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  1. added 2017-07-25
    How Bioethics Principles Can Aid Design of Electronic Health Records to Accommodate Patient Granular Control.Eric M. Meslin & Peter H. Schwartz - 2014 - Journal of General Internal Medicine 30 (1):3-6.
    Ethics should guide the design of electronic health records (EHR), and recognized principles of bioethics can play an important role. This approach was adopted recently by a team of informaticists designing and testing a system where patients exert granular control over who views their personal health information. While this method of building ethics in from the start of the design process has significant benefits, questions remain about how useful the application of bioethics principles can be in this process, especially when (...)
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  2. added 2017-07-25
    Giving Patients Granular Control of Personal Health Information: Using an Ethics ‘Points to Consider’ to Inform Informatics System Designers.Eric M. Meslin, Sheri A. Alpert, Aaron E. Carroll, Jere D. Odell, William M. Tierney & Peter H. Schwartz - 2013 - International Journal of Medical Informatics 82:1136-1143.
    Objective: There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies, informaticists and system developers must balance these benefits and risks. Ethical considerations should be an explicit part of this balancing. Our objective was to develop a structured ethics framework to accomplish this. -/- Methods: We reviewed existing literature on the ethical and policy issues, developed an ethics framework called a “Points to (...)
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  3. added 2017-07-24
    Patient Preferences in Controlling Access to Their Electronic Health Records: A Prospective Cohort Study in Primary Care.Peter H. Schwartz, Kelly Caine, Sheri A. Alpert, Eric M. Meslin, Aaron E. Carroll & William M. Tierney - 2015 - Journal of General Internal Medicine 30:25-30.
    Introduction: Previous studies have measured individuals’ willingness to share personal information stored in an electronic health record (EHR) with healthcare providers. But none have measured preferences when patients’ choices determine access by healthcare providers. -/- Methods: Patients were given the ability to control the access of doctors, nurses or other staff in a primary care clinic to personal information stored in an EHR. Patients could restrict access to all personal data or to specific types of sensitive information, and could restrict (...)
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  4. added 2017-07-23
    Provider Responses to Patients Controlling Access to Their Electronic Health Records: A Prospective Cohort Study in Primary Care.William M. Tierney, Sheri A. Alpert, Amy Byrket, Kelly Caine, Jeremy C. Leventhal, Eric M. Meslin & Peter H. Schwartz - 2015 - Journal of General Internal Medicine 30 (1):31-37.
    Applying Fair Information Practice principles to electronic health records (EHRs) requires allowing patient control over who views their data.
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