Results for 'Data ethics'

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  1.  78
    Big Data Ethics.Nicolae Sfetcu - manuscript
    Big Data ethics involves adherence to the concepts of right and wrong behavior regarding data, especially personal data. Big Data ethics focuses on structured or unstructured data collectors and disseminators. Big Data ethics is supported, at EU level, by extensive documentation, which seeks to find concrete solutions to maximize the value of Big Data without sacrificing fundamental human rights. The European Data Protection Supervisor (EDPS) supports the right to privacy (...)
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  2. Big Data Ethics in Research.Nicolae Sfetcu - manuscript
    The main problems faced by scientists in working with Big Data sets, highlighting the main ethical issues, taking into account the legislation of the European Union. After a brief Introduction to Big Data, the Technology section presents specific research applications. There is an approach to the main philosophical issues in Philosophical Aspects, and Legal Aspects with specific ethical issues in the EU Regulation on the protection of natural persons with regard to the processing of personal data and (...)
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  3. Introduction to Data Ethics.James Brusseau - 2018 - In The Business Ethics Workshop, 3rd Edition. Boston, USA: Boston Academic Publishing / Flatworld Knowledge. pp. 349-376.
    An Introduction to data ethics, focusing on questions of privacy and personal identity in the economic world as it is defined by big data technologies, artificial intelligence, and algorithmic capitalism. -/- Originally published in The Business Ethics Workshop, 3rd Edition, by Boston Acacdemic Publishing / FlatWorld Knowledge.
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  4. What is Data Ethics?Luciano Floridi & Mariarosaria Taddeo - 2016 - Philosophical Transactions of the Royal Society A 374 (2083).
    This theme issue has the founding ambition of landscaping Data Ethics as a new branch of ethics that studies and evaluates moral problems related to data (including generation, recording, curation, processing, dissemination, sharing, and use), algorithms (including AI, artificial agents, machine learning, and robots), and corresponding practices (including responsible innovation, programming, hacking, and professional codes), in order to formulate and support morally good solutions (e.g. right conducts or right values). Data Ethics builds on the (...)
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  5. The Ethical Imperatives of the COVID 19 Pandemic: A Review From Data Ethics.Gabriela Arriagada Bruneau, Vincent C. Müller & Mark S. Gilthorpe - 2020 - Veritas: Revista de Filosofía y Teología 46:13-35.
    In this review, we present some ethical imperatives observed in this pandemic from a data ethics perspective. Our exposition connects recurrent ethical problems in the discipline, such as, privacy, surveillance, transparency, accountability, and trust, to broader societal concerns about equality, discrimination, and justice. We acknowledge data ethics role as significant to develop technological, inclusive, and pluralist societies. - - - Resumen: En esta revisión, exponemos algunos de los imperativos éticos observados desde la ética de datos en (...)
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  6.  52
    Data Frauds, Health Risks, and the Growing Question of Ethics During the COVID-19 Pandemic.Vuong Quan-Hoang, Le Tam-Tri & Nguyen Minh-Hoang - manuscript
    In this essay, we advocate that the issue of health data ethics should no longer be considered on the level of individual scientists or research labs, but rather as a problem involving all stakeholders, from publishers, funders, ethical committees to governments, for the sake of research integrity.
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  7. Data Science and Mass Media: Seeking a Hermeneutic Ethics of Information.Christine James - 2015 - Proceedings of the Society for Phenomenology and Media, Vol. 15, 2014, Pages 49-58 15 (2014):49-58.
    In recent years, the growing academic field called “Data Science” has made many promises. On closer inspection, relatively few of these promises have come to fruition. A critique of Data Science from the phenomenological tradition can take many forms. This paper addresses the promise of “participation” in Data Science, taking inspiration from Paul Majkut’s 2000 work in Glimpse, “Empathy’s Impostor: Interactivity and Intersubjectivity,” and some insights from Heidegger’s "The Question Concerning Technology." The description of Data Science (...)
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  8. Ethics of Identity in the Time of Big Data.James Brusseau - 2019 - First Monday 24 (5-6):00-11.
    Compartmentalizing our distinct personal identities is increasingly difficult in big data reality. Pictures of the person we were on past vacations resurface in employers’ Google searches; LinkedIn which exhibits our income level is increasingly used as a dating web site. Whether on vacation, at work, or seeking romance, our digital selves stream together. One result is that a perennial ethical question about personal identity has spilled out of philosophy departments and into the real world. Ought we possess one, unified (...)
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  9. Ethics of Identity in the Time of Big Data - Delivered at 25th Annual International Vincentian Business Ethics Conference (IVBEC), 2018, St. John’s University, New York.James Brusseau - manuscript
    According to Facebook’s Mark Zuckerberg, big data reality means, “The days of having a different image for your co-workers and for others are coming to an end, which is good because having multiple identities represents a lack of integrity.” Two sets of questions follow. One centers on technology and asks how big data mechanisms collapse our various selves (work-self, family-self, romantic-self) into one personality. The second question set shifts from technology to ethics by asking whether we want (...)
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  10. Five Ethical Challenges for Data-Driven Policing.Jeremy Davis, Duncan Purves, Juan Gilbert & Schuyler Sturm - forthcoming - AI and Ethics.
    This paper synthesizes scholarship from several academic disciplines to identify and analyze five major ethical challenges facing data-driven policing. Because the term “data-driven policing” emcompasses a broad swath of technologies, we first outline several data-driven policing initiatives currently in use in the United States. We then lay out the five ethical challenges. Certain of these challenges have received considerable attention already, while others have been largely overlooked. In many cases, the challenges have been articulated in the context (...)
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  11.  53
    Ethical Medical Data Donation: A Pressing Issue.Jenny Krutzinna & Luciano Floridi - 2019 - In Jenny Krutzinna & Luciano Floridi (eds.), The ethics of medical data donation.
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  12. The Ethics of Uncertainty for Data Subjects.Philip Nickel - 2019 - In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74.
    Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. (...)
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  13. Ethical Issues of 'Morality Mining': When the Moral Identity of Individuals Becomes a Focus of Data-Mining.Markus Christen, Mark Alfano, Endre Bangerter & Daniel Lapsley - 2013 - In Hakikur Rahman & I. Ramos (eds.), Ethical Data Mining Applications for Socio-Economic Development. IGI Global. pp. 1-21.
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  14. Engaging the Public in Ethical Reasoning About Big Data.Justin Anthony Knapp - 2016 - In Soren Adam Matei & Jeff Collman (eds.), Ethical Reasoning in Big Data: An Exploratory Analysis. Springer. pp. 43-52.
    The public constitutes a major stakeholder in the debate about, and resolution of privacy and ethical The public constitutes a major stakeholder in the debate about, and resolution of privacy and ethical about Big Data research seriously and how to communicate messages designed to build trust in specific big data projects and the institution of science in general. This chapter explores the implications of various examples of engaging the public in online activities such as Wikipedia that contrast with (...)
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  15.  98
    Soft Ethics: Its Application to the General Data Protection Regulation and its Dual Advantage.Luciano Floridi - 2018 - Philosophy and Technology 31 (1):163-167.
    In previous works (Floridi 2018) I introduced the distinction between hard ethics (which may broadly be described as what is morally right and wrong independently of whether something is legal or illegal), and soft or post-compliance ethics (which focuses on what ought to be done over and above existing legislation). This paper analyses the applicability of soft ethics to the General Data Protection Regulation and advances the theory that soft ethics has a dual advantage—as both (...)
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  16. An Ethics Framework for Big Data in Health and Research.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun, Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):227-254.
    Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the (...)
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  17.  94
    Enabling Posthumous Medical Data Donation: A Plea for the Ethical Utilisation of Personal Health Data.Luciano Floridi, Mariarosaria Taddeo & Jenny Krutzinna - 2019 - In Jenny Krutzinna & Luciano Floridi (eds.), The Ethics of Medical Data Donation. Springer Verlag.
    This article argues that personal medical data should be made available for scientific research, by enabling and encouraging individuals to donate their medical records once deceased, in a way similar to how they can already donate organs or bodies. This research is part of a project on posthumous medical data donation developed by the Digital Ethics Lab at the Oxford Internet Institute. Ten arguments are provided to support the need to foster posthumous medical data donation. Two (...)
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  18.  61
    Enabling Posthumous Medical Data Donation: An Appeal for the Ethical Utilisation of Personal Health Data.Jenny Krutzinna, Mariarosaria Taddeo & Luciano Floridi - 2019 - Science and Engineering Ethics 25 (5):1357-1387.
    This article argues that personal medical data should be made available for scientific research, by enabling and encouraging individuals to donate their medical records once deceased, similar to the way in which they can already donate organs or bodies. This research is part of a project on posthumous medical data donation developed by the Digital Ethics Lab at the Oxford Internet Institute at the University of Oxford. Ten arguments are provided to support the need to foster posthumous (...)
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  19. Consent and the Ethical Duty to Participate in Health Data Research.Angela Ballantyne & G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (6):392-396.
    The predominant view is that a study using health data is observational research and should require individual consent unless it can be shown that gaining consent is impractical. But recent arguments have been made that citizens have an ethical obligation to share their health information for research purposes. In our view, this obligation is sufficient ground to expand the circumstances where secondary use research with identifiable health information is permitted without explicit subject consent. As such, for some studies the (...)
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  20. Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.G. Owen Schaefer, E. Shyong Tai & Shirley Sun - 2019 - Asian Bioethics Review 11 (3):275-288.
    As opposed to a ‘one size fits all’ approach, precision medicine uses relevant biological, medical, behavioural and environmental information about a person to further personalize their healthcare. This could mean better prediction of someone’s disease risk and more effective diagnosis and treatment if they have a condition. Big data allows for far more precision and tailoring than was ever before possible by linking together diverse datasets to reveal hitherto-unknown correlations and causal pathways. But it also raises ethical issues relating (...)
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  21.  68
    ICTs, Data and Vulnerable People: A Guide for Citizens.Alexandra Castańeda, Andreas Matheus, Andrzej Klimczuk, Anna BertiSuman, Annelies Duerinckx, Christoforos Pavlakis, Corelia Baibarac-Duignan, Elisabetta Broglio, Federico Caruso, Gefion Thuermer, Helen Feord, Janice Asine, Jaume Piera, Karen Soacha, Katerina Zourou, Katherin Wagenknecht, Katrin Vohland, Linda Freyburg, Marcel Leppée, Marta CamaraOliveira, Mieke Sterken & Tim Woods - 2021 - Bilbao: Upv-Ehu.
    ICTs, personal data, digital rights, the GDPR, data privacy, online security… these terms, and the concepts behind them, are increasingly common in our lives. Some of us may be familiar with them, but others are less aware of the growing role of ICTs and data in our lives - and the potential risks this creates. These risks are even more pronounced for vulnerable groups in society. People can be vulnerable in different, often overlapping, ways, which place them (...)
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  22.  88
    Data and the Good?Daniel Susser - 2022 - Surveillance and Society 20 (3):297-301.
    Surveillance studies scholars and privacy scholars have each developed sophisticated, important critiques of the existing data-driven order. But too few scholars in either tradition have put forward alternative substantive conceptions of a good digital society. This, I argue, is a crucial omission. Unless we construct new “sociotechnical imaginaries,” new understandings of the goals and aspirations digital technologies should aim to achieve, the most surveillance studies and privacy scholars can hope to accomplish is a less unjust version of the technology (...)
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  23. Data, Privacy, and the Individual.Carissa Véliz - 2020 - Center for the Governance of Change.
    The first few years of the 21st century were characterised by a progressive loss of privacy. Two phenomena converged to give rise to the data economy: the realisation that data trails from users interacting with technology could be used to develop personalised advertising, and a concern for security that led authorities to use such personal data for the purposes of intelligence and policing. In contrast to the early days of the data economy and internet surveillance, the (...)
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  24. I Know What You Will Do Next Summer: Informational Privacy and the Ethics of Data Analytics.Jakob Mainz - 2021 - Dissertation, Aalborg University
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  25. Open Data, Open Review and Open Dialogue in Making Social Sciences Plausible.Quan-Hoang Vuong - 2017 - Nature: Scientific Data Updates 2017.
    Nowadays, protecting trust in social sciences also means engaging in open community dialogue, which helps to safeguard robustness and improve efficiency of research methods. The combination of open data, open review and open dialogue may sound simple but implementation in the real world will not be straightforward. However, in view of Begley and Ellis’s (2012) statement that, “the scientific process demands the highest standards of quality, ethics and rigour,” they are worth implementing. More importantly, they are feasible to (...)
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  26.  48
    The Canary in the Gold Mine: Ethics, Privacy, and Big Data Analytics.William H. Harwood - 2019 - Dialogue and Universalism 29 (3):141-150.
    This paper offers a sketch of the complicated conflicts which arise—and metastasize seemingly daily—in the era of Big Data. Given the public’s ubiquitous-yet-ostensibly-voluntary data surrender, and industry’s ubiquitous-yet-ostensibly-anodyne collection of the same, inaction is not an option for any near-just society. By revisiting the philosophical basis for Panoptic apparatus, sketching the tumultuous history of US contract law trying to protect the public from itself, and comparing existing industry codes for similarly-situated—read: terrifyingly invasive—fields, the paper will provide a preliminary (...)
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  27. Why Data Privacy is Key To a Smart Energy Future.Carissa Véliz & Philipp Grunewald - 2018 - Nature Energy 3:702-704.
    The ability to collect fine-grained energy data from smart meters has benefits for utilities and consumers. However, a proactive approach to data privacy is necessary to maximize the potential of these data to support low-carbon energy systems, and innovative business models.
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  28. Ethical Issues in Text Mining for Mental Health.Joshua Skorburg & Phoebe Friesen - forthcoming - In M. Dehghani & R. Boyd (ed.), The Atlas of Language Analysis in Psychology.
    A recent systematic review of Machine Learning (ML) approaches to health data, containing over 100 studies, found that the most investigated problem was mental health (Yin et al., 2019). Relatedly, recent estimates suggest that between 165,000 and 325,000 health and wellness apps are now commercially available, with over 10,000 of those designed specifically for mental health (Carlo et al., 2019). In light of these trends, the present chapter has three aims: (1) provide an informative overview of some of the (...)
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  29.  71
    Data.Luciano Floridi - 2008 - In William A. Darity (ed.), International Encyclopedia of the Social Sciences.
    The word data (sing. datum) is originally Latin for “things given or granted”. Because of such a humble and generic meaning, the term enjoys considerable latitude both in its technical and in its common usage, for almost anything can be referred to as a “thing given or granted” (Cherry [1978]). With some reasonable approximation, four principal interpretations may be identified in the literature. The first three captures part of the nature of the concept and are discussed in the next (...)
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  30. Ethics for Records and Information Management.Norman A. Mooradian - 2018 - Chicago, IL, USA: American Library Association.
    The scope and reach of information, driven by the explosive growth of information technologies and content types, has expanded dramatically over the past 30 years. The consequences of these changes to records and information management (RIM) professionals are profound, necessitating not only specialized knowledge but added responsibilities. RIM professionals require a professional ethics to guide them in their daily practice and to form a basis for developing and implementing organizational policies, and Mooradian’s new book provides a rigorous outline of (...)
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  31. Research Participants’ Perceptions and Views on Consent for Biobank Research: A Review of Empirical Data and Ethical Analysis.Flavio D'Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.
    Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of socio-empirical research (...)
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  32.  62
    Ethics and Artificial Intelligence.Mark Ryan - 2021 - In Encyclopedia of Business and Professional Ethics. pp. 1-5.
    A subdiscipline has emerged around AI ethics, which is comprised of a wide array of individuals: computer scientists, ethicists, cognitive scientists, roboticists, legal professionals, economists, sociologists, gender, and race theorists. This has led to a very interesting branch of research, addressing issues surrounding the development and use of AI. This chapter will give a very brief snapshot of some of the most pertinent ethical concerns. Many of the issues in the Big Data Ethics chapter in this collection (...)
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  33.  48
    Microethics for Healthcare Data Science: Attention to Capabilities in Sociotechnical Systems.Mark Graves & Emanuele Ratti - 2021 - The Future of Science and Ethics 6:64-73.
    It has been argued that ethical frameworks for data science often fail to foster ethical behavior, and they can be difficult to implement due to their vague and ambiguous nature. In order to overcome these limitations of current ethical frameworks, we propose to integrate the analysis of the connections between technical choices and sociocultural factors into the data science process, and show how these connections have consequences for what data subjects can do, accomplish, and be. Using healthcare (...)
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  34. Ethics as a Service: A Pragmatic Operationalisation of AI Ethics.Jessica Morley, Anat Elhalal, Francesca Garcia, Libby Kinsey, Jakob Mökander & Luciano Floridi - manuscript
    As the range of potential uses for Artificial Intelligence (AI), in particular machine learning (ML), has increased, so has awareness of the associated ethical issues. This increased awareness has led to the realisation that existing legislation and regulation provides insufficient protection to individuals, groups, society, and the environment from AI harms. In response to this realisation, there has been a proliferation of principle-based ethics codes, guidelines and frameworks. However, it has become increasingly clear that a significant gap exists between (...)
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  35.  66
    Key ethical challenges in the European Medical Information Framework.Luciano Floridi, Christoph Luetge, Ugo Pagallo, Burkhard Schafer, Peggy Valcke, Effy Vayena, Janet Addison, Nigel Hughes, Nathan Lea, Caroline Sage, Bart Vannieuwenhuyse & Dipak Kalra - 2019 - Minds and Machines 29 (3):355-371.
    The European Medical Information Framework project, funded through the IMI programme, has designed and implemented a federated platform to connect health data from a variety of sources across Europe, to facilitate large scale clinical and life sciences research. It enables approved users to analyse securely multiple, diverse, data via a single portal, thereby mediating research opportunities across a large quantity of research data. EMIF developed a code of practice to ensure the privacy protection of data subjects, (...)
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  36. The Temptation of Data-Enabled Surveillance: Are Universities the Next Cautionary Tale?Alan Rubel & Kyle M. L. Jones - 2020 - Communications of the Acm 4 (63):22-24.
    There is increasing concern about “surveillance capitalism,” whereby for-profit companies generate value from data, while individuals are unable to resist (Zuboff 2019). Non-profits using data-enabled surveillance receive less attention. Higher education institutions (HEIs) have embraced data analytics, but the wide latitude that private, profit-oriented enterprises have to collect data is inappropriate. HEIs have a fiduciary relationship to students, not a narrowly transactional one (see Jones et al, forthcoming). They are responsible for facets of student life beyond (...)
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  37. Ethical Pitfalls for Natural Language Processing in Psychology.Mark Alfano, Emily Sullivan & Amir Ebrahimi Fard - forthcoming - In Morteza Dehghani & Ryan Boyd (eds.), The Atlas of Language Analysis in Psychology. Guilford Press.
    Knowledge is power. Knowledge about human psychology is increasingly being produced using natural language processing (NLP) and related techniques. The power that accompanies and harnesses this knowledge should be subject to ethical controls and oversight. In this chapter, we address the ethical pitfalls that are likely to be encountered in the context of such research. These pitfalls occur at various stages of the NLP pipeline, including data acquisition, enrichment, analysis, storage, and sharing. We also address secondary uses of the (...)
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  38. From Public Data to Private Information: The Case of the Supermarket.Vincent C. Müller - 2009 - In Maria Bottis (ed.), Proceedings of the 8th International Conference Computer Ethics: Philosophical Enquiry. Corfu, Greece: Nomiki Bibliothiki. pp. 500-507.
    The background to this paper is that in our world of massively increasing personal digital data any control over the data about me seems illusionary – informational privacy seems a lost cause. On the other hand, the production of this digital data seems a necessary component of our present life in the industrialized world. A framework for a resolution of this apparent dilemma is provided if by the distinction between (meaningless) data and (meaningful) information. I argue (...)
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  39. The Ethical Work That Regulations Will Not Do.Carusi Annamaria & De Grandis Giovanni - 2012 - Information, Communication and Society 15 (1):124-141.
    Ethical concerns in e-social science are often raised with respect to privacy, confidentiality, anonymity and the ethical and legal requirements that govern research. In this article, the authors focus on ethical aspects of e-research that are not directly related to ethical regulatory framework or requirements. These frameworks are often couched in terms of benefits or harms that can be incurred by participants in the research. The authors shift the focus to the sources of value in terms of which benefits or (...)
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  40.  79
    Ethical Issues Concerning the Use of Commercially Available Wearables in Children.Evangelos D. Protopapadakis & Andrie G. Panayiotou - 2022 - Jahr 13 (1):9-22.
    Wearable and mobile technology has advanced in leaps and bounds in the last decade with technological advances creating a role from enhancing healthy living to monitoring and treating disease. However, the discussion about the ethical use of such commercial technology in the community, especially in minors, is lacking behind. In this paper, we first summarize the major ethical concerns that arise from the usage of commercially available wearable technology in children, with a focus on smart watches, highlighting issues around the (...)
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  41.  84
    Towards a Digital Ethics: EDPS Ethics Advisory Group.J. Peter Burgess, Luciano Floridi, Aurélie Pols & Jeroen van den Hoven - 2018 - EDPS Ethics Advisory Group.
    The EDPS Ethics Advisory Group (EAG) has carried out its work against the backdrop of two significant social-political moments: a growing interest in ethical issues, both in the public and in the private spheres and the imminent entry into force of the General Data Protection Regulation (GDPR) in May 2018. For some, this may nourish a perception that the work of the EAG represents a challenge to data protection professionals, particularly to lawyers in the field, as well (...)
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  42. The History of Digital Ethics.Vincent C. Müller - 2022 - In Carissa Véliz (ed.), Oxford handbook of digital ethics. Oxford: Oxford University Press.
    Digital ethics, also known as computer ethics or information ethics, is now a lively field that draws a lot of attention, but how did it come about and what were the developments that lead to its existence? What are the traditions, the concerns, the technological and social developments that pushed digital ethics? How did ethical issues change with digitalisation of human life? How did the traditional discipline of philosophy respond? The article provides an overview, proposing historical (...)
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  43. Ethical Issues of Global Marketing: Avoiding Bad Faith in Visual Representation.Janet Borgerson & Jonathan Schroeder - 2002 - European Journal of Marketing 36 (5/6):570-594.
    This paper examines visual representation from a distinctive, interdisciplinary perspective that draws on ethics, visual studies and critical race theory. Suggests ways to clarify complex issues of representational ethics in marketing communications and marketing representations, suggesting an analysis that makes identity creation central to societal marketing concerns. Analyzes representations of the exotic Other in disparate marketing campaigns, drawing upon tourist promotions, advertisements, and mundane objects in material culture. Moreover, music is an important force in marketing communication: visual representations (...)
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  44. Managerial Ethical Leadership, Ethical Climate and Employee Ethical Behavior: Does Moral Attentiveness Matter?Hussam Al Halbusi, Pablo Ruiz-Palomino, Rafael Morales-Sánchez & Fadi Abdel Muniem - 2021 - Ethical and Behavior 8:2-24.
    Ethical leaders can influence followers’ ethical behaviors by establishing an ethical climate. However, followers’ responses to an ethical climate may also differ according to the amount of attention they devote to moral questions. This study analyzes whether moral attentiveness augments the positive effect of an ethical climate on employees’ ethical behaviors, as well as the indirect effect of ethical leadership on employee ethical behavior through an ethical climate. Data from 270 employees in the Malaysian manufacturing industry indicate that the (...)
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  45. Data and Safety Monitoring Board and the Ratio Decidendi of the Trial.Roger Stanev - 2015 - Journal of Philosophy, Science and Law 15:1-26.
    Decision-making by a Data and Safety Monitoring Board (DSMB) regarding clinical trial conduct and termination is intricate and largely limited by cases and rules. Decision-making by legal jury is also intricate and largely constrained by cases and rules. In this paper, I argue by analogy that legal decision-making, which strives for a balance between competing demands of conservatism and innovation, supplies a good basis to the logic behind DSMB decision-making. Using the doctrine of precedents in legal reasoning as my (...)
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  46. The Ethical Dimensions of Policy Analysis.Douglas MacKay - manuscript
    The field of public policy is dominated by the social sciences. Schools and departments of public policy and public administration are largely populated by economists, political scientists, and sociologists, and the vast majority of work in prestigious public policy journals employs empirical methods. This is unsurprising, in one respect, for collecting data, predicting and identifying the causal impacts of policies, and understanding political institutions and processes are massive, important tasks that require the tools of the social sciences. It is (...)
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  47. The Ethics of Algorithms: Mapping the Debate.Brent Mittelstadt, Patrick Allo, Mariarosaria Taddeo, Sandra Wachter & Luciano Floridi - 2016 - Big Data and Society 3 (2).
    In information societies, operations, decisions and choices previously left to humans are increasingly delegated to algorithms, which may advise, if not decide, about how data should be interpreted and what actions should be taken as a result. More and more often, algorithms mediate social processes, business transactions, governmental decisions, and how we perceive, understand, and interact among ourselves and with the environment. Gaps between the design and operation of algorithms and our understanding of their ethical implications can have severe (...)
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  48. The Ethical Implications of Personal Health Monitoring.Brent Mittelstadt - 2014 - International Journal of Technoethics 5 (2):37-60.
    Personal Health Monitoring (PHM) uses electronic devices which monitor and record health-related data outside a hospital, usually within the home. This paper examines the ethical issues raised by PHM. Eight themes describing the ethical implications of PHM are identified through a review of 68 academic articles concerning PHM. The identified themes include privacy, autonomy, obtrusiveness and visibility, stigma and identity, medicalisation, social isolation, delivery of care, and safety and technological need. The issues around each of these are discussed. The (...)
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  49. The ‘Ethic of Knowledge’ and Responsible Science: Responses to Genetically Motivated Racism.Natan Elgabsi - 2022 - Social Studies of Science 52 (2):303-323.
    This study takes off from the ethical problem that racism grounded in population genetics raises. It is an analysis of four standard scientific responses to the problem of genetically motivated racism, seen in connection with the Human Genome Diversity Project (HGDP): (1) Discriminatory uses of scientific facts and arguments are in principle ‘misuses’ of scientific data that the researcher cannot be further responsible for. (2) In a strict scientific sense, genomic facts ‘disclaim racism’, which means that an epistemically correct (...)
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  50. Ethics After the Information Revolution.Luciano Floridi - 2010 - In The Cambridge Handbook of Information and Computer Ethics. Cambridge: pp. 3-19.
    This chapter discusses some conceptual undercurrents, which flow beneath the surface of the literature on information and computer ethics (ICE). It focuses on the potential impact of Information and Communication Technologies (ICTs) on our lives. Because of their 'data superconductivity', ICTs are well known for being among the most influential factors that affect the ontological friction in the infosphere. As a full expression of techne, the information society has already posed fundamental ethical problems, whose complexity and global dimensions (...)
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