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  1. (1 other version)Creating Future People: The Science and Ethics of Genetic Enhancement (2nd edition).Jonathan Anomaly - 2024 - London, UK: Routledge.
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  2. Medical Treatment, Genetic Selection, and Gene Editing: Beyond the Distinction Between Person-Affecting and Impersonal Reasons.Tomasz Żuradzki - 2024 - American Journal of Bioethics 24 (8):50-52.
    According to what McMahan and Savulescu (2024) call the “popular position”, embryo selection is less ethically problematic than gene editing (other things being equal). The Two-Tier View, defended by McMahan and Savulescu, implies that the popular position is mistaken. The authors treat gene editing of embryos similarly to standard cases of medical treatments that promise expected benefits for the (subsequent) person even though gene editing also may create risks of harmful side effects for her. McMahan and Savulescu assume that if (...)
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  3. Reforming Informed Consent: On Disability and Genetic Counseling.Elizabeth Dietz & Joel Michael Reynolds - 2023 - In Michael J. Deem, Emily Farrow & Robin Grubs (eds.), The Oxford Handbook of Genetic Counseling. Oxford University Press USA.
    Informed consent is a central concept for empirical and theoretical research concerning pregnancy management decisions and is often taken to be one of the more fundamental goals of the profession of genetic counseling. Tellingly, this concept has been seen by disability communities as salutary, despite longstanding critiques made by disability activists, advocates, and scholars concerning practices involved in genetic counseling more generally. In this chapter, we show that the widespread faith in informed consent is misleading and can be detrimental to (...)
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  4. A practical checklist for return of results from genomic research in the European context.Danya F. Vears, Signe Mežinska, Nina Hallowell, Heidi Beate Hallowell, Bridget Ellul, Therese Haugdahl Nøst, , Berge Solberg, Angeliki Kerasidou, Shona M. Kerr, Michaela Th Mayrhofer, Elizabeth Ormondroyd, Birgitte Wirum Sand & Isabelle Budin-Ljøsne - 2023 - European Journal of Human Genetics 1:1-9.
    An increasing number of European research projects return, or plan to return, individual genomic research results (IRR) to participants. While data access is a data subject’s right under the General Data Protection Regulation (GDPR), and many legal and ethical guidelines allow or require participants to receive personal data generated in research, the practice of returning results is not straightforward and raises several practical and ethical issues. Existing guidelines focusing on return of IRR are mostly project-specific, only discuss which results to (...)
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  5. Empirical bioethics and human enhancement: a methodological proposal.Piero Gayozzo - 2022 - Revista Colombiana de Bioética 17 (2):e3501.
    Purpose/Background. The present research focuses on the debate on transhumanism/bioconservatism from the perspective of empirical bioethics, that is, making use of em-pirical evidence in the process of moral reasoning. Its objective is to propose a metho-dological guide for the approach and resolution of moral problems concerning human enhancement. Methodology/Approach. The method Step-wise Ethical Human Enhancemet (SWEH) is proposed. It is a guide consisting of 11 questions that are the result of the adaptation of the guidelines for identifying a human enhancement (...)
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  6. Lewontin (1972).Rasmus Grønfeldt Winther - 2021 - In Ludovica Lorusso & Rasmus Grønfeldt Winther (eds.), Remapping Race in a Global Context. Routledge. pp. 9-47.
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  7. The trust game CRISPR for human germline editing unsettles scientists and society.Matthias Braun & Darian Meacham - 2019 - EMBO Reports 20 (2).
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  8. Improving the justice‐based argument for conducting human gene editing research to cure sickle cell disease.Berman Chan - 2019 - Bioethics 34 (2):200-202.
    In a recent article, Marilyn Baffoe-Bonnie offers three arguments for conducting CRISPR/Cas9 biotechnology research to cure sickle-cell disease (SCD) based on addressing historical and current injustices in SCD research and care. I show that her second and third arguments suffer from roughly the same defect, which is that they really argue for something else rather than for conducting CRISPR/Cas9 research in particular. For instance, the second argument argues that conducting this gene therapy research would improve the relationship between SCD sufferers (...)
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  9. Cloning Centering at Egoism.Yusuke Kaneko - 2019 - The Basis : The Annual Bulletin of Research Center for Liberal Education 9:245-260.
    Cloning research caught a great deal of attention when Dolly the sheep was born (§4). While some fear surrounded the attainment (§§14-15), Wilmutʼs research itself has grown well, providing a less vicious manner to gain ES cells (§12). In this article, we review the progress of cloning research along with the concern of medical circles about its application to reproductive cloning, that is to say, making replicas of human beings (§§16-21). Note that all the content is ascribed to the author (...)
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  10. Genetic Protection Modifications: Moving Beyond the Binary Distinction Between Therapy and Enhancement for Human Genome Editing.Rasmus Bjerregaard Mikkelsen, Henriette Reventlow S. Frederiksen, Mickey Gjerris, Bjørn Holst, Poul Hyttel, Yonglun Luo, Kristine Freude & Peter Sandøe - 2019 - CRISPR Journal 2 (6):362-369.
    Current debate and policy surrounding the use of genetic editing in humans often relies on a binary distinction between therapy and human enhancement. In this paper, we argue that this dichotomy fails to take into account perhaps the most significant potential uses of CRISPR-Cas9 gene editing in humans. We argue that genetic treatment of sporadic Alzheimer’s disease, breast- and ovarian-cancer causing BRCA1/2 mutations and the introduction of HIV resistance in humans should be considered within a new category of genetic protection (...)
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  11. Personalised Medicine, Individual Choice and the Common Good.Britta van Beers, Sigrid Sterckx & Donna Dickenson (eds.) - 2018 - Cambridge: Cambridge University Press.
    This is a volume of twelve essays concerning the fundamental tension in personalised medicine between individual choice and the common good.
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  12. Bioethics: Reincarnation of Natural Philosophy in Modern Science.Valentin Teodorovich Cheshko, Valery I. Glazko & Yulia V. Kosova - 2017 - Biogeosystem Technique 4 (2):111-121.
    The theory of evolution of complex and comprising of human systems and algorithm for its constructing are the synthesis of evolutionary epistemology, philosophical anthropology and concrete scientific empirical basis in modern (transdisciplinary) science. «Trans-disciplinary» in the context is interpreted as a completely new epistemological situation, which is fraught with the initiation of a civilizational crisis. Philosophy and ideology of technogenic civilization is based on the possibility of unambiguous demarcation of public value and descriptive scientific discourses (1), and the object and (...)
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  13. Pharmacogenomic Inequalities: Strategies for Justice in Biomedical Research and Healthcare.Giovanni De Grandis - 2017 - Diametros 51:153-172.
    The paper discusses the possibility that the benefits of pharmacogenomics will not be distributed equally and will create orphan populations. I argue that since these inequalities are not substantially different from those produced by ‘traditional’ drugs and are not generated with the intention to discriminate, their production needs not be unethical. Still, the final result is going against deep-seated moral feelings and intuitions, as well as broadly accepted principles of just distribution of health outcomes and healthcare. I thus propose two (...)
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  14. When the Milk of Human Kindness Becomes a Luxury Good.Inmaculada de Melo-Martin - 2017 - Cambridge Quarterly of Healthcare Ethics 26 (1):159-165.
    A new reprogenetic technology, mitochondrial replacement, is making its appearance and, unsurprisingly given its promise to wash off our earthly stains --or at least the scourges of sexual reproduction--, John Harris finds only reasons to celebrate this new scientific feat.1 In fact, he finds mitochondrial replacement techniques (MRTs) so “unreservedly welcome” that he believes those who reject them suffer from “a large degree of desperation and not a little callousness.”2 Believing myself to be neither desperate nor callous, but finding myself (...)
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  15. Skapat liv och livets värde.Erik Persson - 2017 - In Jessica Abbott & Erik Persson (eds.), LIV – Utomjordiskt, Syntetiskt, Artificiellt. Lund, Sverige: Pufendorfinstitutet. pp. 219-237.
    Om människan någon gång kommer att få förmågan att skapa nya livsformer, hur kommer det att påverka livets värde? Detta är en fråga som kan vara en källa till oro när man diskuterar konstgjort liv, men är oron befogad? I ett försök att svara på den frågan kommer jag att gå igenom några möjliga skäl till varför förmågan att skapa konstgjort liv skulle hota livets värde, och se om de verkligen ger oss skäl att oroa oss.
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  16. Age of Genetics and the age of biotechnology on the way to editing of, human genome.Valentin Teodorovich Cheshko (ed.) - 2016 - Moscow Russia: Kurs-INFRA-M.
    The book discusses some of the stages in the development of genetics, biotechnology in terms of basic strategy of humanity towards the formation of a modern agrarian civilization. Agricultural civilization is seen as part of the biosphere and primary user of its energy flows. Consistently a steps of creation of management tools for live objects to increasing the number of food security of mankind are outlines. The elements of the biosphere degradation started in the results of human activities, and the (...)
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  17. Conceptual and terminological confusion around Personalised Medicine: a coping strategy.Giovanni De Grandis & Vidar Halgunset - 2016 - BMC Medical Ethics 17 (1):1-12.
    The idea of personalised medicine (PM) has gathered momentum recently, attracting funding and generating hopes as well as scepticism. As PM gives rise to differing interpretations, there have been several attempts to clarify the concept. In an influential paper published in this journal, Schleidgen and colleagues have proposed a precise and narrow definition of PM on the basis of a systematic literature review. Given that their conclusion is at odds with those of other recent attempts to understand PM, we consider (...)
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  18. Parental Responsibility: A Moving Target.Kristien Hens, Daniela Cutas & Dorothee Horstkötter - 2016 - In Kristien Hens, Daniela Cutas & Dorothee Horstkötter (eds.), Parental Responsibility in the Context of Neuroscience and Genetics. Cham: Springer International Publishing.
    Beliefs about the moral status of children have changed significantly in recent decades in the Western world. At the same time, knowledge about likely consequences for children of individual, parental, and societal choices has grown, as has the array of choices that (prospective) parents may have at their disposal. The intersection between these beliefs, this new knowledge, and these new choices has created a minefield of expectations from parents and a seemingly ever-expanding responsibility towards their children. Some of these new (...)
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  19. (1 other version)Altruism, Jesus and the End of the World—How the Templeton Foundation bought a Harvard Professorship and attacked Evolution, Rationality and Civilization. A review of E.O. Wilson 'The Social Conquest of Earth' (2012) and Nowak and Highfield ‘SuperCooperators’ (2012).Starks Michael - 2016 - In Michael Starks (ed.), Suicidal Utopian Delusions in the 21st Century: Philosophy, Human Nature and the Collapse of Civilization-- Articles and Reviews 2006-2017 2nd Edition Feb 2018. Las Vegas, USA: Reality Press. pp. 527-532.
    Famous ant-man E.O. Wilson has always been one of my heroes --not only an outstanding biologist, but one of the tiny and vanishing minority of intellectuals who at least dares to hint at the truth about our nature that others fail to grasp, or insofar as they do grasp, studiously avoid for of political expedience. Sadly, he is ending his long career in a most sordid fashion as a party to an ignorant and arrogant attack on science motivated at least (...)
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  20. Science and Values.Matthew J. Barker - 2015 - Eugenics Archive.
    This short paper, written for a wide audience, introduces "science and values" topics as they have arisen in the context of eugenics. The paper especially focuses on the context of 20th century eugenics in western Canada, where eugenic legislation in two provinces was not repealed until the 1970s and thousands of people were sterilized without their consent. A framework for understanding science-value relationships within this context is discussed, and so too is recent relevant work in philosophy of science.
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  21. The Double Nature of DNA: Reevaluating the Common Heritage Idea.Matthieu Queloz - 2015 - Journal of Political Philosophy 24 (1):47-66.
    DNA possesses a double nature: it is both an analog chemical compound and a digital carrier of information. By distinguishing these two aspects, this paper aims to reevaluate the legally and politically influential idea that the human genome forms part of the common heritage of mankind, an idea which is thought to conflict with the practice of patenting DNA. The paper explores the lines of reasoning that lead to the common heritage idea, articulates and motivates what emerges as the most (...)
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  22. Race, Genes, and the Ethics of Belief: A review of Nicholas Wade, A Troublesome Inheritance. [REVIEW]Jonny Anomaly - 2014 - Hastings Center Report 44 (5):51-52.
    A Troublesome Inheritance, by Nicholas Wade, should be read by anyone interested in race and recent human evolution. Wade deserves credit for challenging the popular dog­ma that biological differences between groups either don't exist or cannot ex­plain the relative success of different groups at different tasks. Wade's work should be read alongside another re­cent book, The 10,000 Year Explosion: How Civilization Accelerated Human Evolution, by Gregory Cochran and Henry Harpending. Together, these books represent a ma­jor turning point in the public (...)
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  23. Nonreductive Moral Classification and the Limits of Philosophy.Thomas V. Cunningham - 2014 - American Journal of Bioethics 14 (2):22-24.
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  24. Questioning South Africa’s ‘Genetic Link’ Requirement for Surrogacy.Thaddeus Metz - 2014 - South African Journal of Bioethics and Law 7 (1):34-39.
    South African law currently forbids those seeking to arrange a surrogate motherhood agreement from creating a child that will not be genetically related to at least one of them. For a surrogacy contract to be legally valid, there must be a ‘genetic link’ between the child created through a surrogate and the parents who will raise it. Currently, this law is being challenged in the High Court of South Africa, and in this article I critically explore salient ethical facets of (...)
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  25. Social Epigenetics and Equality of Opportunity.Michele Loi, Lorenzo Del Savio & Elia Stupka - 2013 - Public Health Ethics 6 (2):142-153.
    Recent epidemiological reports of associations between socioeconomic status and epigenetic markers that predict vulnerability to diseases are bringing to light substantial biological effects of social inequalities. Here, we start the discussion of the moral consequences of these findings. We firstly highlight their explanatory importance in the context of the research program on the Developmental Origins of Health and Disease (DOHaD) and the social determinants of health. In the second section, we review some theories of the moral status of health inequalities. (...)
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  26. Bioethics: All That Matters.Donna Dickenson - 2012 - London: Hodder.
    Should we do whatever science lets us do? This short introduction in the 'All That Matters' series shows how developments in biotechnology, such as genetics, stem cell research and artificial reproduction, arouse both our greatest hopes and our greatest fears. Many people invest the new biotechnology with all the aspirations and faith once accorded to religious salvation. But does everyone benefit equally from scientific progress? This book argues that although we've entered new scientific territory, there is no need to jettison (...)
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  27. Stem Cell Research on Embryonic Persons Is Just.Aaron Rizzieri - 2012 - Journal of Bioethical Inquiry 9 (2):195-203.
    I argue that embryonic stem cell research is fair to the embryo, even on the assumption that the embryo has attained full personhood and an attendant right to life at conception. This is because the only feasible alternatives open to the embryo are to exist briefly in an unconscious state and be killed or to not exist at all. Hence, one is neither depriving the embryo of an enduring life it would otherwise have had nor is one causing the embryo (...)
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  28. Body Shopping: The Economy Fuelled by Flesh and Blood.Donna Dickenson - 2008 - Oxford: Oneworld.
    'An alarming and illuminating book. The story of how we have allowed private corporations to patent genes, to stockpile human tissue, and in short to make profits out of what many people feel ought to be common goods is a shocking one. No one with any interest at all in medicine and society and how they interact should miss this book, and it should be required reading for every medical student,'--Philip Pullman.
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  29. (1 other version)Pharmacogenetics: the bioethical problem of DNA investment banking.Oonagh P. Corrigan & Bryn Williams-Jones - 2006 - Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 37 (3):550-565.
    Concern about the ethics of clinical drug trials research on patients and healthy volunteers has been the subject of significant ethical analysis and policy development—protocols are reviewed by Research Ethics Committees and subjects are protected by informed consent procedures. More recently attention has begun to be focused on DNA banking for clinical and pharmacogenetics research. It is, however, surprising how little attention has been paid to the commercial nature of such research, or the unique issues that present when subjects are (...)
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  30. From Chance to Choice: Genetics and Justice, by Allen Buchanan, Dan W. Brock, Norman Daniels, & Daniel Wikler. [REVIEW]Louis Caruana - 2005 - Heythrop Journal 46 (4):584-587.
    Scientific knowledge of how genes work is giving human beings unprecedented power to shape future human lives, for better or for worse. People involved in government, business and science are facing new questions related to the application of genetic technologies to human beings. Our technical knowledge is growing fast, but does our moral wisdom grow at the same rate?
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  31. Patently paradoxical? 'Public order' and genetic patents.Donna Dickenson - 2004 - Nature Reviews Genetics 5 (2):86.
    How heavily should ethical considerations weigh in allowing or disallowing genetic patents? The concept of 'ordre public' can be useful in offsetting a simple utilitarian view.
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  32. Review of Graeme Laurie, Genetic Privacy. [REVIEW]Donna Dickenson - 2003 - Journal of Medical Ethics 29:271-374.
    Review of Graeme Laurie, Genetic Privacy: A Challenge to Medico-Legal Norms.
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  33. Designing Babies: Morally Permissible Ways to Modify the Human Genome1.Nicholas Agar - 1995 - Bioethics 9 (1):1-15.
    My focus in this paper is the question of the moral acceptability of attempts to modify the human genome. Much of the debate in this area has revolved around the distinction between supposedly therapeutic modification on the one hand, and eugenic modification on the other. In the first part of the paper I reject some recent arguments against genetic engineering. In the second part I seek to distinguish between permissible and impermissible forms of intervention in such a way that does (...)
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  34. The mathematics of Einstein, euclid and genetic manipulation.Marvin Eli Kirsh - manuscript
    This manuscript is intended to illustrate the existence of a natural ethic as a universal and special case in which the notion of proximity differs from the reflexively perceived physical notion that is both commonly and scientifically employed. In this case actual proximity in nature is proposed to diverge from the physical lines construed to connect points to be a function of relations of the lines of perception as the components of a universal volume that is energetic and active, an (...)
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  35. 'Techno-Risk - The Perils of Learning and Sharing Everything' from a Criminal Information Sharing Perspective.John Sliter - manuscript
    The author has extensive law enforcement experience and the paper is intended to provoke thought on the use of technology as it pertains to information sharing between the police and the private sector. -/- As the world edges closer and closer to the convergence of man and machine, the human capacity to retrieve information is increasing by leaps and bounds. We are on the verge of knowing everything and anything there is to know, and literally in the blink of an (...)
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