Results for 'Health needs'

954 found
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  1. Medical need and health need.Ben Davies - 2023 - Clinical Ethics 18 (3):287-291.
    I introduce a distinction between health need and medical need, and raise several questions about their interaction. Health needs are needs that relate directly to our health condition. Medical needs are needs which bear some relation to medical institutions or processes. I suggest that the question of whether medical insurance or public care should cover medical needs, health needs, or only needs which fit both categories is a political question (...)
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  2.  81
    Proactive Coping Amongst Mental Health & Helping Professionals: The Need for Advocacy.Klara Esposito - 2024 - Dissertation, Regent University
    This dissertation aims to develop a program resource for helping and mental health professionals to foster proactive coping and diminish dysfunctional coping from work stressors. Professionals succumb to chronic stressors and secondary traumatic stress due to their vocation, often disregarding self-care. Should this type of resource be implemented, psychological and social resources would be required. The need for proactive coping is a generally accepted concept, but helping and mental health professionals often lack resources, limiting advocacy and resilience. Self-help (...)
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  3. Vulnerability, Health Care, and Need.Vida Panitch & L. Chad Horne - 2016 - In Straehle Christine (ed.), Vulnerability, Autonomy, and Applied Ethics. New York: Routledge. pp. 101-120.
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  4. The Paternal Mental Health, Difficulties for Fathers with Children in Early Infancy, and Their Educational Support Needs.Kimiko Higashio & Ayako Sasaki - manuscript
    Purpose: The purpose is to identify what difficulties fathers have with the roles of fatherhood during pregnancy and early infancy, and to make apparent what their educational support needs are. Methods: This study follows a qualitative descriptive design. The subjects were new first-time fathers of Japanese nationality. Subjects participated in semi-structured interviews administered according to interview guidelines. Results: There were 15 subjects in total. The average age of the subjects’ children was 5.5 months. Fathers’ difficulties with their new roles (...)
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  5. (1 other version)Health Research Priority Setting: Do Grant Review Processes Reflect Ethical Principles?Leah Pierson & Joseph Millum - forthcoming - Global Public Health.
    Most public and non-profit organisations that fund health research provide the majority of their funding in the form of grants. The calls for grant applications are often untargeted, such that a wide variety of applications may compete for the same funding. The grant review process therefore plays a critical role in determining how limited research resources are allocated. Despite this, little attention has been paid to whether grant review criteria align with widely endorsed ethical criteria for allocating health (...)
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  6. All you need is health.Hub Zwart - 1999 - In Michael Parker (ed.), Ethics and community in the health care professions. New York: Routledge. pp. 30.
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  7. Is Health the Absence of Disease?Somogy Varga & Andrew J. Latham - forthcoming - Inquiry: An Interdisciplinary Journal of Philosophy.
    While philosophical questions about health and disease have attracted much attention in recent decades, and while opinions are divided on most issues, influential accounts seem to embrace negativism about health, according to which health is the absence of disease. Some subscribe to unrestricted negativism, which claims that negativism applies not only to the concepts of health and disease as used by healthcare professionals but also to the lay concept that underpins everyday thinking. Whether people conceptualize (...) in this manner has implications for medical care and public health, and so we set out to examine this claim in two studies. Participants were asked to assess and compare the health states of two people presented in two vignettes. We found that both lay people and medical students conceptualize health as something more than the absence of disease. We argue that our findings highlight a need to rethink unrestricted negativism and indicate a need to rethink the way the debate has traditionally focused on disease. (shrink)
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  8.  70
    A Mixed-Methods Study Exploring Colombian Adolescents’ Access to Sexual and Reproductive Health Services: The Need for a Relational Autonomy Approach.J. Brisson, V. Ravitsky & B. Williams-Jones - 2024 - Journal of Bioethical Inquiry 21 (1):193-208.
    This study’s objective was to understand Colombian adolescents’ experiences and preferences regarding access to sexual and reproductive health services (SRHS), either alone or accompanied. A mixed-method approach was used, involving a survey of 812 participants aged eleven to twenty-four years old and forty-five semi-structured interviews with participants aged fourteen to twenty-three. Previous research shows that adolescents prefer privacy when accessing SRHS and often do not want their parents involved. Such findings align with the longstanding tendency to frame the ethical (...)
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  9. What Makes Health Care Special?: An Argument for Health Care Insurance.L. Chad Horne - 2017 - Kennedy Institute of Ethics Journal 27 (4):561-587.
    Citizens in wealthy liberal democracies are typically expected to see to basic needs like food, clothing, and shelter out of their own income, and those without the means to do so usually receive assistance in the form of cash transfers. Things are different with health care. Most liberal societies provide their citizens with health care or health care insurance in kind, either directly from the state or through private insurance companies that are regulated like public utilities. (...)
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  10. Tracking Referents in Electronic Health Records.Werner Ceusters & Barry Smith - 2005 - Studies in Health Technology and Informatics 116:71–76.
    Electronic Health Records (EHRs) are organized around two kinds of statements: those reporting observations made, and those reporting acts performed. In neither case does the record involve any direct reference to what such statements are actually about. They record not: what is happening on the side of the patient, but rather: what is said about what is happening. While the need for a unique patient identifier is generally recognized, we argue that we should now move to an EHR regime (...)
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  11. Public Health and Precarity.Michael D. Doan & Ami Harbin - 2020 - International Journal of Feminist Approaches to Bioethics 13 (2):108-130.
    One branch of bioethics assumes that mainly agents of the state are responsible for public health. Following Susan Sherwin’s relational ethics, we suggest moving away from a “state-centered” approach toward a more thoroughly relational approach. Indeed, certain agents must be reconstituted in and through shifting relations with others, complicating discussions of responsibility for public health. Drawing on two case studies—the health politics and activism of the Black Panther Party and the work of the Common Ground Collective in (...)
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  12. The Ethical Implications of Personal Health Monitoring.Brent Mittelstadt - 2014 - International Journal of Technoethics 5 (2):37-60.
    Personal Health Monitoring (PHM) uses electronic devices which monitor and record health-related data outside a hospital, usually within the home. This paper examines the ethical issues raised by PHM. Eight themes describing the ethical implications of PHM are identified through a review of 68 academic articles concerning PHM. The identified themes include privacy, autonomy, obtrusiveness and visibility, stigma and identity, medicalisation, social isolation, delivery of care, and safety and technological need. The issues around each of these are discussed. (...)
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  13. Prioritarianism for Global Health Investments: Identifying the Worst Off.Daniel Sharp & Joseph Millum - 2018 - Journal of Applied Philosophy:112-132.
    The available resources for global health assistance are far outstripped by need. In the face of such scarcity, many people endorse a principle according to which highest priority should be given to the worst off. However, in order for this prioritarian principle to be useful for allocation decisions, policy-makers need to know what it means to be badly off. In this article, we outline a conception of disadvantage suitable for identifying the worst off for the purpose of making (...) resource allocation decisions. According to our total advantage view: the worst off are those who have the greatest total lifetime disadvantage; advantage foregone due to premature death should be treated in the same way as other ways of being disadvantaged at a time; how badly off someone is depends on the actual outcomes that will befall her without intervention, not her prospects at a time; and all significant forms of disadvantage count for determining who is worst off, not just disadvantage relating to health. We conclude by noting two important implications of the total advantage view: first, that those who die young are among the globally worst off, and second, that the epidemiological shift in the global burden of disease from communicable to non-communicable diseases should not lead to a corresponding shift in global health spending priorities. (shrink)
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  14. Editorial: Social, Technological and Health Innovation: Opportunities and Limitations for Social Policy, Health Policy, and Environmental Policy.Andrzej Klimczuk, Magdalena Klimczuk-Kochańska & Jorge Felix - 2022 - Frontiers in Political Science 4:1–4.
    Innovation is progressively needed in responding to global challenges. Moreover, the increasing complexity of challenges implies demand for the usage of multisectoral and policy mix approaches. Wicked problems can be tackled by "integrated innovation" that combines the coordinated implementation of social, technological, and health innovation co-created by entities of the public sector, the private sector, the non-governmental sector, and the informal sector. This Research Topic focuses on filling the knowledge gaps about the selected types of innovation. First, regarding social (...)
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  15. Religious Culture in Mental Health Issues: An Advocacy for Participatory Partnership.Emmanuel Orok Duke - 2016 - Archive for Psychopathology and Counselling-Psychology 2 (2).
    Religion constitutes an important element in every society as regards coping with the demands as well as vicissitudes of life. Mental health issues are becoming a recurrent decimal in societies overwhelmed by stress and other social factors. This paper examines how the presence of religious beliefs affects how some Christians respond to cases that have to do mental health. At the same time, it surveys how a near absence of religious attitude, that is, clinical medicine approach to mental (...)
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  16. ‘Personal Health Surveillance’: The Use of mHealth in Healthcare Responsibilisation.Ben Davies - 2021 - Public Health Ethics 14 (3):268-280.
    There is an ongoing increase in the use of mobile health technologies that patients can use to monitor health-related outcomes and behaviours. While the dominant narrative around mHealth focuses on patient empowerment, there is potential for mHealth to fit into a growing push for patients to take personal responsibility for their health. I call the first of these uses ‘medical monitoring’, and the second ‘personal health surveillance’. After outlining two problems which the use of mHealth might (...)
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  17.  68
    The sufficiency theory of justice and the allocation of health resources.Dick Timmer - forthcoming - Bioethics.
    According to the sufficiency theory of justice in health, justice requires that people have equal access to adequate health. In this article, I lay out the structure of this view and I assess its distributive implications for setting priority (i) between health needs across persons and (ii) between health care spending and other societal goods. I argue, first, that according to the sufficiency theory, deficiency in health cannot be completely offset by providing other societal (...)
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  18. The problem of the consent for the processing of health data, particularly for biomedical research purposes, from the perspective of fundamental rights protection in the Digital Era.Joaquín Sarrión Esteve - 2018 - Revista de Derecho y Genoma Humano: Genética, Biotecnología y Medicina Avanzada = Law and the Human Genome Review: Genetics, Biotechnology and Advanced Medicine 48:107-132.
    Health data processing fields face ethical and legal problems regarding fundamental rights. As we know, patients can benefit in the Digital Era from having health or medical information available, and medical decisions can be more effective with a better understanding of clinical histories, medical and health data thanks to the development of Artificial Intelligence, Internet of Things and other Digital technologies. However, at the same time, we need to guarantee fundamental rights, including privacy ones. The complaint about (...)
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  19. The Health Reframing of Climate Change and the Poverty of Narrow Bioethics.Kyle Ferguson - 2020 - Journal of Law, Medicine and Ethics 48 (4):705-717.
    We must resist thoroughly reframing climate change as a health issue. For human health–centric ethical frameworks omit dimensions of value that we must duly consider. We need a new, an environmental, research ethic, one that we can use to more completely and impartially evaluate proposed research on mitigation and adaptation strategies.
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  20. Medical Need, Equality, and Uncertainty.L. Chad Horne - 2016 - Bioethics 30 (8):588-596.
    Many hold that distributing healthcare according to medical need is a requirement of equality. Most egalitarians believe, however, that people ought to be equal on the whole, by some overall measure of well-being or life-prospects; it would be a massive coincidence if distributing healthcare according to medical need turned out to be an effective way of promoting equality overall. I argue that distributing healthcare according to medical need is important for reducing individuals' uncertainty surrounding their future medical needs. In (...)
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  21. Have Reforms Reconciled Health Rights Litigation and Priority Setting in Costa Rica?Alessandro Luciano & Alex Voorhoeve - 2019 - Health and Human Rights 21 (2):283-293.
    The experience of Costa Rica highlights the potential for conflicts between the right to health and fair priority setting. For example, one study found that most favorable rulings by the Costa Rican constitutional court concerning claims for medications under the right to health were either for experimental treatments or for medicines that should have low priority based on health gain per unit of expenditure and severity of disease. In order to better align rulings with priority setting criteria, (...)
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  22. The Need for Others in Public Policy: An African Approach.Thaddeus Metz - 2021 - In Motsamai Molefe & Chris Allsobrook (eds.), Towards an African Political Philosophy of Needs. Palgrave Macmillan. pp. 21-37.
    When reflecting on human need as a moral-political category, it is natural to include some intersubjective conditions. Surely, children need to be socialized, adults need to be recognized, and the poor need to be given certain resources. I point out that there are two different respects in which such intersubjective factors could be considered needs. On the one hand, they might be needed roughly for their own sake, that is, for exemplifying relational values such as caring for others and (...)
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  23. Discrimination, emotion, and health inequities.Carina Fourie - 2018 - Les Ateliers de l'Éthique / the Ethics Forum 13 (3):123-149.
    In this paper I argue that certain ways in which the relationship among discrimination, emotions and health is presented can undermine equity. I identify a model of this relationship the discrimination-emotion-health model - and claim that while the model is important for understanding the detrimental impact that discrimination and oppression can have on emotions and health, certain implications of the model are troubling. I identify six critiques of the model, and show that equity could be undermined, for (...)
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  24. Foundation for the Electronic Health Record: An ontological analysis of the HL7 Reference Information Model.Lowell Vizenor, Barry Smith & Werner Ceusters - 2004 - In Vizenor Lowell, Smith Barry & Ceusters Werner (eds.), Ifomis Reports. Ifomis. pp. 1-14.
    Despite the recent advances in information and communication technology that have increased our ability to store and circulate information, the task remains of ensuring that the right sorts of information reach the right sorts of people. In what follows we defend the thesis that efforts to develop efficient means for sharing information across healthcare systems and organizations would benefit from a careful analysis of human action in healthcare organizations, and that the communication of healthcare information and knowledge needs to (...)
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  25. Expertise and metaphors in health communication.Ervas Francesca, Montibeller Marcello, Rossi Maria Grazia & Salis Pietro - 2016 - Medicina and Storia 9:91-108.
    The paper focuses on the kind of expertise required by doctors in health communication and argues that such an expertise is twofold: both epistemological and communicative competences are necessary to achieve compliance with the patient. Firstly, we introduce the specific epistemic competences that deal with diagnosis and its problems. Secondly, we focus on the communicative competences and argue that an inappropriate strategy in communicating the reasons of diagnosis and therapy can make patient compliance unworkable. Finally, we focus on the (...)
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  26. My Conscience May Be My Guide, but You May not Need to Honor It.Hugh Lafollette - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (1):44-58.
    A number of health care professionals assert a right to be exempt from performing some actions currently designated as part of their standard professional responsibilities. Most advocates claim that they should be excused from these duties simply by averring that they are conscientiously opposed to performing them. They believe that they need not explain or justify their decisions to anyone; nor should they suffer any undesirable consequences of such refusal. Those who claim this right err by blurring or conflating (...)
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  27. The Concept of Health and Wholeness in Traditional African Religion and Social Medicine.Onah Gregory Ajima & Eyong Usang Ubana - 2018 - Arts and Social Sciences Journal 9 (4).
    African Traditional Religion and medicine are integral parts of life and culture of the Africans and have greatly influenced their conceptions about human health and wholeness. Their many realities that Africans have not been able to abandon, in spite of the allurements of western civilization, Christianity, Islam and the advances in the biomedical sciences. The aim of this paper is to highlight the meaning of health and wholeness as central issues of concern in African Traditional Religion and Medicine. (...)
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  28. Beyond Individual Triage: Regional Allocation of Life-Saving Resources such as Ventilators in Public Health Emergencies.Jonathan Pugh, Dominic Wilkinson, Cesar Palacios-Gonzalez & Julian Savulescu - 2021 - Health Care Analysis 29 (4):263-282.
    In the first wave of the COVID-19 pandemic, healthcare workers in some countries were forced to make distressing triaging decisions about which individual patients should receive potentially life-saving treatment. Much of the ethical discussion prompted by the pandemic has concerned which moral principles should ground our response to these individual triage questions. In this paper we aim to broaden the scope of this discussion by considering the ethics of broader structural allocation decisions raised by the COVID-19 pandemic. More specifically, we (...)
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  29. Giving patients granular control of personal health information: Using an ethics ‘Points to Consider’ to inform informatics system designers.Eric M. Meslin, Sheri A. Alpert, Aaron E. Carroll, Jere D. Odell, William M. Tierney & Peter H. Schwartz - 2013 - International Journal of Medical Informatics 82:1136-1143.
    Objective: There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies, informaticists and system developers must balance these benefits and risks. Ethical considerations should be an explicit part of this balancing. Our objective was to develop a structured ethics framework to accomplish this. -/- Methods: We reviewed existing literature on the ethical and policy issues, developed an ethics framework called a (...)
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  30. Evaluation of public health and clinical care ethical practices during the COVID-19 outbreak days from media reports in Turkey.Sukran Sevimli - 2020 - Eubios Journal of Asian and International Bioethics 30 (3):103-110.
    Objective: This main aim of the study is to explore COVID-19 pandemic problems from the perspective of public health-clinical care ethics through online mediareports in Turkey. Method: This research was designed as a descriptive and qualitative study that assesses COVID-19 through online media reports on critics between the periods of March 11, 2020 and April 2 2020 as a quantitative as number of reports and qualitative study, across Turkey. Reports were from Turkish Medical Association websites which included newspaper reports. (...)
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  31. Public Facilities for Better Health and Urban Plan.Lasker Shamima & Hossain Arif - 2023 - Bangladesh Journal of Bioethics 14 (3):24-26.
    Lack of physical activity is one of the main cause of obesity. Currently, scientists proposed that teenagers and women are overweight or obese than men in Bangladesh. Furthermore, non-communicable diseases (NCDs) are becoming more prevalent in Bangladesh. By 2050, the illness burden of non-communicable diseases will have a significant impact on the health budget. To reduce non-communicable diseases, physical activity is one of the options. However, the lack of public facilities for physical activities in each community is a concern. (...)
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  32. How do medical device manufacturers' websites frame the value of health innovation? An empirical ethics analysis of five Canadian innovations.Pascale Lehoux, M. Hivon, Bryn Williams-Jones, Fiona A. Miller & David R. Urbach - 2012 - Medicine, Health Care and Philosophy 15 (1):61-77.
    While every health care system stakeholder would seem to be concerned with obtaining the greatest value from a given technology, there is often a disconnect in the perception of value between a technology’s promoters and those responsible for the ultimate decision as to whether or not to pay for it. Adopting an empirical ethics approach, this paper examines how five Canadian medical device manufacturers, via their websites, frame the corporate “value proposition” of their innovation and seek to respond to (...)
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  33. Health and life style of rural and urban population : An Anthropological study.Arnasha Singh - 2013 - SOCRATES 1 (1):35-42.
    Food has been a vital material of the life since inception of all organisms. By taking food we ensure growth of our children and youth, and maintain our good health. But some foods are good and helpful for maintaining health, while some are harmful. A large part of it is scientifically beneficial for body and fulfils needs of our life style. Thus, it can be stated that food is that which nourishes our body. It may also be (...)
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  34. Causal Complexity and Causal Ontology of Health-Related Quality of Life Model.Tennn Hong-Ui - 2022 - Dissertation, National Yang Ming Chiao Tung University
    Patient-centered care (PCC) is an approach to healthcare that values patients’ preference, need, and autonomy. The estimation of healthcare partly depends on how well PCC is implemented. In addition, the result of clinical research can inform the assessment of the implementation of PCC. In clinical research, health-related quality of life (HRQL) theoretical models offer a conceptual toolbox that informs clinical research and guides the hypotheses generation. Wilson and Cleary (1995) developed the most widely used HRQL theoretical model (Bakas et (...)
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  35. Practical Integration: the Art of Balancing Values, Institutions and Knowledge. Lessons from the History of British Public Health and Town Planning.Giovanni De Grandis - 2016 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 56:92-105.
    The paper uses two historical examples, public health (1840-1880) and town planning (1945-1975) in Britain, to analyse the challenges faced by goal-driven research, an increasingly important trend in science policy, as exemplified by the prominence of calls for addressing Grand Challenges. Two key points are argued. (1) Given that the aim of research addressing social or global problems is to contribute to improving things, this research should include all the steps necessary to bring science and technology to fruition. This (...)
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  36. Evidence Mapping to Justify Health Interventions.Olaf Dammann - 2021 - Perspectives in Biology and Medicine 64 (2):155-172.
    In order to support health interventions, biomedical and population health researchers need to collect solid evidence. This article asks what type of evidence this should be and expands on previous work that focused on etiological explanations, or causal-mechanical explanations of why and how illness occurs. The article proposes adding predictive evidence to the explanatory evidence, in order to form a joint evidence set, or JES = [A,B,C,D], which consists of four different types of evidence: association [A], biology [B], (...)
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  37. Mapping ethical issues in the use of smart home health technologies to care for older persons: a systematic review.Nadine Andrea Felber, Yi Jiao Tian, Félix Pageau, Bernice Simone Elger & Tenzin Wangmo - 2023 - BMC Medical Ethics 24 (1):1-13.
    Background The worldwide increase in older persons demands technological solutions to combat the shortage of caregiving and to enable aging in place. Smart home health technologies (SHHTs) are promoted and implemented as a possible solution from an economic and practical perspective. However, ethical considerations are equally important and need to be investigated. Methods We conducted a systematic review according to the PRISMA guidelines to investigate if and how ethical questions are discussed in the field of SHHTs in caregiving for (...)
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  38. Between Reason and Coercion: Ethically Permissible Influence in Health Care and Health Policy Contexts.J. S. Blumenthal-Barby - 2012 - Kennedy Institute of Ethics Journal 22 (4):345-366.
    In bioethics, the predominant categorization of various types of influence has been a tripartite classification of rational persuasion (meaning influence by reason and argument), coercion (meaning influence by irresistible threats—or on a few accounts, offers), and manipulation (meaning everything in between). The standard ethical analysis in bioethics has been that rational persuasion is always permissible, and coercion is almost always impermissible save a few cases such as imminent threat to self or others. However, many forms of influence fall into the (...)
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  39. Tapping into the unimpossible: Philosophical health in lives with spinal cord injury.Luis de Miranda, Richard Levi & Anestis Divanoglou - forthcoming - Journal of Evaluation in Clinical Practice 29 (7):1203-1210.
    Background We investigated the personal philosophies of eight persons with a tetraplegic condition (four male, four female), all living in Sweden with a chronic spinal cord injury (SCI) and all reporting a good life. Our purpose was to discover if there is a philosophical mindset that may play a role in living a good life with a traumatic SCI. Methods Two rounds of in-depth qualitative interviews were performed by the same interviewer, a philosophical practitioner by training (de Miranda). The second (...)
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  40. Closing the gender gap in depression through the lived experience of young women – a response to ‘Don't mind the gap: Why do we not care about the gender gap in mental health?’, Patalay and Demkowicz (2023).Lucienne Spencer & Matthew Broome - 2023 - Child and Adolescent Mental Health 1.
    Most mental health research largely ignores or minimises gender and age differences in depression. In ‘Don't mind the gap: Why do we not care about the gender gap in mental health?’, Patalay and Demkowicz identify a dearth of research on the causal factors of depression in young women. They attribute this to an over-reliance on biological accounts of gender differences in depression. Patalay and Demkowicz conclude that a person-centred approach that meaningfully engages with the reports of young women (...)
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  41. Autocratization and universal health coverage: a synthetic control study.Simon Wigley - 2020 - The BMJ 371 (m4040).
    Objective: To assess the relation between autocratisation—substantial decreases in democratic traits (free and fair elections, freedom of civil and political association, and freedom of expression)—and countries’ population health outcomes and progress toward universal health coverage (UHC). -/- Design: Synthetic control analysis. -/- Setting and country selection: Global sample of countries for all years from 1989 to 2019, split into two categories: 17 treatment countries that started autocratising during 2000 to 2010, and 119 control countries that never autocratised from (...)
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  42. What Particulars are Referred to in EHR Data? A Case Study in Integrating Referent Tracking into an Electronic Health Record Application.Ron Rudnicki - 2007 - In Proceedings of the Annual Symposium of the American Medical Informatics Association. AMIA.
    The Referent Tracking paradigm, which advocates the use of instance unique identifiers to refer to the entities comprising the subject matter of patient health records, promises many benefits to those who use health record data to improve patient care. To further the adoption of the paradigm we provide an illustration of how data from an EHR application needs to be decomposed to make it accord with the tenets of Referent Tracking. We describe the ontological principles on which (...)
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  43. An Ethics Framework for Big Data in Health and Research.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun, Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):227-254.
    Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the Science, (...) and Policy-relevant Ethics in Singapore Initiative. It presents the aim and rationale for this framework supported by the underlying ethical concerns that relate to all health and research contexts. It also describes a set of substantive and procedural values that can be weighed up in addressing these concerns, and a step-by-step process for identifying, considering, and resolving the ethical issues arising from big data uses in health and research. This Framework is subsequently applied in the papers published in this Special Issue. These papers each address one of six domains where big data is currently employed: openness in big data and data repositories, precision medicine and big data, real-world data to generate evidence about healthcare interventions, AI-assisted decision-making in healthcare, public-private partnerships in healthcare and research, and cross-sectoral big data. (shrink)
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  44. Policy Response, Social Media and Science Journalism for the Sustainability of the Public Health System Amid the COVID-19 Outbreak: The Vietnam Lessons.La Viet Phuong, Pham Thanh Hang, Manh-Toan Ho, Nguyen Minh Hoang, Nguyen Phuc Khanh Linh, Vuong Thu Trang, Nguyen To Hong Kong, Tran Trung, Khuc Van Quy, Ho Manh Tung & Quan-Hoang Vuong - 2020 - Sustainability 12:2931.
    Vietnam, with a geographical proximity and a high volume of trade with China, was the first country to record an outbreak of the new Coronavirus disease (COVID-19), caused by the Severe Acute Respiratory Syndrome Coronavirus 2 or SARS-CoV-2. While the country was expected to have a high risk of transmission, as of April 4, 2020—in comparison to attempts to contain the disease around the world—responses from Vietnam are being seen as prompt and effective in protecting the interests of its citizens, (...)
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  45. A market failures approach to justice in health.L. Chad Horne & Joseph Heath - 2022 - Politics, Philosophy and Economics 21 (2):165-189.
    Politics, Philosophy & Economics, Volume 21, Issue 2, Page 165-189, May 2022. It is generally acknowledged that a certain amount of state intervention in health and health care is needed to address the significant market failures in these sectors; however, it is also thought that the primary rationale for state involvement in health must lie elsewhere, for example in an egalitarian commitment to equalizing access to health care for all citizens. This paper argues that a complete (...)
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  46. If You Love the Forest, then Do Not Kill the Trees: Health Care and a Place for the Particular.Nicholas Colgrove - 2021 - Journal of Medicine and Philosophy 46 (3):255-271.
    There are numerous ways in which “the particular”—particular individuals, particular ideologies, values, beliefs, and perspectives—are sometimes overlooked, ignored, or even driven out of the healthcare profession. In many such cases, this is bad for patients, practitioners, and the profession. Hence, we should seek to find a place for the particular in health care. Specific topics that I examine in this essay include distribution of health care based on the particular needs of patients, the importance of protecting physicians’ (...)
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  47. Wrongness, Responsibility, and Conscientious Refusals in Health Care.Alida Liberman - 2017 - Bioethics 31 (7):495-504.
    In this article, I address what kinds of claims are of the right kind to ground conscientious refusals. Specifically, I investigate what conceptions of moral responsibility and moral wrongness can be permissibly presumed by conscientious objectors. I argue that we must permit HCPs to come to their own subjective conclusions about what they take to be morally wrong and what they take themselves to be morally responsible for. However, these subjective assessments of wrongness and responsibility must be constrained in several (...)
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  48. Principlism and Contemporary Ethical Considers in Transgender Health Care.Luke Allen, Noah Adams, Florence Ashley, Cody Dodd, Diane Ehrensaft, Lin Fraser, Maurice Garcia, Simona Giordano, Jamison Green, Thomas Johnson, Justin Penny, Rachlin Katherine & Jaimie Veale - forthcoming - International Journal of Transgender Health.
    Background: Transgender health care is a subject of much debate among clinicians, political commentators, and policy-makers. While the World Professional Association of Transgender Health (WPATH) Standards of Care (SOC) establish clinical standards, these standards contain implied ethics but lack explicit focused discussion of ethical considerations in providing care. An ethics chapter in the SOC would enhance clinical guidelines. Aims: We aim to provide a valuable guide for healthcare professionals, and anyone interested in the ethical aspects of clinical support (...)
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  49. The Moral Duty to Buy Health Insurance.Tina Rulli, Ezekiel Emanuel & David Wendler - 2012 - Journal of the American Medical Association 308 (2):137-138.
    The 2010 Patient Protection and Affordable Care Act was designed to increase health insurance coverage in the United States. Its most controversial feature is the requirement that US residents purchase health insurance. Opponents of the mandate argue that requiring people to contribute to the collective good is inconsistent with respect for individual liberty. Rather than appeal to the collective good, this Viewpoint argues for a duty to buy health insurance based on the moral duty individuals have to (...)
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  50. What particulars are referred to in EHR data? A case study in integrating referent tracking into an electronic health record application.Ron Rudnicki, Werner Ceusters, Shaid Manzoo & Barry Smith - 2007 - In Proceedings of the Annual Symposium of the American Medical Informatics Association. AMIA. pp. 630-634.
    Referent Tracking (RT) advocates the use of instance unique identifiers to refer to the entities comprising the subject matter of patient health records. RT promises many benefits to those who use health record data to improve patient care. To further the adoption of the paradigm we provide an illustration of how data from an EHR application needs to be decomposed in order to make it accord with the tenets of RT. We describe the ontological principles on which (...)
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