Results for 'Informed consent'

1000+ found
Order:
  1. Informed Consent: What Must Be Disclosed and What Must Be Understood?Joseph Millum & Danielle Bromwich - 2021 - American Journal of Bioethics 21 (5):46-58.
    Over the last few decades, multiple studies have examined the understanding of participants in clinical research. They show variable and often poor understanding of key elements of disclosure, such as expected risks and the experimental nature of treatments. Did the participants in these studies give valid consent? According to the standard view of informed consent they did not. The standard view holds that the recipient of consent has a duty to disclose certain information to the profferer (...)
    Download  
     
    Export citation  
     
    Bookmark   10 citations  
  2. Informed Consent to HIV Cure Research.Danielle Bromwich & Joseph R. Millum - 2017 - Journal of Medical Ethics 43 (2):108-113.
    Trials with highly unfavourable risk–benefit ratios for participants, like HIV cure trials, raise questions about the quality of the consent of research participants. Why, it may be asked, would a person with HIV who is doing well on antiretroviral therapy be willing to jeopardise his health by enrolling in such a trial? We distinguish three concerns: first, how information is communicated to potential participants; second, participants’ motivations for enrolling in potentially high risk research with no prospect of direct benefit; (...)
    Download  
     
    Export citation  
     
    Bookmark   6 citations  
  3. Unethical Informed Consent Caused by Overlooking Poorly Measured Nocebo Effects.Jeremy Howick - 2020 - Journal of Medical Ethics 16:00-03.
    Unlike its friendly cousin the placebo effect, the nocebo effect (the effect of expecting a negative outcome) has been almost ignored. Epistemic and ethical confusions related to its existence have gone all but unnoticed. Contrary to what is often asserted, adverse events following from taking placebo interventions are not necessarily nocebo effects; they could have arisen due to natural history. Meanwhile, ethical informed consent (in clinical trials and clinical practice) has centred almost exclusively on the need to inform (...)
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  4. Informed Consent, Disclosure, and Understanding.Tom Dougherty - 2020 - Philosophy and Public Affairs 48 (2):119-150.
    Download  
     
    Export citation  
     
    Bookmark   4 citations  
  5. Placebo Effects and Informed Consent.Mark Alfano - 2015 - American Journal of Bioethics 15 (10):3-12.
    The concepts of placebos and placebo effects refer to extremely diverse phenomena. I recommend dissolving the concepts of placebos and placebo effects into loosely related groups of specific mechanisms, including expectation-fulfillment, classical conditioning, and attentional-somatic feedback loops. If this approach is on the right track, it has three main implications for the ethics of informed consent. First, because of the expectation-fulfillment mechanism, the process of informing cannot be considered independently from the potential effects of treatment. Obtaining informed (...)
    Download  
     
    Export citation  
     
    Bookmark   14 citations  
  6. Can Informed Consent to Research Be Adapted to Risk?Danielle Bromwich & Annette Rid - 2015 - Journal of Medical Ethics 41 (7):521-528.
    The current ethical and regulatory framework for research is often charged with burdening investigators and impeding socially valuable research. To address these concerns, a growing number of research ethicists argue that informed consent should be adapted to the risks of research participation. This would require less rigorous consent standards in low-risk research than in high-risk research. However, the current discussion is restricted to cases of research in which the risks of research participation are outweighed by the potential (...)
    Download  
     
    Export citation  
     
    Bookmark   3 citations  
  7. Psychotherapy, Placebos, and Informed Consent.Garson Leder - 2021 - Journal of Medical Ethics 47 (7):444-447.
    Several authors have recently argued that psychotherapy, as it is commonly practiced, is deceptive and undermines patients’ ability to give informed consent to treatment. This ‘deception’ claim is based on the findings that some, and possibly most, of the ameliorative effects in psychotherapeutic interventions are mediated by therapeutic common factors shared by successful treatments, rather than because of theory-specific techniques. These findings have led to claims that psychotherapy is, at least partly, likely a placebo, and that practitioners of (...)
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  8. Hormone Replacement Therapy: Informed Consent Without Assessment?Toni C. Saad, Bruce Philip Blackshaw & Daniel Rodger - 2019 - Journal of Medical Ethics 45 (12):1-2.
    Florence Ashley has argued that requiring patients with gender dysphoria to undergo an assessment and referral from a mental health professional before undergoing hormone replacement therapy is unethical and may represent an unconscious hostility towards transgender people. We respond, first, by showing that Ashley has conflated the self-reporting of symptoms with self-diagnosis, and that this is not consistent with the standard model of informed consent to medical treatment. Second, we note that the model of informed consent (...)
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  9. Understanding, Interests and Informed Consent: A Reply to Sreenivasan.Danielle Bromwich - 2015 - Journal of Medical Ethics 41 (4):327-331.
    It is widely agreed that the view of informed consent found in the regulations and guidelines struggles to keep pace with the ever-advancing enterprise of human subjects research. Over the last 10 years, there have been serious attempts to rethink informed consent so that it conforms to our considered judgments about cases where we are confident valid consent has been given. These arguments are influenced by an argument from Gopal Sreenivasan, which apparently shows that a (...)
    Download  
     
    Export citation  
     
    Bookmark   7 citations  
  10. On Nudging and Informed Consent—Four Key Undefended Premises.J. S. Swindell Blumenthal-Barby - 2013 - American Journal of Bioethics 13 (6):31 - 33.
    Download  
     
    Export citation  
     
    Bookmark   8 citations  
  11.  89
    The Impossibility of Reliably Determining the Authenticity of Desires: Implications for Informed Consent.Jesper Ahlin - 2018 - Medicine, Health Care and Philosophy 21 (1):43-50.
    It is sometimes argued that autonomous decision-making requires that the decision-maker’s desires are authentic, i.e., “genuine,” “truly her own,” “not out of character,” or similar. In this article, it is argued that a method to reliably determine the authenticity (or inauthenticity) of a desire cannot be developed. A taxonomy of characteristics displayed by different theories of authenticity is introduced and applied to evaluate such theories categorically, in contrast to the prior approach of treating them individually. The conclusion is drawn that, (...)
    Download  
     
    Export citation  
     
    Bookmark   8 citations  
  12. Reforming Informed Consent: On Disability and Genetic Counseling.Elizabeth Dietz & Joel Michael Reynolds - forthcoming - In Michael J. Deem, Emily Farrow & Robin Grubs (eds.), The Oxford Handbook of Genetic Counseling. Oxford: Oxford University Press.
    Informed consent is a central concept for empirical and theoretical research concerning pregnancy management decisions and is often taken to be one of the more fundamental goals of the profession of genetic counseling. Tellingly, this concept has been seen by disability communities as salutary, despite longstanding critiques made by disability activists, advocates, and scholars concerning practices involved in genetic counseling more generally. In this chapter, we show that the widespread faith in informed consent is misleading and (...)
    Download  
     
    Export citation  
     
    Bookmark  
  13.  41
    Informed Consent as a Fundamental Right: Immunity or Self-determination?Noelia Martinez-Doallo - 2015 - Anuario da Facultade de Dereito da Universidade da Coruña 19:509-518.
    The Spanish Constitutional Court (STC 37/2011, 28th March, among others) has established the right to physical and moral integrity as constitutional foundation for informed consent (article 15 CE). Informed consent has been shaped by the Spanish Constitutional Court as an inhibition duty for physicians, that is to say, the denial of physician’s power in Hohfeld’s wording. Since informed consent is defined as a negative or defense right, understanding it as a legal freedom or a (...)
    Download  
    Translate
     
     
    Export citation  
     
    Bookmark  
  14. Responsible Research for the Construction of Maximally Humanlike Automata: The Paradox of Unattainable Informed Consent.Lantz Fleming Miller - 2020 - Ethics and Information Technology 22 (4):297-305.
    Since the Nuremberg Code and the first Declaration of Helsinki, globally there has been increasing adoption and adherence to procedures for ensuring that human subjects in research are as well informed as possible of the study’s reasons and risks and voluntarily consent to serving as subject. To do otherwise is essentially viewed as violation of the human research subject’s legal and moral rights. However, with the recent philosophical concerns about responsible robotics, the limits and ambiguities of research-subjects ethical (...)
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  15. Informed Consent in Computed Tomography: A Case for Standardization.Casey Rentmeester - 2019 - Radiologic Technology 90 (3):300-306.
    Informed consent has become the most obvious instantiation of patient autonomy in contemporary medicine, though as a practice it does not encompass all spheres of medicine. While diagnostic radiological procedures carry some risk due to the use of radiation, there is no standardized practice of informed consent in the United States. The authors describe the ethical justification of informed consent, the legal background surrounding it, and a brief history of radiology and radiological protection. They (...)
    Download  
     
    Export citation  
     
    Bookmark  
  16.  68
    Telling the Truth About Pain: Informed Consent and the Role of Expectation in Pain Intensity.Nada Gligorov - 2018 - American Journal of Bioethics Neuroscience 9 (3):173-182.
    Health care providers are expected both to relieve pain and to provide anticipatory guidance regarding how much a procedure is going to hurt. Fulfilling those expectations is complicated by the cognitive modulation of pain perception. Warning people to expect pain or setting expectations for pain relief not only influences their subjective experience, but it also alters how nociceptive stimuli are processed throughout the sensory and discriminative pathways in the brain. In light of this, I reconsider the characterization of placebo analgesia (...)
    Download  
     
    Export citation  
     
    Bookmark   12 citations  
  17. Understanding the Relationship Between Autonomy and Informed Consent: A Response to Taylor.Lucie White - 2013 - Journal of Value Inquiry 47 (4):483-491.
    Medical ethicists conventionally assume that the requirement to employ informed consent procedures is grounded in autonomy. It seems intuitively plausible that providing information to an agent promotes his autonomy by better allowing him to steer his life. However, James Taylor questions this view, arguing that any notion of autonomy that grounds a requirement to inform agents turns out to be unrealistic and self-defeating. Taylor thus contends that we are mistaken about the real theoretical grounds for informed (...) procedures. Through analysing Taylor's arguments and showing that they do not stand up to scrutiny, it is possible to defend the view that autonomy is a plausible theoretical basis for informed consent, and to enhance our understanding of the relationship between autonomy and informed consent. (shrink)
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  18.  44
    Children's Informed Consent to Treatment: Is the Law an Ass?D. Dickenson - 1994 - Journal of Medical Ethics 20 (4):205-222.
    Anomaly in English law between age of children's permitted consent to treatment and much lower age of criminal responsibility.
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  19.  77
    How to Obtain Informed Consent for Psychotherapy: A Reply to Criticism.Garson Leder - 2021 - Journal of Medical Ethics 47 (7):450-451.
    In ‘Psychotherapy, Placebos and Informed Consent’, I argued that the minimal standard for informed consent in psychotherapy requires that ‘patients understand that there is currently no consensus about the mechanisms of change in psychotherapy, and that the therapy on offer…is based on disputed theoretical foundations’, and that the dissemination of this information is compatible with the delivery of many theory-specific forms of psychotherapy (including cognitive behavioural therapy [CBT]). I also argued that the minimal requirements for (...) consent do not include information about the role of therapeutic common factors in healing (e.g., expectancy effects and therapist effects); practitioners may discuss the common factors with patients, but they are not part of the ‘core set’ of information necessary to obtain informed consent. In a recent reply, Charlotte Blease criticises these two arguments by claiming they are not supported by empirical findings about the therapeutic common factors. Blease’s response is based on serious misunderstandings of both CBT and what the common factor findings actually find. Nevertheless, addressing the reasons for these misunderstandings is instructive and gives us an opportunity to clarify what, exactly, needs to be explained to patients in order to obtain informed consent for psychotherapy. (shrink)
    Download  
     
    Export citation  
     
    Bookmark  
  20.  16
    Normative Framework of Informed Consent in Clinical Research in Germany, Poland, and Russia.Marcin Orzechowski, Katarzyna Woniak, Cristian Timmermann & Florian Steger - 2021 - BMC Medical Ethics 22 (1):1-10.
    Background: Biomedical research nowadays is increasingly carried out in multinational and multicenter settings. Due to disparate national regulations on various ethical aspects, such as informed consent, there is the risk of ethical compromises when involving human subjects in research. Although the Declaration of Helsinki is the point of reference for ethical conduct of research on humans, national normative requirements may diverge from its provisions. The aim of this research is to examine requirements on informed consent in (...)
    Download  
     
    Export citation  
     
    Bookmark  
  21. Deception in Social Science Research: Is Informed Consent Possible?Alan Soble - 1978 - Hastings Center Report 8 (5):40-46.
    Deception of subjects is used frequently in the social sciences. Examples are provided. The ethics of experimental deception are discussed, in particular various maneuvers to solve the problem. The results have implications for the use of deception in the biomedical sciences.
    Download  
     
    Export citation  
     
    Bookmark   5 citations  
  22. The Right to Informed Consent from Georg Jellinek' Status Theory.Noelia Martinez-Doallo - 2017 - Ius Et Scientia 1 (3):206-216.
    Jellinek has defined “status” as the relationship between the State and the individual that qualifies to the last one. His theory distinguishes four types: passive or subiectionis, negative or libertatis, positive or civitatis and active or status of active citizenship. Besides controversies about its validity, it is aimed here to relate Jellinek’s contribution to the conception of informed consent developed by the Spanish Constitutional Court, as a duty to refrain for healthcare professionals (STC 37/2011, among others), i.e. a (...)
    Download  
    Translate
     
     
    Export citation  
     
    Bookmark  
  23.  31
    Objectually Understanding Informed Consent.Daniel A. Wilkenfeld - 2021 - Analytic Philosophy 62 (1):33-56.
    Analytic Philosophy, Volume 62, Issue 1, Page 33-56, March 2021.
    Download  
     
    Export citation  
     
    Bookmark  
  24.  47
    True Wishes: The Philosophy and Developmental Psychology of Informed Consent.Donna Dickenson & David Jones - 1995 - Philosophy, Psychiatry, and Psychology 2 (4):287-303.
    In this article we explore the underpinnings of what we view as a recent "backlash" in English law, a judicial reaction against considering children's and young people's expressions of their own feelings about treatment as their "true" wishes. We use this case law as a springboard to conceptual discussion, rooted in (a) empirical psychological work on child development and (b) three key philosophical ideas: rationality, autonomy and identity. Using these three concepts, we explore different understandings of our central theme, true (...)
    Download  
     
    Export citation  
     
    Bookmark  
  25.  34
    Response to Open Peer Commentaries on “Informed Consent: What Must Be Disclosed and What Must Be Understood?”.Danielle Bromwich & Joseph Millum - 2021 - American Journal of Bioethics 21 (7):1-5.
    In “Informed Consent: What Must be Disclosed and What Must be Understood?”, we reject a dogma at the heart of research ethics. We demonstrate that the constitutive claim...
    Download  
     
    Export citation  
     
    Bookmark  
  26. The 21st Century Challenge to Autonomy and Informed Consent.Dena S. Davis - 2012 - Les Ateliers de L’Ethique 7 (3):45-58.
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  27.  44
    Mention of Ethical Review and Informed Consent in the Reports of Research Undertaken During the Armed Conflict in Darfur : A Systematic Review.Ghaiath Hussein & Khalifa Elmusharaf - 2019 - Most Recent Articles: Bmc Medical Ethics 20 (40).
    Armed conflict in Darfur, west Sudan since 2003 has led to the influx of about 100 international humanitarian UN and non-governmental organizations to help the affected population. Many of their humanitarian i...
    Download  
     
    Export citation  
     
    Bookmark  
  28. Science and Informed, Counterfactual, Democratic Consent.Arnon Keren - 2015 - Philosophy of Science 82 (5):1284-1295.
    On many science-related policy questions, the public is unable to make informed decisions, because of its inability to make use of knowledge obtained by scientists. Philip Kitcher and James Fishkin have both suggested therefore that on certain science-related issues, public policy should not be decided on by actual democratic vote, but should instead conform to the public’s counterfactual informed democratic decision. Indeed, this suggestion underlies Kitcher’s specification of an ideal of a well-ordered science. This article argues that this (...)
    Download  
     
    Export citation  
     
    Bookmark   3 citations  
  29. Consent and the Ethical Duty to Participate in Health Data Research.Angela Ballantyne & G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (6):392-396.
    The predominant view is that a study using health data is observational research and should require individual consent unless it can be shown that gaining consent is impractical. But recent arguments have been made that citizens have an ethical obligation to share their health information for research purposes. In our view, this obligation is sufficient ground to expand the circumstances where secondary use research with identifiable health information is permitted without explicit subject consent. As such, for some (...)
    Download  
     
    Export citation  
     
    Bookmark   9 citations  
  30. Paternalism, Consent, and the Use of Experimental Drugs in the Military.J. Wolfendale & S. Clarke - 2008 - Journal of Medicine and Philosophy 33 (4):337-355.
    Modern military organizations are paternalistic organizations. They typically recognize a duty of care toward military personnel and are willing to ignore or violate the consent of military personnel in order to uphold that duty of care. In this paper, we consider the case for paternalism in the military and distinguish it from the case for paternalism in medicine. We argue that one can consistently reject paternalism in medicine but uphold paternalism in the military. We consider two well-known arguments for (...)
    Download  
     
    Export citation  
     
    Bookmark   6 citations  
  31. Habits, Nudges, and Consent.Ezio Di Nucci - 2013 - American Journal of Bioethics 13 (6):27 - 29.
    I distinguish between 'hard nudges' and 'soft nudges', arguing that it is possible to show that the latter can be compatible with informed consent - as Cohen has recently suggested; but that the real challenge is the compatibility of the former. Hard nudges are the more effective nudges because they work on less than conscious mechanisms such as those underlying our habits: whether those influences - which are often beyond the subject's awareness - can be reconciled with (...) consent in health care is the more challenging question. I suggest two directions for possible answers: on the one hand, looking at the growing empirical literature on mindless judgement and behaviour; and on the other hand considering a more diversified conception of consent, which I sketch. (shrink)
    Download  
     
    Export citation  
     
    Bookmark   7 citations  
  32. Consultation, Consent, and the Silencing of Indigenous Communities.Leo Townsend & Dina Lupin Townsend - 2020 - Journal of Applied Philosophy 37 (5):781-798.
    Over the past few decades, Indigenous communities have successfully campaigned for greater inclusion in decision-making processes that directly affect their lands and livelihoods. As a result, two important participatory rights for Indigenous peoples have now been widely recognized: the right to consultation and the right to free, prior and informed consent (FPIC). Although these participatory rights are meant to empower the speech of these communities—to give them a proper say in the decisions that most affect them—we argue that (...)
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  33. Disclosure and Consent to Medical Research Participation.Danielle Bromwich & Joseph Millum - 2013 - Journal of Moral Philosophy 10 (4):195-219.
    Most regulations and guidelines require that potential research participants be told a great deal of information during the consent process. Many of these documents, and most of the scholars who consider the consent process, assume that all this information must be disclosed because it must all be understood. However, a wide range of studies surveying apparently competent participants in clinical trials around the world show that many do not understand key aspects of what they have been told. The (...)
    Download  
     
    Export citation  
     
    Bookmark   11 citations  
  34. Can Children Withhold Consent to Treatment.John Devereux, Donna Dickenson & D. P. H. Jones - 1993 - British Medical Journal 306 (6890):1459-1461.
    A dilemma exists when a doctor is faced with a child or young person who refuses medically indicated treatment. The Gillick case has been interpreted by many to mean that a child of sufficient age and intelligence could validly consent or refuse consent to treatment. Recent decisions of the Court of Appeal on a child's refusal of medical treatment have clouded the issue and undermined the spirit of the Gillick decision and the Children Act 1989. It is now (...)
    Download  
     
    Export citation  
     
    Bookmark   3 citations  
  35. The Ethics of Information: Absolute Risk Reduction and Patient Understanding of Screening.Peter H. Schwartz & Eric M. Meslin - 2008 - Journal of General Internal Medicine 23 (6):867-870.
    Some experts have argued that patients should routinely be told the specific magnitude and absolute probability of potential risks and benefits of screening tests. This position is motivated by the idea that framing risk information in ways that are less precise violates the ethical principle of respect for autonomy and its application in informed consent or shared decisionmaking. In this Perspective, we consider a number of problems with this view that have not been adequately addressed. The most important (...)
    Download  
     
    Export citation  
     
    Bookmark   8 citations  
  36.  98
    Plenty to Worry About: Consent, Control, and Anxiety.Danielle Bromwich - 2012 - American Journal of Bioethics 12 (3):35-36.
    The American Journal of Bioethics, Volume 12, Issue 3, Page 35-36, March 2012.
    Download  
     
    Export citation  
     
    Bookmark   3 citations  
  37. The Need for Donor Consent in Mitochondrial Replacement.G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (12):825-829.
    Mitochondrial replacement therapy requires oocytes of women whose mitochondrial DNA will be transmitted to resultant children. These techniques are scientifically, ethically and socially controversial; it is likely that some women who donate their oocytes for general in vitro fertilisation usage would nevertheless oppose their genetic material being used in MRT. The possibility of oocytes being used in MRT is therefore relevant to oocyte donation and should be included in the consent process when applicable. In present circumstances, specific consent (...)
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  38. Research Participants’ Perceptions and Views on Consent for Biobank Research: A Review of Empirical Data and Ethical Analysis.Flavio D'Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.
    Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of (...)
    Download  
     
    Export citation  
     
    Bookmark   4 citations  
  39.  56
    Consent in Children.Donna Dickenson - 1998 - Current Opinion in Psychiatry 11:389-393.
    Children and young people under 18 years old should no longer be regarded as incompetent to give or withhold consent in decisions involving their health care, Recent research suggests a functional test of cognitive and emotional maturity, rather than a strict age cut-off point. However, it is often difficult to implement these recommendations in practice, not least because the law is, if anything, increasingly 'hard-line' about children's autonomy.
    Download  
     
    Export citation  
     
    Bookmark  
  40. Public Knowledge and Attitudes Towards Consent Policies for Organ Donation in Europe. A Systematic Review.Alberto Molina Pérez, David Rodríguez-Arias, Janet Delgado-Rodríguez, Myfanwy Morgan, Mihaela Frunza, Gurch Randhawa, Jeantine Reiger-Van de Wijdeven, Eline Schiks, Sabine Wöhlke & Silke Schicktanz - 2019 - Transplantation Reviews 33 (1):1-8.
    Background: Several countries have recently changed their model of consent for organ donation from opt-in to opt-out. We undertook a systematic review to determine public knowledge and attitudes towards these models in Europe. Methods: Six databases were explored between 1 January 2008 and 15 December 2017. We selected empirical studies addressing either knowledge or attitudes towards the systems of consent for deceased organ donation by lay people in Europe, including students. Study selection, data extraction, and quality assessment were (...)
    Download  
     
    Export citation  
     
    Bookmark   2 citations  
  41.  96
    Consent by Residence: A Defense.Stephen Puryear - 2021 - European Journal of Political Theory 20 (3):529-546.
    The traditional view according to which we adults tacitly consent to a state’s lawful actions just by living within its borders—the residence theory—is now widely rejected by political philosophers. According to the critics, this theory fails because consent must be (i) intentional, (ii) informed, and (iii) voluntary, whereas one’s continued residence within a state is typically none of these things. Few people intend to remain within the state in which they find themselves, and few realize that by (...)
    Download  
     
    Export citation  
     
    Bookmark  
  42.  60
    Can Children and Young People Consent to Be Tested for Adult Onset Genetic Disorders.Donna Dickenson - 1999 - British Medical Journal 318:1063-1066.
    What should we do about children and young people who want to be tested for incurable, adult onset, genetic disorders? In particular, what should a general practitioner do if he or she believes the young person is competent to decide, but the regional genetics unit refuses to test anyone under 18? In this article I discuss such a case (drawn from actual practice, but anonymised), and consider the arguments for and against allowing the young person to be tested in terms (...)
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  43. Notice After Notice-and-Consent: Why Privacy Disclosures Are Valuable Even If Consent Frameworks Aren’T.Daniel Susser - 2019 - Journal of Information Policy 9:37-62.
    The dominant legal and regulatory approach to protecting information privacy is a form of mandated disclosure commonly known as “notice-and-consent.” Many have criticized this approach, arguing that privacy decisions are too complicated, and privacy disclosures too convoluted, for individuals to make meaningful consent decisions about privacy choices—decisions that often require us to waive important rights. While I agree with these criticisms, I argue that they only meaningfully call into question the “consent” part of notice-and-consent, and that (...)
    Download  
    Translate
     
     
    Export citation  
     
    Bookmark  
  44.  41
    Consent: Historical Perspectives in Medical Ethics.Tom O'Shea - 2018 - In Andreas Müller & Peter Schaber (eds.), Routledge Handbook of the Ethics of Consent. London: Routledge. pp. 261-271.
    This chapter provides an outline of consent in the history of medical ethics. In doing so, it ranges over attitudes towards consent in medicine in ancient Greece, medieval Europe and the Middle East, as well as the history of Western law and medical ethics from the early modern period onwards. It considers the relationship between consent and both the disclosure of information to patients and the need to indemnify physicians, while attempting to avoid an anachronistic projection of (...)
    Download  
     
    Export citation  
     
    Bookmark  
  45. Why We Should Stop Using Animal-Derived Products on Patients Without Their Consent.Daniel Rodger - forthcoming - Journal of Medical Ethics.
    Medicines and medical devices containing animal-derived ingredients are frequently used on patients without their informed consent, despite a significant proportion of patients wanting to know if an animal-derived product is going to be used in their care. Here, I outline three arguments for why this practice is wrong. Firstly, I argue that using animal-derived medical products on patients without their informed consent undermines respect for their autonomy. Secondly, it risks causing non-trivial psychological harm. Thirdly, it is (...)
    Download  
     
    Export citation  
     
    Bookmark  
  46.  15
    More Than Consent for Ethical Open-Label Placebo Research.Laura Specker Sullivan - 2021 - Journal of Medical Ethics 47 (12):7-7.
    Recent studies have explored the effectiveness of open-label placebos for a variety of conditions, including chronic pain, cancer-related fatigue and irritable bowel syndrome. OLPs are thought to sidestep traditional ethical worries about placebos because they do not involve deception: with an OLP, patients or subjects are told outright that they are not given an active substance. As deception is framed as the primary hurdle to ethical placebo use, the door is ostensibly opened to ethical studies of OLPs. In this article, (...)
    Download  
     
    Export citation  
     
    Bookmark  
  47.  29
    Online Information of Vaccines: Information Quality, Not Only Privacy, is an Ethical Responsibility of Search Engines.Pietro Ghezzi, Peter Bannister, Gonzalo Casino, Alessia Catalani, Michel Goldman, Jessica Morley, Marie Neunez, Andreu Prados-Bo, Pierre Robert Smeeters, Mariarosaria Taddeo, Tania Vanzolini & Luciano Floridi - 2021 - Frontiers in Medicine 7.
    The fact that Internet companies may record our personal data and track our online behavior for commercial or political purpose has emphasized aspects related to online privacy. This has also led to the development of search engines that promise no tracking and privacy. Search engines also have a major role in spreading low-quality health information such as that of anti-vaccine websites. This study investigates the relationship between search engines’ approach to privacy and the scientific quality of the information they return. (...)
    Download  
     
    Export citation  
     
    Bookmark  
  48. Rethinking the Ethical Approach to Health Information Management Through Narration: Pertinence of Ricœur’s ‘Little Ethics’.Corine Mouton Dorey - 2016 - Medicine, Health Care and Philosophy 19 (4):531-543.
    The increased complexity of health information management sows the seeds of inequalities between health care stakeholders involved in the production and use of health information. Patients may thus be more vulnerable to use of their data without their consent and breaches in confidentiality. Health care providers can also be the victims of a health information system that they do not fully master. Yet, despite its possible drawbacks, the management of health information is indispensable for advancing science, medical care and (...)
    Download  
     
    Export citation  
     
    Bookmark   1 citation  
  49.  94
    Informants, Police, and Unconscionability.Luke William Hunt - 2018 - Institute of Art and Ideas (IAI Online Magazine).
    Essay exploring the extent to which certain agreements between the police and informants are an affront (both procedurally and substantively) to basic tenets of the liberal tradition in legal and political philosophy.
    Download  
     
    Export citation  
     
    Bookmark  
  50. Adverse Consequences of Article 12 of the UN Convention on the Rights of Persons with Disabilities for Persons with Mental Disabilities and an Alternative Way Forward.Matthé Scholten & Jakov Gather - 2018 - Journal of Medical Ethics 44 (4):226-233.
    It is widely accepted among medical ethicists that competence is a necessary condition for informed consent. In this view, if a patient is incompetent to make a particular treatment decision, the decision must be based on an advance directive or made by a substitute decision-maker on behalf of the patient. We call this the competence model. According to a recent report of the United Nations (UN) High Commissioner for Human Rights, article 12 of the UN Convention on the (...)
    Download  
     
    Export citation  
     
    Bookmark   11 citations  
1 — 50 / 1000