seeking access to patient data. However, these collaborations appear to challenge the public’s trust in the. Main text In this paper we explore how the opening of the healthcare sector to private digital companies challenges the existing social contract and the (...)
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  • Letting The Dead Bury Their Own Dead: A Reply to Palle Yourgrau.Troy T. Catterson - 2003 - In Charles Tandy (ed.), Death and anti-death. Palo Alto, Calif.: Ria University Press. pp. 1--413.
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  • Posthumous Harm: Why the Dead Are Still Vulnerable.Raymond Angelo Belliotti - 2011 - Lexington Books.
    After introducing the early work of philosophers such as Plato, Aristotle, Epicurus, Cicero, Machiavelli, and Kant on the matter, this book critically examines the literature over the past four decades on the topic of posthumous harm.
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