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  1. Les mégadonnées dans la recherche.Sfetcu Nicolae - manuscript
    L'éthique des mégadonnées implique l'adhésion aux concepts de bons et mauvais comportements concernant les données, en particulier les données personnelles. L'éthique des mégadonnées se concentre sur les collecteurs et diffuseurs des données structurés ou non structurés. L'éthique des mégadonnées est soutenue, au niveau de l'UE, par une documentation complète, qui cherche à trouver des solutions concrètes pour maximiser la valeur des mégadonnées sans sacrifier les droits humains fondamentaux. Le Contrôleur européen de la protection des données (CEPD) soutient le droit à (...)
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  2. Ancestor Simulations and the Dangers of Simulation Probes.David Braddon-Mitchell & Andrew J. Latham - forthcoming - Erkenntnis:1-11.
    Preston Greene (2020) argues that we should not conduct simulation investigations because of the risk that we might be terminated if our world is a simulation designed to research various counterfactuals about the world of the simulators. In response, we propose a sequence of arguments, most of which have the form of an "even if” response to anyone unmoved by our previous arguments. It runs thus: (i) if simulation is possible, then simulators are as likely to care about simulating simulations (...)
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  3. Navigating Conflicts of Justice in the Use of Race and Ethnicity in Precision Medicine.G. Owen Schaefer, Tai E. Shyong & Shirley Hsiao-Li Sun - forthcoming - Bioethics (Early View).
    Given the sordid history of injustices linking genetics to race and ethnicity, considerations of justice are central to ensuring the responsible development of precision medicine programmes around the world. While considerations of justice may be in tension with other areas of concern, such as scientific value or privacy, there are also be tensions between different aspects of justice. This paper focuses on three particular aspects of justice relevant to this context: social justice, distributive justice and human rights. The implications of (...)
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  4. Hit by the Virtual Trolley: When is Experimental Ethics Unethical?Jon Rueda - 2022 - Teorema: International Journal of Philosophy 41 (1):7-27.
    The trolley problem is one of the liveliest research frameworks in experimental ethics. In the last decade, social neuroscience and experimental moral psychology have gone beyond the studies with mere text-based hypothetical moral dilemmas. In this article, I present the rationale behind testing the actual behaviour in more realistic scenarios through Virtual Reality and summarize the body of evidence raised by the experiments with virtual trolley scenarios. Then, I approach the argument of Ramirez and LaBarge (2020), who claim that the (...)
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  5. Reducing the Inadvertent Spread of Retracted Science: Recommendations From the RISRS Report.Jodi Schneider, Nathan D. Woods, Randi Proescholdt & The Risrs Team - 2022 - Research Integrity and Peer Review 7 (1).
    Background Retraction is a mechanism for alerting readers to unreliable material and other problems in the published scientific and scholarly record. Retracted publications generally remain visible and searchable, but the intention of retraction is to mark them as “removed” from the citable record of scholarship. However, in practice, some retracted articles continue to be treated by researchers and the public as valid content as they are often unaware of the retraction. Research over the past decade has identified a number of (...)
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  6. An Ethical Framework for Presenting Scientific Results to Policy-Makers.S. Andrew Schroeder - 2022 - Kennedy Institute of Ethics Journal 32 (1):33-67.
    Scientists have the ability to influence policy in important ways through how they present their results. Surprisingly, existing codes of scientific ethics have little to say about such choices. I propose that we can arrive at a set of ethical guidelines to govern scientists’ presentation of information to policymakers by looking to bioethics: roughly, just as a clinician should aim to promote informed decision-making by patients, a scientist should aim to promote informed decision-making by policymakers. Though this may sound like (...)
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  7. Thinking About Values in Science: Ethical Versus Political Approaches.S. Andrew Schroeder - 2022 - Canadian Journal of Philosophy 52 (3):246-255.
    Philosophers of science now broadly agree that doing good science involves making non-epistemic value judgments. I call attention to two very different normative standards which can be used to evaluate such judgments: standards grounded in ethics and standards grounded in political philosophy. Though this distinction has not previously been highlighted, I show that the values in science literature contain arguments of each type. I conclude by explaining why this distinction is important. Seeking to determine whether some value-laden determination meets substantive (...)
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  8. Informed Consent in Clinical Studies Involving Human Participants: Ethical Insights of Medical Researchers in Germany and Poland.Cristian Timmermann, Marcin Orzechowski, Oxana Kosenko, Katarzyna Woniak & Florian Steger - 2022 - Frontiers in Medicine 9:901059.
    Background: The internationalization of clinical studies requires a shared understanding of the fundamental ethical values guiding clinical studies. It is important that these values are not only embraced at the legal level but also adopted by clinicians themselves during clinical studies. Objective: Our goal is to provide an insight on how clinicians in Germany and Poland perceive and identify the different ethical issues regarding informed consent in clinical studies. Methods: To gain an understanding of how clinicians view clinical studies in (...)
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  9. Addressing the Continued Circulation of Retracted Research as a Design Problem.Nathan D. Woods, Jodi Schneider & The Risrs Team - 2022 - GW Journal of Ethics in Publishing 1 (1).
    In this article, we discuss the continued circulation and use of retracted science as a complex problem: Multiple stakeholders throughout the publishing ecosystem hold competing perceptions of this problem and its possible solutions. We describe how we used a participatory design process model to co-develop recommendations for addressing this problem with stakeholders in the Alfred P. Sloan-funded project, Reducing the Inadvertent Spread of Retracted Science (RISRS). After introducing the four core RISRS recommendations, we discuss how the issue of retraction-related stigma (...)
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  10. Public Trust in Science: Exploring the Idiosyncrasy-Free Ideal.Marion Boulicault & S. Andrew Schroeder - 2021 - In Kevin Vallier & Michael Weber (eds.), Social Trust. Routledge.
    What makes science trustworthy to the public? This chapter examines one proposed answer: the trustworthiness of science is based at least in part on its independence from the idiosyncratic values, interests, and ideas of individual scientists. That is, science is trustworthy to the extent that following the scientific process would result in the same conclusions, regardless of the particular scientists involved. We analyze this "idiosyncrasy-free ideal" for science by looking at philosophical debates about inductive risk, focusing on two recent proposals (...)
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  11. Precision Medicine, Data, and the Anthropology of Social Status.Hugh Desmond - 2021 - American Journal of Bioethics 21 (4):80-83.
    The success of precision medicine depends on obtaining large amounts of information about at-risk populations. However, getting consent is often difficult. Why? In this commentary I point to the differentials in social status involved. These differentials are inevitable once personal information is surrendered, but are particularly intense when the studied populations are socioeconomically or socioculturally disadvantaged and/or ethnically stigmatized groups. I suggest how the deep distrust of the latter groups can be partially justified as a lack of confidence that their (...)
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  12. Expert Communication and the Self-Defeating Codes of Scientific Ethics.Hugh Desmond - 2021 - American Journal of Bioethics 21 (1):24-26.
    Codes of ethics currently offer no guidance to scientists acting in capacity of expert. Yet communicating their expertise is one of the most important activities of scientists. Here I argue that expert communication has a specifically ethical dimension, and that experts must face a fundamental trade-off between "actionability" and "transparency" when communicating. Some recommendations for expert communication are suggested.
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  13. Research Integrity Codes of Conduct in Europe: Understanding the Divergences.Hugh Desmond & Kris Dierickx - 2021 - Bioethics 35 (5):414-428.
    In the past decade, policy-makers in science have been concerned with harmonizing research integrity standards across Europe. These standards are encapsulated in the European Code of Conduct for Research Integrity. Yet, almost every European country today has its own national-level code of conduct for research integrity. In this study we document in detail how national-level codes diverge on almost all aspects concerning research integrity – except for what constitutes egregious misconduct. Besides allowing for potentially unfair responses to joint misconduct by (...)
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  14. Trust and Professionalism in Science: Medical Codes as a Model for Scientific Negligence?Hugh Desmond & Kris Dierickx - 2021 - BMC Medical Ethics 22 (1):1-11.
    Background Professional communities such as the medical community are acutely concerned with negligence: the category of misconduct where a professional does not live up to the standards expected of a professional of similar qualifications. Since science is currently strengthening its structures of self-regulation in parallel to the professions, this raises the question to what extent the scientific community is concerned with negligence, and if not, whether it should be. By means of comparative analysis of medical and scientific codes of conduct, (...)
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  15. The Use of Confidentiality and Anonymity Protections as a Cover for Fraudulent Fieldwork Data.M. V. Dougherty - 2021 - Research Ethics 17 (4):480-500.
    Qualitative fieldwork research on sensitive topics sometimes requires that interviewees be granted confidentiality and anonymity. When qualitative researchers later publish their findings, they must ensure that any statements obtained during fieldwork interviews cannot be traced back to the interviewees. Given these protections to interviewees, the integrity of the published findings cannot usually be verified or replicated by third parties, and the scholarly community must trust the word of qualitative researchers when they publish their results. This trust is fundamentally abused, however, (...)
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  16. Well-Ordered Science and Public Trust in Science.Gürol Irzik & Faik Kurtulmus - 2021 - Synthese 198 (Suppl 19):4731-4748.
    Building, restoring and maintaining well-placed trust between scientists and the public is a difficult yet crucial social task requiring the successful cooperation of various social actors and institutions. Kitcher’s takes up this challenge in the context of liberal democratic societies by extending his ideal model of “well-ordered science” that he had originally formulated in his. However, Kitcher nowhere offers an explicit account of what it means for the public to invest epistemic trust in science. Yet in order to understand how (...)
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  17. Normative Framework of Informed Consent in Clinical Research in Germany, Poland, and Russia.Marcin Orzechowski, Katarzyna Woniak, Cristian Timmermann & Florian Steger - 2021 - BMC Medical Ethics 22 (1):1-10.
    Background: Biomedical research nowadays is increasingly carried out in multinational and multicenter settings. Due to disparate national regulations on various ethical aspects, such as informed consent, there is the risk of ethical compromises when involving human subjects in research. Although the Declaration of Helsinki is the point of reference for ethical conduct of research on humans, national normative requirements may diverge from its provisions. The aim of this research is to examine requirements on informed consent in biomedical research in Germany, (...)
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  18. Improving the Ethical Review of Health Policy and Systems Research: Some Suggestions.Govind Persad - 2021 - Journal of Law, Medicine and Ethics 49 (1):123-125.
    Consistent and well-designed frameworks for ethical oversight enable socially valuable research while forestalling harmful or poorly designed studies. I suggest some alterations that might strengthen the valuable checklist Rattani & Hyder propose for the ethical review of health policy and systems research (HPSR), or prompt future work in the area.
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  19. Should Acknowledgments in Published Academic Articles Include Gratitude for Reviewers Who Reviewed for Journals That Rejected Those Articles?Joona Räsänen & Pekka Louhiala - 2021 - Theoria 87 (3):713-728.
    It is a common practice for authors of an academic work to thank the anonymous reviewers at the journal that is publishing it. Allegedly, scholars thank the reviewers because their comments improved the paper and thanking them is a proper way to show gratitude to them. Yet often, a paper that is eventually accepted by one journal is first rejected by other journals, and even though those journals’ reviewers also supply comments that improve the quality of the work, those reviewers (...)
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  20. E-Cigarettes and the Multiple Responsibilities of the FDA.Larisa Svirsky, Dana Howard & Micah L. Berman - 2021 - American Journal of Bioethics 22 (10):5-14.
    This paper considers the responsibilities of the FDA with regard to disseminating information about the benefits and harms of e-cigarettes. Tobacco harm reduction advocates claim that the FDA has been overcautious and has violated ethical obligations by failing to clearly communicate to the public that e-cigarettes are far less harmful than cigarettes. We argue, by contrast, that the FDA’s obligations in this arena are more complex than they may appear at first blush. Though the FDA is accountable for informing the (...)
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  21. Public Interest in Health Data Research: Laying Out the Conceptual Groundwork.Angela Ballantyne & G. Owen Schaefer - 2020 - Journal of Medical Ethics 46 (9):610-616.
    The future of health research will be characterised by three continuing trends: rising demand for health data; increasing impracticability of obtaining specific consent for secondary research; and decreasing capacity to effectively anonymise data. In this context, governments, clinicians and the research community must demonstrate that they can be responsible stewards of health data. IRBs and RECs sit at heart of this process because in many jurisdictions they have the capacity to grant consent waivers when research is judged to be of (...)
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  22. Retraction of Published Research.David Celiberti & Frank Cicero - 2020 - Science in Autism Treatment 17 (11):1-4.
    retraction NOUN 1. the action of drawing something back or back in. “The pilot retracted the airplane’s landing gear.” 2. a withdrawal of a statement, accusation, or undertaking. “The hospital retracted its job offer after learning that the applicant never graduated medical school.”.
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  23. Extrapolating From Laboratory Behavioral Research on Nonhuman Primates Is Unjustified.Parker Crutchfield - 2020 - Journal of Applied Philosophy 37 (4):628-645.
    Conducting research on animals is supposed to be valuable because it provides information on how human mechanisms work. But for the use of animal models to be ethically justified, it must be epistemically justified. The inference from an observation about an animal model to a conclusion about humans must be warranted for the use of animals to be moral. When researchers infer from animals to humans, it’s an extrapolation. Often non-human primates are used as animal models in laboratory behavioral research. (...)
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  24. Professionalism in Science: Competence, Autonomy, and Service.Hugh Desmond - 2020 - Science and Engineering Ethics 26 (3):1287-1313.
    Some of the most significant policy responses to cases of fraudulent and questionable conduct by scientists have been to strengthen professionalism among scientists, whether by codes of conduct, integrity boards, or mandatory research integrity training programs. Yet there has been little systematic discussion about what professionalism in scientific research should mean. In this paper I draw on the sociology of the professions and on data comparing codes of conduct in science to those in the professions, in order to examine what (...)
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  25. Plagiarism in the Sacred Sciences.Michael V. Dougherty - 2020 - Philosophy and Theology 32 (1-2):27-61.
    This article diagnoses the problem of plagiarism in academic books and articles in the disciplines of philosophy and theology. It identifies three impediments to institutional reform. They are: (1) a misplaced desire to preserve personal and institutional reputations; (2) a failure to recognize that attribution in academic writing admits of degrees; and (3) a disproportionate emphasis on the socalled “intention to plagiarize.” A detailed case study provides an illustration of the need for institutional reform in the post-publication processes in the (...)
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  26. The Termination Risks of Simulation Science.Preston Greene - 2020 - Erkenntnis 85 (2):489-509.
    Historically, the hypothesis that our world is a computer simulation has struck many as just another improbable-but-possible “skeptical hypothesis” about the nature of reality. Recently, however, the simulation hypothesis has received significant attention from philosophers, physicists, and the popular press. This is due to the discovery of an epistemic dependency: If we believe that our civilization will one day run many simulations concerning its ancestry, then we should believe that we are probably in an ancestor simulation right now. This essay (...)
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  27. The Norms of Authorship Credit: Challenging the Definition of Authorship in the European Code of Conduct for Research Integrity.Mohammad Hosseini & Jonathan Lewis - 2020 - Accountability in Research 27 (2):80-98.
    The practice of assigning authorship for a scientific publication tends to raise two normative questions: 1) ‘who should be credited as an author?’; 2) ‘who should not be credited as an author but should still be acknowledged?’. With the publication of the revised version of The European Code of Conduct for Research Integrity (ECCRI), standard answers to these questions have been called into question. This article examines the ways in which the ECCRI approaches these two questions and compares these approaches (...)
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  28. Political Activism and Research Ethics.Ben Jones - 2020 - Journal of Applied Philosophy 37 (2):233-248.
    Those who care about and engage in politics frequently fall victim to cognitive bias. Concerns that such bias impacts scholarship recently have prompted debates—notably, in philosophy and psychology—on the proper relationship between research and politics. One proposal emerging from these debates is that researchers studying politics have a professional duty to avoid political activism because it risks biasing their work. While sympathetic to the motivations behind this proposal, I suggest several reasons to reject a blanket duty to avoid activism: (1) (...)
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  29. Experimental Design: Ethics, Integrity and the Scientific Method.Jonathan Lewis - 2020 - In Ron Iphofen (ed.), Handbook of Research Ethics and Scientific Integrity. Cham, Switzerland: pp. 459-474.
    Experimental design is one aspect of a scientific method. A well-designed, properly conducted experiment aims to control variables in order to isolate and manipulate causal effects and thereby maximize internal validity, support causal inferences, and guarantee reliable results. Traditionally employed in the natural sciences, experimental design has become an important part of research in the social and behavioral sciences. Experimental methods are also endorsed as the most reliable guides to policy effectiveness. Through a discussion of some of the central concepts (...)
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  30. Responsible Research for the Construction of Maximally Humanlike Automata: The Paradox of Unattainable Informed Consent.Lantz Fleming Miller - 2020 - Ethics and Information Technology 22 (4):297-305.
    Since the Nuremberg Code and the first Declaration of Helsinki, globally there has been increasing adoption and adherence to procedures for ensuring that human subjects in research are as well informed as possible of the study’s reasons and risks and voluntarily consent to serving as subject. To do otherwise is essentially viewed as violation of the human research subject’s legal and moral rights. However, with the recent philosophical concerns about responsible robotics, the limits and ambiguities of research-subjects ethical codes become (...)
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  31. Retractions: The Good, the Bad, and the Ugly.Vuong Quan-Hoang - 2020 - Nature Index.
    While it seems obvious that withdrawing papers, which contain errors or misconduct, helps to keep the literature healthy, researchers want to avoid retractions at all costs.
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  32. Respect the Author: A Research Ethical Principle for Readers.Jesper Ahlin Marceta - 2019 - Journal of Academic Ethics 19 (2):175-185.
    Much of contemporary research ethics was developed in the latter half of the twentieth century as a response to the unethical treatment of human beings in biomedical research. Research ethical considerations have subsequently been extended to cover topics in the sciences and technology such as data handling, precautionary measures, engineering codes of conduct, and more. However, moral issues in the humanities have gained less attention from research ethicists. This article proposes an ethical principle for reading for research purposes: Respect the (...)
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  33. Ethics of the Scientist Qua Policy Advisor: Inductive Risk, Uncertainty, and Catastrophe in Climate Economics.David Frank - 2019 - Synthese:3123-3138.
    This paper discusses ethical issues surrounding Integrated Assessment Models (IAMs) of the economic effects of climate change, and how climate economists acting as policy advisors ought to represent the uncertain possibility of catastrophe. Some climate economists, especially Martin Weitzman, have argued for a precautionary approach where avoiding catastrophe should structure climate economists’ welfare analysis. This paper details ethical arguments that justify this approach, showing how Weitzman’s “fat tail” probabilities of climate catastrophe pose ethical problems for widely used IAMs. The main (...)
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  34. Professional Responsibility: A Deontological Case-Study Approach.Iñaki Xavier Larrauri Pertierra - 2019 - Solidarity: The Journal of Catholic Social Thought and Secular Ethics 8 (2):1-22.
    Kantian Deontological Ethics concerns itself with the will as grounded in universalisable maxims. Such maxims are in turn based on rationally conceived laws that, in a professional setting, find expression in the autonomously made agreements constituting professional protocols and regulations. When applied to a case-study wherein public safety has been possibly jeopardised by company products, we can argue for priority in the agreed-to responsibility towards the good of professional autonomy, expressed as a rational mandate of nondisclosure of confidential product information, (...)
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  35. Why Responsible Innovation.Rene Von Schomberg - 2019 - In Rene Von Schomberg & Jonathan Hankins (eds.), International Handbook on Responsible Innovation. A Global Resource. Cheltenham, UK: pp. 12-32.
    Responsible Research and Innovation (RRI) reflects an innovation paradigm that acknowledges that market innovations do not automatically deliver on socially desirable objectives, and requires a broad governance of knowledge coalitions of governmental bodies as well as industrial and societal actors to address market deficits. Responsible Innovation should be understood as a new paradigm for innovation which requires institutional changes in the research and innovation system and the public governance of the economy. It also requires the institutionalisation of an ethics of (...)
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  36. Educational Equipoise and the Educational Misconception; Lessons From Bioethics.Gil Hersch - 2018 - Teaching and Learning Inquirey 6 (2):3-15.
    Some advances in bioethics regarding ethical considerations that arise in the context of medical research can also be relevant when thinking about the ethical considerations that arise in the context of SoTL research. In this article, I aim to bring awareness to two potential ethical challenges SoTL researchers might face when playing a dual role of teacher and researcher that are similar to the challenges physicians face in their dual role of physician and researcher. In this article, I argue that (...)
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  37. Consent in Clinical Research.Collin O'Neil - 2018 - In Andreas Müller & Peter Schaber (eds.), The Routledge Handbook of the Ethics of Consent. New York, USA: Routledge. pp. 297-310.
    This article addresses two areas of continuing controversy about consent in clinical research: the question of when consent to low risk research is necessary, and the question of when consent to research is valid. The article identifies a number of considerations relevant to determining whether consent is necessary, chief of which is whether the study would involve subjects in ways that would (otherwise) infringe their rights. When consent is necessary, there is a further question of under what conditions consent is (...)
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  38. Etică și integritate academică.Emanuel Socaciu, Constantin Vica, Emilian Mihailov, Toni Gibea, Valentin Muresan & Mihaela Constantinescu - 2018 - Bucharest: Editura Universității din București.
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  39. “How Did Researchers Get It so Wrong?” The Acute Problem of Plagiarism in Vietnamese Social Sciences and Humanities.Quan-Hoang Vuong - 2018 - European Science Editing 44 (3):56-58.
    This paper presents three cases of research ethics violations in the social sciences and humanities that involved major educational institutions in Vietnam. The violations share two common points: the use of sophistry by the accused perpetrators and their sympathisers, and the relative ease with which they succeeded unpunished. The strategies the violators used to avoid punishment could be summarised as: (i) relying on people not paying enough attention when asked to do something relatively quickly, (ii) asking for the benefit of (...)
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  40. Pharmacogenomic Inequalities: Strategies for Justice in Biomedical Research and Healthcare.Giovanni De Grandis - 2017 - Diametros 51:153-172.
    The paper discusses the possibility that the benefits of pharmacogenomics will not be distributed equally and will create orphan populations. I argue that since these inequalities are not substantially different from those produced by ‘traditional’ drugs and are not generated with the intention to discriminate, their production needs not be unethical. Still, the final result is going against deep-seated moral feelings and intuitions, as well as broadly accepted principles of just distribution of health outcomes and healthcare. I thus propose two (...)
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  41. Ethical but Upsetting Geoscience Research: A Case Study.Thomas Pölzler & Florian Ortner - 2017 - Annals of Geophysics 60 (7):1-6.
    Geoscience research may upset people even though it is ethically acceptable. In this paper we attempt to explore three questions about such research. It will turn out that (1) under most circumstances ethical but upsetting geoscience research is morally permissible, (2) revising this research in response to upset-induced external interference is morally impermissible in the absence of strong countervailing pragmatic reasons and attempts to reduce upset, and (3) potentially upsetting geoscience research ought to be communicated truthfully and tailored to each (...)
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  42. Un llamado ético a la inclusión de mujeres embarazadas en investigación: Reflexiones del Foro Global de Bioética en Investigación.Carla Saenz, Jackeline Alger, Juan Pablo Beca, José Belizán, María Luisa Cafferata, Julio Arturo Canario Guzman, Jesica Candanedo, Lissette Duque, Lester Figueroa, Ana Garcés, Lionel Gresh, Ida Cristina Gubert, Dirce Guilhem, Gabriela Guz, Gustavo Kaltwasser, Roxana Lescano, Florencia Luna, Alexandrina Cardelli, Ignacio Mastroleo, Irene Melamed, Agueda Muñoz del Carpio Toia, Ricardo Palacios, Gloria Palma, Sofía Salas, Xochitl Sandoval, Sergio Surugi de Siqueira, Hans Vásquez & Bertha Villela de Vega - 2017 - Revista Panamericana de Salud Pública 41 (e13):1-2.
    El Foro Global de Bioética en Investigación (GFBR por sus siglas en inglés) se reunió el 3 y 4 de noviembre en Buenos Aires, Argentina, con el objetivo de discutir la ética de la investigación con mujeres embarazadas. El GFBR es una plataforma mundial que congrega a actores clave con el objetivo de promover la investigación realizada de manera ética, fortalecer la ética de la investigación en salud, particularmente en países de ingresos bajos y medios, y promover colaboración entre países (...)
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  43. Menyemai Tradisi Riset Secara Sungguh-Sungguh.Moch Najib Yuliantoro - 2017 - In Iwan Kuswandi (ed.), Teori Praktis Menyusun Proposal Penelitian. Yogyakarta: Penerbit Lintas Nalar.
    "Buku ini berguna bukan saja untuk mahasiswa, dosen atau peneliti, namun juga kepada siapa saja yang ingin memahami cara mempersiapkan suatu penelitian secara sungguh-sungguh. Bahasa yang digunakan dalam buku ini mudah dipahami, ditambah tebaran referensi dari sumber-sumber terpercaya, sehingga menjadikan buku ini begitu berharga." -- Pengantar Buku "Teori Praktis Menyusun Proposal Penelitian" karya Iwan Kuswandi (Penerbit Lintas Nalar, 2017).
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  44. Should Research Ethics Encourage the Production of Cost-Effective Interventions?Govind Persad - 2016 - In Daniel Strech & Marcel Mertz (eds.), Ethics and Governance of Biomedical Research: Theory and Practice. Springer. pp. 13-28.
    This project considers whether and how research ethics can contribute to the provision of cost-effective medical interventions. Clinical research ethics represents an underexplored context for the promotion of cost-effectiveness. In particular, although scholars have recently argued that research on less-expensive, less-effective interventions can be ethical, there has been little or no discussion of whether ethical considerations justify curtailing research on more expensive, more effective interventions. Yet considering cost-effectiveness at the research stage can help ensure that scarce resources such as tissue (...)
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  45. Introducción al problema de la continuidad del tratamiento beneficioso para los sujetos de investigación.Ignacio Mastroleo - 2015 - In Jorge Alberto Álvarez Díaz (ed.), Ensayos sobre ética de la salud. Ciudad de México: Universidad Autónoma Metropolitana - Unidad Xochimilco. pp. 67 - 99.
    ¿Qué ocurre con la continuidad del tratamiento de los sujetos de investigación después de que realizan la última visita del ensayo en el que participan? En algunos casos, la falta de continuidad de atención de la salud apropiada podría poner en peligro la salud de estas personas. Por lo tanto, es probable que los sujetos de investigación que al terminar su participación en un ensayo todavía se encuentran enfermos, necesiten continuar con el tratamiento en estudio u otra atención de la (...)
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  46. Measuring Openness and Evaluating Digital Academic Publishing Models: Not Quite the Same Business.Giovanni De Grandis & Yrsa Neuman - 2014 - The Journal of Electronic Publishing 17 (3).
    In this article we raise a problem, and we offer two practical contributions to its solution. The problem is that academic communities interested in digital publishing do not have adequate tools to help them in choosing a publishing model that suits their needs. We believe that excessive focus on Open Access (OA) has obscured some important issues; moreover exclusive emphasis on increasing openness has contributed to an agenda and to policies that show clear practical shortcomings. We believe that academic communities (...)
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  47. Consideraciones sobre las obligaciones posinvestigación en la Declaración de Helsinki 2013.Ignacio Mastroleo - 2014 - Revista de Bioética y Derecho 31:51-65.
    El problema de la transición de los participantes desde una investigación hacia la atención de la salud apropiada es un problema global. La publicación de una nueva versión de la Declaración de Helsinki es una excelente oportunidad para repensar este problema. Según mi interpretación, la Declaración de Helsinki 2013 introduce dos tipos diferentes de obligaciones posinvestigación, a saber, (1) obligaciones de acceso a atención de la salud y (2) obligaciones de acceso a información. Los beneficiarios pretendidos de estas obligaciones son (...)
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  48. Wissenschaft Ohne Wahrheit Und Erkenntnis. Das Problem Epistemischer Verantwortung Am Beispiel Empirieferner Computersimulationen.Eckhart Arnold - 2013 - In Rafaela Hillerbrand & Florian Steger (eds.), Praxisfelder Angewandter Ethik. Ethische Orientierung in Medizin, Politik, Technik Und Wirtschaft. Paderborn: Mentis Verlag. pp. 309-331.
    Epistemic Responsibility means that scientists are responsible for their research being suitable to contribute to our understanding of the world, or at least some part of the world. As will be shown with the example of computer simulations in social sciences, this is unfortunately far from being understood as a matter of course. Rather, there exist whole research traditions in which the bulk of the contributions is quite free from any tangible purpose of enhancing our knowledge about anything. This essay (...)
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  49. Publication Ethics in Biomedical Journals From Countries in Central and Eastern Europe.Mindaugas Broga, Goran Mijaljica, Marcin Waligora, Aime Keis & Ana Marusic - 2013 - Science and Engineering Ethics (1):1-11.
    Publication ethics is an important aspect of both the research and publication enterprises. It is particularly important in the field of biomedical science because published data may directly affect human health. In this article, we examine publication ethics policies in biomedical journals published in Central and Eastern Europe. We were interested in possible differences between East European countries that are members of the European Union (Eastern EU) and South-East European countries (South-East Europe) that are not members of the European Union.The (...)
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  50. Luces y sombras en la investigación clínica.Rafael Dal-Re, Xavier Carné & Diego Gracia (eds.) - 2013 - Triacastela, Fundació Víctor Grífols I Lucas.
    La investigación clínica, entendida como la búsqueda de soluciones para los problemas que acechan a la salud es, por su objetivo, una de las actividades de mayor trascendencia para el ser humano. Esta obra colectiva, como su propio título indica, explora no solo lo mucho que de positivo (las luces) tiene la investigación clínica, cómo se realiza, qué problemas encuentra y qué soluciones se plantean, sino también algunos aspectos negativos (las sombras) que la comunidad científica ha sido, hasta la fecha, (...)
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