Results for 'healthcare information'

964 found
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  1. Examining the demanded healthcare information among family caregivers for catalyzing adaptation in female cancer: Insights from home-based cancer care.Ni Putu Wulan Purnama Sari, Adrino Mazenda, Made Mahaguna Putra, Abigael Grace Prasetiani, Minh-Hoang Nguyen & Quan-Hoang Vuong - manuscript
    Adaptation and stress are two main concepts useful for better understanding the phases of illness and health-related human behavior. The two faces of adaptation, adaptation as a process and adaptation as a product, have raised the question of how long the adaptation process will take in cancer trajectories. The care setting transition from clinical-based into home-based cancer care has stressed the role of family caregivers (FCG) in cancer management. This study examines how types of demanded healthcare information affect (...)
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  2. Assessing the needs of healthcare information for assisting family caregivers in cancer fear management: A mindsponge-based approach.Ni Putu Wulan Purnama Sari, Minh-Phuong Thi Duong, Made Mahaguna Putra, Pande Made Arbi Yudamuckti, Minh-Hoang Nguyen & Quan-Hoang Vuong - manuscript
    Fear of cancer is mostly related to cancer recurrence, metastasis, additional cancer, and diagnostic tests. Its legacy as a lethal disease has raised fear of approaching death. Currently, cancer’s total suffering and the worsening phenomena have raised fear, especially among female patients. Family caregivers (FCGs) who are responsible for the day-to-day cancer care at home need to help the patients deal with this fear frequently. Due to the limited care competencies, they need supportive care from healthcare professionals in cancer (...)
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  3.  98
    PREDICTING THE NEEDS OF EMOTIONAL SUPPORT AMONG FAMILY CAREGIVERS BY ANALYZING THE DEMANDED HEALTHCARE INFORMATION: INSIGHTS FROM FEMALE CANCER CAREGIVING.Sari Ni Putu Wulan Purnama, Minh-Phuong Thi Duong, Agustina Chriswinda Bura Mare, Minh-Hoang Nguyen & Quan-Hoang Vuong - manuscript
    In the last decade, the cases of breast and cervical cancer have been positioned at the top rank of cancer statistics worldwide. Consequently, many husbands become family caregivers (FCGs) and get the burden of cancer caregiving. Being blind and incompetent, they need supportive care from healthcare professionals (HCPs). To support them, HCPs provide various healthcare information to meet their needs. Further, their demand for a specific type of healthcare information may reflect their need for emotional (...)
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  4. Understanding the Supportive Care Needs of Family Caregivers in Cancer Stress Management: The Significance of Healthcare Information.Ni Putu Wulan Purnama Sari, Minh-Phuong Thi Duong, Adrino Mazenda, Agustina Chriswinda Bura Mare, Minh-Hoang Nguyen & Quan-Hoang Vuong - manuscript
    Cancer care has transitioned from clinical-based to home-based care to support longterm care in a more familiar and comfortable environment. This care transition has put family caregivers (FCGs) in a strategic position as care providers. Cancer care at home involves psychological and emotional treatment at some point, making FCGs deal with the stress of cancer patients frequently. Due to their limited care competencies, they need supportive care from healthcare professionals in cancer stress management. This study aims to examine how (...)
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  5. BMF CP59: Examining the demanded healthcare information among family caregivers for catalyzing adaptation in female cancer.Ni Putu Wulan Purnama Sari - 2023 - Sm3D Portal.
    The current study aims to examine how types of demanded healthcare information affect the FCG’s role in catalyzing the adaptation of female cancer patients (i.e., cancer-specific information, caregiver-specific information, therapy-specific information, information on cancer physical needs, information on alternative therapies, and information on support services).
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  6. BMF CP58: Assessing the needs of healthcare information for assisting family caregivers in cancer fear management.Ni Putu Wulan Purnama Sari - 2023 - Sm3D Portal.
    The current study aims to examine how types of demanded healthcare information affect the FCG’s role in reducing the fear of female cancer patients (i.e., cancer-specific information, caregiver-specific information, therapy-specific information, information on cancer physical needs, information on alternative therapies, and information on support services).
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  7. BMF CP68: Predicting the Needs of Emotional Support among Family Caregivers of Cancer Patients by Analyzing the Demanded Healthcare Information.Ni Putu Wulan Purnama Sari - 2024 - Sm3D Portal.
    Among all aspects, the unmet needs of healthcare information from the healthcare and illness-related domains have the potency to predict the unmet needs of emotional support from the emotional and relational domains in this population. The current study aims to examine the predictors of the needs for emotional support among FCGs of cancer patients by analyzing the demanded healthcare information, i.e., cancer-specific information, caregiver-specific information, therapy-specific information, information on cancer physical needs, (...)
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  8. (1 other version)Human Action in the Healthcare Domain: A Critical Analysis of HL7’s Reference Information Model.Barry Smith, Lowell Vizenor & Werner Ceusters - 2013 - In Barry Smith, Lowell Vizenor & Werner Ceusters (eds.), Human Action in the Healthcare Domain: A Critical Analysis of HL7’s Reference Information Model. Ontos Verlag. pp. 554--573.
    If we are to develop efficient, reliable and secure means for sharing information across healthcare systems and organizations, then a careful analysis of human actions will be needed. To address this need, the HL7 organization has proposed its Reference Information Model (RIM), which is designed to provide a comprehensive representation of the entire domain of healthcare centered around the phenomenon of human action. Taking the Basic Formal Ontology as our starting point, we examine the RIM from (...)
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  9. Healthcare consumers’ sensitivity to costs: a reflection on behavioural economics from an emerging market.Quan-Hoang Vuong, Tung-Manh Ho, Hong-Kong Nguyen & Thu-Trang Vuong - 2018 - Palgrave Communications 4:70.
    Decision-making regarding healthcare expenditure hinges heavily on an individual's health status and the certainty about the future. This study uses data on propensity of general health exam (GHE) spending to show that despite the debate on the necessity of GHE, its objective is clear—to obtain more information and certainty about one’s health so as to minimise future risks. Most studies on this topic, however, focus only on factors associated with GHE uptake and overlook the shifts in behaviours and (...)
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  10. Strategies for Healthcare Disaster Management in the Context of Technology Innovation: the Case of Bulgaria.Radostin Vazov, R. Kanazireva, T. Grynko & Oleksandr P. Krupskyi - 2024 - Medicni Perspektivi 29 (2):215-228.
    In Bulgaria, integrating technology and innovation is crucial for advancing sustainable healthcare disaster management, enhancing disaster response and recovery, and minimizing long-term environmental and social impacts. The purpose of the study is to assess the impact of modern technological innovations on the effectiveness of disaster management in health care in Bulgaria with a focus on Health Information Systems (HIS), Telemedicine, Telehealth, e-Health, Electronic Health Records, Artificial Intelligence (AI), Public Communication Platforms, and Data Security and Privacy. These innovations, when (...)
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  11. Internet Use and Healthcare.László Ropolyi - 2021 - In Dagmar Eigner (ed.), Wahrnehmung, Kommunikation und Resonanz. Beiträge zur Medical Anthropology, Band 4. Perception, Communication, and Resonance. Contributions to Medical Anthropology, Volume 4. Schriftenreihe der Landesverteidigungsakademie. pp. 173-192.
    The medical use of computing and information and communication technologies (ICTs) has a history of several decades, but the emergence of the internet, and especially the web and social media, created a new situation. As a result, currently the term eHealth is widely used – and the usage of the internet (and mobile) “technologies” in healthcare (among the patients and professionals, too) tends to be usual practice. There are more and more signs of the institutionalization of this new (...)
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  12. Big Data Analytics in Healthcare: Exploring the Role of Machine Learning in Predicting Patient Outcomes and Improving Healthcare Delivery.Federico Del Giorgio Solfa & Fernando Rogelio Simonato - 2023 - International Journal of Computations Information and Manufacturing (Ijcim) 3 (1):1-9.
    Healthcare professionals decide wisely about personalized medicine, treatment plans, and resource allocation by utilizing big data analytics and machine learning. To guarantee that algorithmic recommendations are impartial and fair, however, ethical issues relating to prejudice and data privacy must be taken into account. Big data analytics and machine learning have a great potential to disrupt healthcare, and as these technologies continue to evolve, new opportunities to reform healthcare and enhance patient outcomes may arise. In order to investigate (...)
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  13. Age change in healthcare settings: a reply to Lippert-Rasmussen and Petersen.Joona Räsänen - 2020 - Journal of Medical Ethics 46 (9):636-637.
    Lippert-Rasmussen and Petersen discuss my ‘Moral case for legal age change’ in their article ‘Age change, official age and fairness in health’. They argue that in important healthcare settings (such as distributing vital organs for dying patients), the state should treat people on the basis of their chronological age because chronological age is a better proxy for what matters from the point of view of justice than adjusted official age. While adjusted legal age should not be used in deciding (...)
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  14. Functioning of Healthcare Facilities under the Martial Law.Tetiana Sviatenko, Inna Gogunska, Oleksandr P. Krupskyi, Tetiana Ihnatova & Liubov Bilyk - 2023 - Khazar Journal of Humanities and Social Sciences 26 (3):24-27.
    This topic focuses on the problems that arise in providing medical care to the population during armed conflict or martial law. Under such conditions, hospitals, clinics, and other healthcare facilities have to work in challenging circumstances with limited resources and reduced security for medical personnel. This topic explores such issues as how martial law affects the work of medical institutions, what problems arise in providing medical care to the population in war, how war affects the health of the people, (...)
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  15. Tackling Hermeneutical Injustices in Gender-Affirming Healthcare.Nick Clanchy - forthcoming - Hypatia.
    Previously proposed strategies for tackling hermeneutical injustices take for granted the interests people have in certain things about them being intelligible to them and/or to others, and seek to enable them to satisfy these interests. Strategies of this sort I call interests-as-given strategies. I propose that some hermeneutical injustices can instead be tackled by doing away with certain of these interests, and so with the possibility of their unfair non-satisfaction. Strategies of this sort I call interests-in-question strategies. As a case (...)
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  16. Perspectives on Evidence-Based Healthcare for Women.Maya J. Goldenberg - 2010 - Journal of Women's Health 19 (7):1235-1238.
    We live in an age of evidence-based healthcare, where the concept of evidence has been avidly and often uncritically embraced as a symbol of legitimacy, truth, and justice. By letting the evidence dictate healthcare decision making from the bedside to the policy level, the normative claims that inform decision making appear to be negotiated fairly—without subjectivity, prejudice, or bias. Thus, the term ‘‘evidence-based’’ is typically read in the health sciences as the empirically adequate standard of reasonable practice and (...)
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  17. Managing Information and Planning for Health Charities' Participation.Mohammad Reza Erfani, Shaghayegh Vahdat & Mohammad Bazyar - 2022 - International Journal of Knowledge Processing Studies 2 (5):65-75.
    This research aims to investigate managing information and planning for the participation of health charities. With the Covid-19 outbreak, it was important to use information systems to optimize health management. The correct processing of information is the basis for better use of health charities’ participation. Using the snowball technique, and semi-structured interviews, 47 experts and non-experts in Fars province were asked for their opinions. Next, based on the fuzzy network analysis, important factors were prioritized. Four categories and (...)
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  18.  40
    The complex roles of social influence in promoting information technology adoption in nursing education.Geng Li - 2024 - Sm3D Portal.
    The incorporation of information and communication technologies (ICT) within healthcare education plays a significant role in shaping students’ development, contributing to the emergence of more proficient healthcare practitioners. As the acceptance and utilization of technology reflect human behavior, the challenge resides in the readiness of students to engage with ICT-based systems.
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  19. LinkSuite™: Software Tools for Formally Robust Ontology-Based Data and Information Integration.Werner Ceusters, Barry Smith & James Matthew Fielding - 2004 - In Werner Ceusters, Barry Smith & James Matthew Fielding (eds.), Proceedings of DILS 2004 (Data Integration in the Life Sciences), (Lecture Notes in Bioinformatics, 2994). Springer. pp. 1-16.
    The integration of information resources in the life sciences is one of the most challenging problems facing bioinformatics today. We describe how Language and Computing nv, originally a developer of ontology-based natural language understanding systems for the healthcare domain, is developing a framework for the integration of structured data with unstructured information contained in natural language texts. L&C’s LinkSuite™ combines the flexibility of a modular software architecture with an ontology based on rigorous philosophical and logical principles that (...)
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  20. Non-knowledge in medical practices: Approaching the uses of social media in healthcare from an epistemological perspective.Anna Sendra, Sinikka Torkkola & Jaana Parviainen - 2023 - Journal of Digital Social Research 5 (1):70-89.
    Social media has transformed how individuals handle their illnesses. While many patients increasingly use these online platforms to understand embodied information surrounding their conditions, healthcare professionals often frame these practices as negative and do not consider the expertise that patients generate through social media. Through a combination of insights from social epistemology and ignorance studies, this paper problematizes the distinctive understandings of social media between patients and healthcare professionals from a different perspective. A total of four ideas (...)
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  21. Medical Privacy and Big Data: A Further Reason in Favour of Public Universal Healthcare Coverage.Carissa Véliz - 2019 - In Philosophical Foundations of Medical Law. pp. 306-318.
    Most people are completely oblivious to the danger that their medical data undergoes as soon as it goes out into the burgeoning world of big data. Medical data is financially valuable, and your sensitive data may be shared or sold by doctors, hospitals, clinical laboratories, and pharmacies—without your knowledge or consent. Medical data can also be found in your browsing history, the smartphone applications you use, data from wearables, your shopping list, and more. At best, data about your health might (...)
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  22. Semantic interoperability in healthcare. State of the art in the US. A position paper with background materials.Werner Ceusters & Barry Smith - 2010 - In Ceusters Werner & Smith Barry (eds.), European Union ARGOS Project: Transatlantic Observatory for Meeting Global Health Policy Challenges through ICT-Enabled Solution.
    Semantic interoperability can be defined as the ability of two or more computer systems to exchange information in such a way that the meaning of that information can be automatically interpreted by the receiving system accurately enough to produce useful results to the end users of both systems. Several activities are currently being performed by a variety of stakeholders to achieve semantic interoperability in healthcare. Many of these activities are not beneficial, because they place too great a (...)
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  23. Patient Informed Choice for Altruism.David J. Doukas & John Hardwig - 2014 - Cambridge Quarterly of Healthcare Ethics 23 (4):397-402.
    Abstract:Respect for persons protects patients regarding their own healthcare decisions. Patient informed choice for altruism (PICA) is a proposed means for a fully autonomous patient with decisionmaking capacity to limit his or her own treatment for altruistic reasons. An altruistic decision could bond the patient with others at the end of life. We contend that PICA can also be an advance directive option. The proxy, family, and physicians must be reminded that a patient’s altruistic treatment refusal should be respected.
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  24. NHS AI Lab: why we need to be ethically mindful about AI for healthcare.Jessica Morley & Luciano Floridi - unknown
    On 8th August 2019, Secretary of State for Health and Social Care, Matt Hancock, announced the creation of a £250 million NHS AI Lab. This significant investment is justified on the belief that transforming the UK’s National Health Service (NHS) into a more informationally mature and heterogeneous organisation, reliant on data-based and algorithmically-driven interactions, will offer significant benefit to patients, clinicians, and the overall system. These opportunities are realistic and should not be wasted. However, they may be missed (one may (...)
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  25. Bioethical Implications of Vulnerability and Politics for Healthcare in Ethiopia and The Ways Forward.Kirubel Manyazewal Mussie, Bernice Simone Elger, Mirgissa Kaba, Félix Pageau & Isabelle Wienand - 2022 - Journal of Bioethical Inquiry 19 (4):667-681.
    Vulnerability and politics are among the relevant and key topics of discussion in the Ethiopian healthcare context. Attempts by the formal bioethics structure in Ethiopia to deliberate on ethical issues relating to vulnerability and politics in healthcare have been limited, even though the informal analysis of bioethical issues has been present in traditional Ethiopian communities. This is reflected in religion, social values, and local moral underpinnings. Thus, the aim of this paper is to discuss the bioethical implications of (...)
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  26.  83
    Institutional Epistemic Isolation in Psychiatric Healthcare.Lucienne Jeannette Spencer - 2024 - Social Epistemology 1:1-14.
    Within the last decade, epistemic injustice has been a valuable framework for those working on exposing oppressive practices within the healthcare system. As this work has evolved, new terminology has been added to the epistemic injustice literature to bring to light previously obscured epistemic harms in healthcare practices. This paper aims to explore an important concept that has not received the attention it deserves: epistemic isolation. By developing Ian Kidd and Havi Carel’s concept of epistemic isolation, a new (...)
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  27. Foundation for the Electronic Health Record: An ontological analysis of the HL7 Reference Information Model.Lowell Vizenor, Barry Smith & Werner Ceusters - 2004 - In Vizenor Lowell, Smith Barry & Ceusters Werner (eds.), Ifomis Reports. Ifomis. pp. 1-14.
    Despite the recent advances in information and communication technology that have increased our ability to store and circulate information, the task remains of ensuring that the right sorts of information reach the right sorts of people. In what follows we defend the thesis that efforts to develop efficient means for sharing information across healthcare systems and organizations would benefit from a careful analysis of human action in healthcare organizations, and that the communication of (...) information and knowledge needs to rest on a sound ontology of social interaction. We illustrate this thesis in relation to the HL7 RIM, which is one centrally important tool for communication in the healthcare domain. (shrink)
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  28. Modalities of Healthcare Payment and their Consequences – A Qualitative Study on Kenyan Doctors.Elijah Yulu, B. Jason Brotherton & Geoffrey Gitau Kamau - unknown
    Introduction: The Kenyan government has put a spirited reform to ensure all Kenyans get universal healthcare. This has led to restructuring of several entities among them the health insurance industry. This is geared at alleviating the burden of catastrophic expenditure on health from the poor Kenyans. However, insurance uptake remains at less than a quarter of the population with many Kenyans still paying for healthcare out-of-pocket. These out-of-pocket payers often don’t afford the ever-increasing cost of healthcare in (...)
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  29. Talking it better: conversations and normative complexity in healthcare improvement.Alan Cribb, Vikki Entwistle & Polly Mitchell - 2022 - Medical Humanities 48:85-93.
    In this paper, we consider the role of conversations in contributing to healthcare quality improvement. More specifically, we suggest that conversations can be important in responding to what we call ’normative complexity’. As well as reflecting on the value of conversations, the aim is to introduce the dimension of normative complexity as something that requires theoretical and practical attention alongside the more recognised challenges of complex systems, which we label, for short, as ’explanatory complexity’. In brief, normative complexity relates (...)
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  30. An introduction to ethical theory for healthcare assistants.Daniel Rodger & Bruce P. Blackshaw - 2017 - British Journal of Healthcare Assistants 11 (11):556-561.
    This article will explore and summarise the four main ethical theories that have relevance for healthcare assistants. These are utilitarianism, deontology, virtue ethics, and principlism. Understanding different ethical theories can have a number of significant benefits, which have the potential to shape and inform the care of patients, challenge bad practice and lead staff to become better informed about areas of moral disagreement.
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  31. The impossibility of reliably determining the authenticity of desires: implications for informed consent.Jesper Ahlin - 2018 - Medicine, Health Care and Philosophy 21 (1):43-50.
    It is sometimes argued that autonomous decision-making requires that the decision-maker’s desires are authentic, i.e., “genuine,” “truly her own,” “not out of character,” or similar. In this article, it is argued that a method to reliably determine the authenticity (or inauthenticity) of a desire cannot be developed. A taxonomy of characteristics displayed by different theories of authenticity is introduced and applied to evaluate such theories categorically, in contrast to the prior approach of treating them individually. The conclusion is drawn that, (...)
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  32. The Collaborative Care Model: Realizing Healthcare Values and Increasing Responsiveness in the Pharmacy Workforce.Barry Maguire & Paul Forsyth - forthcoming - Research in Social and Administrative Pharmacy.
    Abstract The values of the healthcare sector are fairly ubiquitous across the globe, focusing on caring and respect, patient health, excellence in care delivery, and multi-stakeholder collaboration. Many individual pharmacists embrace these core values. But their ability to honor these values is significantly determined by the nature of the system they work in. -/- The paper starts with a model of the prevailing pharmacist workforce model in Scotland, in which core roles are predominantly separated into hierarchically disaggregated jobs focused (...)
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  33. United Kingdom’s healthcare corruption in perspective.Sally Serena Ramage - 2023 - The Criminal Lawyer 258 (258):2-24.
    Corruption deprives people of access to health care and can lead to the wrong treatments being administered. Drug counterfeiting, facilitated by corruption, kills en masse. Cases are recorded of water being substituted for life-saving adrenaline and of active ingredients being diluted by counterfeiters, triggering drug-resistant strains of malaria, tuberculosis and HIV. The poor are disproportionately affected by corruption in the health sector, and cannot afford to pay for private alternatives where corruption has depleted public health services. Analysis of corruption in (...)
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  34. Mapping the Ethical Issues of Digital Twins for Personalised Healthcare Service.Pei-Hua Huang, Ki-hun Kim & Maartje Schermer - 2022 - Journal of Medical Internet Research 24 (1):e33081.
    Background: The concept of digital twins has great potential for transforming the existing health care system by making it more personalized. As a convergence of health care, artificial intelligence, and information and communication technologies, personalized health care services that are developed under the concept of digital twins raise a myriad of ethical issues. Although some of the ethical issues are known to researchers working on digital health and personalized medicine, currently, there is no comprehensive review that maps the major (...)
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  35. Rethinking the ethical approach to health information management through narration: pertinence of Ricœur’s ‘little ethics’.Corine Mouton Dorey - 2016 - Medicine, Health Care and Philosophy 19 (4):531-543.
    The increased complexity of health information management sows the seeds of inequalities between health care stakeholders involved in the production and use of health information. Patients may thus be more vulnerable to use of their data without their consent and breaches in confidentiality. Health care providers can also be the victims of a health information system that they do not fully master. Yet, despite its possible drawbacks, the management of health information is indispensable for advancing science, (...)
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  36. Access to Prenatal Testing and Ethically Informed Counselling in Germany, Poland and Russia.Marcin Orzechowski, Cristian Timmermann, Katarzyna Woniak, Oxana Kosenko, Galina Lvovna Mikirtichan, Alexandr Zinovievich Lichtshangof & Florian Steger - 2021 - Journal of Personalized Medicine 11 (9):937.
    The development of new methods in the field of prenatal testing leads to an expansion of information that needs to be provided to expectant mothers. The aim of this research is to explore opinions and attitudes of gynecologists in Germany, Poland and Russia towards access to prenatal testing and diagnostics in these countries. Semi-structured interviews were conducted with n = 18 gynecologists in Germany, Poland and Russia. The interviews were analyzed using the methods of content analysis and thematic analysis. (...)
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  37. Examining the digital skills of nursing students: the power of information for problem-solving.Ni Putu Wulan Purnama Sari, Jintana Artsanthia, Steven Aldo Marcello, Sudarat Suvaree & Numpueng Prachyakoon - 2024 - International Journal of Public Health Science 13 (3):1111-1120.
    Our society is undergoing digital change. Dealing with digital technologies has become a daily practice. Many healthcare facilities are implementing digital technologies. Nurses are placed in a strategic position to be the leader of the digital healthcare workforce. Nursing students are more exposed to this technological advancement as they are future professional nurses. This study aimed to examine how information-processing and exchanging skills in digital spaces affect digital problem-solving skills among nursing students. The Bayesian mindsponge framework (BMF) (...)
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  38. Why Haitian Refugee Patients Need Trauma-Informed Care.Woodger G. Faugas - 2022 - Synapse 66 (8).
    Owing to its grappling with a motley of intricate socioeconomic, as well as medico-legal, crises, Haiti has found itself bereft of some of its people, many of whom have had to leave the Caribbean country in search of improved lives elsewhere. Receiving some of the Haitian refugees fleeing abject poverty, unemployment, and other harms and barriers has been the United States, one of Haiti's northern neighbors and a country that has played an outcome-determinative, if not outsized, role in steering the (...)
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  39. Utilization of Injectable Drugs for Communicable and Non-communicable Diseases in Primary Healthcare: A Retrospective Study in Turkey.Selcan Tülü Çolak, Caner Vızdıklar, Volkan Aydın, Başak Dönertaş Ayaz, Ali Alkan & Ahmet Akıcı - 2023 - European Journal of Therapeutics 29 (1):23-31.
    Objective: Primary care, which is often the first level of contact for patients with various communicable diseases (CDs) and noncommunicable diseases (NCDs), might exhibit patterns of injectable drug utilization different from hospitals. We aimed to examine injection prescribing to adults with CD or NCD in primary care. -/- Methods: In this retrospective study, single-diagnosis injectable drug-containing prescription data from Family Medicine Information System comprising 32 provinces of Turkey were analysed. The prescriptions were grouped by diagnosis as “CD” (n=3848) and (...)
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  40. The HL7 approach to semantic interoperability.Jobst Landgrebe & Barry Smith - 2011 - In Landgrebe Jobst & Smith Barry (eds.), Proceedings of the 2nd International Conference on Biomedical Ontology. CEUR, vol. 833. pp. 139-146.
    Health Level 7 (HL7) is an international standards development organisation in the domain of healthcare information technology. Initially the mission of HL7 was to enable data exchange via the creation of syntactic standards which supported point-to-point messaging. Currently HL7 sees its mission as one of creating standards for semantic interoperability in healthcare IT on the basis of its flagship “version 3” (v3). Unfortunately, v3 has been plagued by quality and consistency issues, and it has not been able (...)
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  41. What do identifiers in HL7 identify? An essay in the ontology of identity.Werner Ceusters & Barry Smith - 2009 - In Mitsu Okada (ed.), Proceedings of InterOntology (Tokyo, Japan, February 27-March 1, 2009). Keio University. pp. 77-86.
    Health Level 7 (HL7) is an organization seeking to provide universal standards for the exchange of healthcare information. In a document entitled ‘HL7 Version 3 Standard: Data Types’, the HL7 organization advances descriptions of data types recom- mended for use as identifiers. We will argue that the descriptions supplied provide insufficient guidance as to what exactly the entities are which these data types uniquely identify. Are they real things, such as persons or pieces of equipment? Or are they (...)
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  42.  70
    Revisiting the participation of the uninsured in the GHE scheme using the granular interactive thinking mechanism.Cuong N. P. K. Nghiem & Thi-Minh-Phuong Duong - manuscript
    This short paper is to contemplate the results from a 7-year-old paper, published in Palgrave Communications in early 2018, in light of the emergence of the informational entropy-based notion of value, recently introduced in, specifically Chapter 5. This effort is made possible thanks to the clues provided in another seemingly unrelated but useful preprint concerning the notion of Boltzmann entropy.
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  43. HL7 RIM: An incoherent standard.Barry Smith & Werner Ceusters - 2006 - Studies in Health Technology and Informatics 124 (Proceedings of MIE 2006):133–138.
    The Health Level 7 Reference Information Model (HL7 RIM) is lauded by its authors as ‘the foundation of healthcare interoperability’. Yet even after some 10 years of development work, the RIM is still subject to a variety of logical and ontological flaws which have placed severe obstacles in the way of those who are called upon to develop implementations. We offer evidence that these obstacles are insurmountable and that the time has come to abandon an unworkable paradigm.
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  44. Chasing Certainty After Cardiac Arrest: Can a Technological Innovation Solve a Moral Dilemma?Mayli Mertens, Janine van Til, Eline Bouwers-Beens & Marianne Boenink - 2021 - Neuroethics 14 (3):541-559.
    When information on a coma patient’s expected outcome is uncertain, a moral dilemma arises in clinical practice: if life-sustaining treatment is continued, the patient may survive with unacceptably poor neurological prospects, but if withdrawn a patient who could have recovered may die. Continuous electroencephalogram-monitoring is expected to substantially improve neuroprognostication for patients in coma after cardiac arrest. This raises expectations that decisions whether or not to withdraw will become easier. This paper investigates that expectation, exploring cEEG’s impacts when it (...)
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  45. Perspectives and Theories of Social Innovation for Ageing Population.Andrzej Klimczuk & Łukasz Tomczyk (eds.) - 2020 - Frontiers Media.
    In recent years we may observe increasing interest in the development of social innovation both regarding theory as well as the practice of responding to social problems and challenges. One of the crucial challenges at the beginning of the 21st century is population ageing. Various new and innovative initiatives, programs, schemes, and projects to respond to negative consequences of this demographic process are emerging around the world. However, social theories related to ageing are still insufficiently combined with these new practices, (...)
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  46. Causal Complexity and Causal Ontology of Health-Related Quality of Life Model.Tennn Hong-Ui - 2022 - Dissertation, National Yang Ming Chiao Tung University
    Patient-centered care (PCC) is an approach to healthcare that values patients’ preference, need, and autonomy. The estimation of healthcare partly depends on how well PCC is implemented. In addition, the result of clinical research can inform the assessment of the implementation of PCC. In clinical research, health-related quality of life (HRQL) theoretical models offer a conceptual toolbox that informs clinical research and guides the hypotheses generation. Wilson and Cleary (1995) developed the most widely used HRQL theoretical model (Bakas (...)
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  47. Genetically engineered mosquitoes, Zika and other arboviruses, community engagement, costs, and patents: Ethical issues.Zahra Meghani & Christophe Boëte - 2018 - PLoS Neglected Tropical Diseases 7 (12).
    Genetically engineered (GE) insects, such as the GE OX513A Aedes aegypti mosquitoes, have been designed to suppress their wild-type populations so as to reduce the transmission of vector-borne diseases in humans. Apart from the ecological and epidemiological uncertainties associated with this approach, such biotechnological approaches may be used by individual governments or the global community of nations to avoid addressing the underlying structural, systemic causes of those infections... We discuss here key ethical questions raised by the use of GE mosquitoes, (...)
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  48. DISCOURSE ON NON-COMMUNICABLE DISEASES INTERVENTIONS IN GHANA (1990-2018).Samuel Adu-Gyamfi, Lucky Tomdi & Kwasi Amakye-Boateng - 2020 - Journal of Basic and Applied Research International 26 (2):17-26.
    Non-communicable diseases (NCDs) such as cardiovascular diseases and diabetes are reported to have caused significant deaths for more than a decade. Consequently, NCDs have posed as a threat to the socio-economic well-being of individuals and families, contributed to a rise in healthcare costs and largely undermined the attainment of the Sustainable Development Goals (SDGs) especially in developing countries. According to the World Health Organization (WHO), the prevalence of NCDs have compounded the problem of already ill equipped healthcare systems (...)
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  49. Diachronic and synchronic variation in the performance of adaptive machine learning systems: the ethical challenges.Joshua Hatherley & Robert Sparrow - 2023 - Journal of the American Medical Informatics Association 30 (2):361-366.
    Objectives: Machine learning (ML) has the potential to facilitate “continual learning” in medicine, in which an ML system continues to evolve in response to exposure to new data over time, even after being deployed in a clinical setting. In this article, we provide a tutorial on the range of ethical issues raised by the use of such “adaptive” ML systems in medicine that have, thus far, been neglected in the literature. -/- Target audience: The target audiences for this tutorial are (...)
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  50.  92
    “Giving something back”: a systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland.Jessica Stockdale, Jackie Cassell & Elizabeth Ford - 2019 - Wellcome Open Research 3 (6).
    Background: Use of patients’ medical data for secondary purposes such as health research, audit, and service planning is well established in the UK. However, the governance environment, as well as public understanding about this work, have lagged behind. We aimed to systematically review the literature on UK and Irish public views of patient data used in research, critically analysing such views though an established biomedical ethics framework, to draw out potential strategies for future good practice guidance and inform ethical and (...)
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