Results for 'Ethics of data'

984 found
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  1. The Ethics of Data Privacy.Jeroen Seynhaeve - 2022 - Dissertation, University of Stellenbosch
    All societies have to balance privacy claims with other moral concerns. However, while some concern for privacy appears to be a common feature of social life, the definition, extent and moral justifications for privacy differ widely. Are there better and worse ways of conceptualising, justifying, and managing privacy? These are the questions that lie in the background of this thesis. -/- My particular concern is with the ethical issues around privacy that are tied to the rise of new information and (...)
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  2. The ethics of uncertainty for data subjects.Philip Nickel - 2019 - In Peter Dabrock, Matthias Braun & Patrik Hummel (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74.
    Modern health data practices come with many practical uncertainties. In this paper, I argue that data subjects’ trust in the institutions and organizations that control their data, and their ability to know their own moral obligations in relation to their data, are undermined by significant uncertainties regarding the what, how, and who of mass data collection and analysis. I conclude by considering how proposals for managing situations of high uncertainty might be applied to this problem. (...)
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  3. Ethics of identity in the time of big data.James Brusseau - 2019 - First Monday 24 (5-6):00-11.
    Compartmentalizing our distinct personal identities is increasingly difficult in big data reality. Pictures of the person we were on past vacations resurface in employers’ Google searches; LinkedIn which exhibits our income level is increasingly used as a dating web site. Whether on vacation, at work, or seeking romance, our digital selves stream together. One result is that a perennial ethical question about personal identity has spilled out of philosophy departments and into the real world. Ought we possess one, unified (...)
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  4. Speech Act Theory and Ethics of Speech Processing as Distinct Stages: the ethics of collecting, contextualizing and the releasing of (speech) data.Jolly Thomas, Lalaram Arya, Mubarak Hussain & Prasanna Srm - 2023 - 2023 Ieee International Symposium on Ethics in Engineering, Science, and Technology (Ethics), West Lafayette, in, Usa.
    Using speech act theory from the Philosophy of Language, this paper attempts to develop an ethical framework for the phenomenon of speech processing. We use the concepts of the illocutionary force and the illocutionary content of a speech act to explain the ethics of speech processing. By emphasizing the different stages involved in speech processing, we explore the distinct ethical issues that arise in relation to each stage. Input, processing, and output are the different ethically relevant stages under which (...)
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  5. Ethics of Identity in the Time of Big Data - Delivered at 25th Annual International Vincentian Business Ethics Conference (IVBEC), 2018, St. John’s University, New York.James Brusseau - manuscript
    According to Facebook’s Mark Zuckerberg, big data reality means, “The days of having a different image for your co-workers and for others are coming to an end, which is good because having multiple identities represents a lack of integrity.” Two sets of questions follow. One centers on technology and asks how big data mechanisms collapse our various selves (work-self, family-self, romantic-self) into one personality. The second question set shifts from technology to ethics by asking whether we want (...)
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  6. I Know What You Will Do Next Summer: Informational Privacy and the Ethics of Data Analytics.Jakob Mainz - 2021 - Dissertation, Aalborg University
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  7. The Ethics of Cloud Computing.Boudewijn De Bruin & Luciano Floridi - 2017 - Science and Engineering Ethics 23 (1):21-39.
    Cloud computing is rapidly gaining traction in business. It offers businesses online services on demand (such as Gmail, iCloud and Salesforce) and allows them to cut costs on hardware and IT support. This is the first paper in business ethics dealing with this new technology. It analyzes the informational duties of hosting companies that own and operate cloud computing datacenters (e.g., Amazon). It considers the cloud services providers leasing ‘space in the cloud’ from hosting companies (e.g, Dropbox, Salesforce). And (...)
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  8. The ethics of algorithms: mapping the debate.Brent Mittelstadt, Patrick Allo, Mariarosaria Taddeo, Sandra Wachter & Luciano Floridi - 2016 - Big Data and Society 3 (2):2053951716679679.
    In information societies, operations, decisions and choices previously left to humans are increasingly delegated to algorithms, which may advise, if not decide, about how data should be interpreted and what actions should be taken as a result. More and more often, algorithms mediate social processes, business transactions, governmental decisions, and how we perceive, understand, and interact among ourselves and with the environment. Gaps between the design and operation of algorithms and our understanding of their ethical implications can have severe (...)
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  9.  5
    (1 other version)Ethical Medical Data Donation: A Pressing Issue.Luciano Floridi & Jenny Krutzinna - 2019 - In Peter Dabrock, Matthias Braun & Patrik Hummel (eds.), The Ethics of Medical Data Donation. Springer Verlag.
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  10. The ethics of information transparency.Matteo Turilli & Luciano Floridi - 2009 - Ethics and Information Technology 11 (2):105-112.
    The paper investigates the ethics of information transparency (henceforth transparency). It argues that transparency is not an ethical principle in itself but a pro-ethical condition for enabling or impairing other ethical practices or principles. A new definition of transparency is offered in order to take into account the dynamics of information production and the differences between data and information. It is then argued that the proposed definition provides a better understanding of what sort of information should be disclosed (...)
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  11. The virtuous smart city: Bridging the gap between ethical principles and practices of data-driven innovation.Viivi Lähteenoja & Kimmo Karhu - 2023 - Data and Policy 5 (E15).
    For smart cities, data-driven innovation promises societal benefits and increased well-being for residents and visitors. At the same time, the deployment of data-driven innovation poses significant ethical challenges. Although cities and other public-sector actors have increasingly adopted ethical principles, employing them in practice remains challenging. In this commentary, we use a virtue-based approach that bridges the gap between abstract principles and the daily work of practitioners who engage in and with data-driven innovation processes. Inspired by Aristotle, we (...)
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  12. Data Science and Mass Media: Seeking a Hermeneutic Ethics of Information.Christine James - 2015 - Proceedings of the Society for Phenomenology and Media, Vol. 15, 2014, Pages 49-58 15 (2014):49-58.
    In recent years, the growing academic field called “Data Science” has made many promises. On closer inspection, relatively few of these promises have come to fruition. A critique of Data Science from the phenomenological tradition can take many forms. This paper addresses the promise of “participation” in Data Science, taking inspiration from Paul Majkut’s 2000 work in Glimpse, “Empathy’s Impostor: Interactivity and Intersubjectivity,” and some insights from Heidegger’s "The Question Concerning Technology." The description of Data Science (...)
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  13. The Ethics of Anti-aging Clinical Trials.Parker Crutchfield - 2018 - Science and Engineering Ethics 24 (2):441-453.
    Interventions aiming to slow, stop, or reverse the aging process are starting to enter clinical trials. Though this line of research is nascent, it has the potential to not only prevent prolonged human suffering, but also to extend human well-being. As this line of research develops, it is important to understand the ethical constraints of conducting such research. This paper discusses some of these constraints. In particular, it discusses the ethical difficulties of conducting this research in a way that would (...)
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  14. Ethics of the health-related internet of things: a narrative review.Brent Mittelstadt - 2017 - Ethics and Information Technology 19 (3):1-19.
    The internet of things is increasingly spreading into the domain of medical and social care. Internet-enabled devices for monitoring and managing the health and well-being of users outside of traditional medical institutions have rapidly become common tools to support healthcare. Health-related internet of things (H-IoT) technologies increasingly play a key role in health management, for purposes including disease prevention, real-time tele-monitoring of patient’s functions, testing of treatments, fitness and well-being monitoring, medication dispensation, and health research data collection. H-IoT promises (...)
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  15. Predictive Policing and the Ethics of Preemption.Daniel Susser - 2021 - In Ben Jones & Eduardo Mendieta (eds.), The Ethics of Policing: New Perspectives on Law Enforcement. New York: NYU Press.
    The American justice system, from police departments to the courts, is increasingly turning to information technology for help identifying potential offenders, determining where, geographically, to allocate enforcement resources, assessing flight risk and the potential for recidivism amongst arrestees, and making other judgments about when, where, and how to manage crime. In particular, there is a focus on machine learning and other data analytics tools, which promise to accurately predict where crime will occur and who will perpetrate it. Activists and (...)
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  16. The ‘Ethic of Knowledge’ and Responsible Science: Responses to Genetically Motivated Racism.Natan Elgabsi - 2022 - Social Studies of Science 52 (2):303-323.
    This study takes off from the ethical problem that racism grounded in population genetics raises. It is an analysis of four standard scientific responses to the problem of genetically motivated racism, seen in connection with the Human Genome Diversity Project (HGDP): (1) Discriminatory uses of scientific facts and arguments are in principle ‘misuses’ of scientific data that the researcher cannot be further responsible for. (2) In a strict scientific sense, genomic facts ‘disclaim racism’, which means that an epistemically correct (...)
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  17. Data Mining in the Context of Legality, Privacy, and Ethics.Amos Okomayin, Tosin Ige & Abosede Kolade - 2023 - International Journal of Research and Innovation in Applied Science 10 (Vll):10-15.
    Data mining possess a significant threat to ethics, privacy, and legality, especially when we consider the fact that data mining makes it difficult for an individual or consumer (in the case of a company) to control accessibility and usage of his data. Individuals should be able to control how his/ her data in the data warehouse is being access and utilize while at the same time providing enabling environment which enforces legality, privacy and ethicality (...)
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  18. Ethical issues of 'morality mining': When the moral identity of individuals becomes a focus of data-mining.Markus Christen, Mark Alfano, Endre Bangerter & Daniel Lapsley - 2013 - In Hakikur Rahman & Isabel Ramos (eds.), Ethical Data Mining Applications for Socio-Economic Development. IGI Global. pp. 1-21.
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  19. What is data ethics?Luciano Floridi & Mariarosaria Taddeo - 2016 - Philosophical Transactions of the Royal Society A 374 (2083):20160360.
    This theme issue has the founding ambition of landscaping Data Ethics as a new branch of ethics that studies and evaluates moral problems related to data (including generation, recording, curation, processing, dissemination, sharing, and use), algorithms (including AI, artificial agents, machine learning, and robots), and corresponding practices (including responsible innovation, programming, hacking, and professional codes), in order to formulate and support morally good solutions (e.g. right conducts or right values). Data Ethics builds on the (...)
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  20. The Ethics of Automating Therapy.Jake Burley, James J. Hughes, Alec Stubbs & Nir Eisikovits - 2024 - Ieet White Papers.
    The mental health crisis and loneliness epidemic have sparked a growing interest in leveraging artificial intelligence (AI) and chatbots as a potential solution. This report examines the benefits and risks of incorporating chatbots in mental health treatment. AI is used for mental health diagnosis and treatment decision-making and to train therapists on virtual patients. Chatbots are employed as always-available intermediaries with therapists, flagging symptoms for human intervention. But chatbots are also sold as stand-alone virtual therapists or as friends and lovers. (...)
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  21. The Two-Tiered Ethics of EDP.Edmund F. Byrne - 1995 - Journal of Business Ethics 14 (1):53-61.
    Ethical questions regarding access to and use of electronically generated data are (if asked) commonly resolved by distinguishing in Lockean fashion between raw (unworked) and refined (worked) data. The former is thought to belong to no one, the latter to the collector and those to whom the collector grants access. Comparative power separates free riders from rightful owners. The resulting two-tiered ethics of access is here challenged on the grounds that it inequitably establishes a rule of law (...)
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  22. The Ethics of Information: Absolute Risk Reduction and Patient Understanding of Screening.Peter H. Schwartz & Eric M. Meslin - 2008 - Journal of General Internal Medicine 23 (6):867-870.
    Some experts have argued that patients should routinely be told the specific magnitude and absolute probability of potential risks and benefits of screening tests. This position is motivated by the idea that framing risk information in ways that are less precise violates the ethical principle of respect for autonomy and its application in informed consent or shared decisionmaking. In this Perspective, we consider a number of problems with this view that have not been adequately addressed. The most important challenges stem (...)
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  23. Ethical issues of 'morality mining': When the moral identity of individuals becomes a focus of data-mining.Markus Christen, Mark Alfano, Endre Bangerter & Daniel Lapsley - 2013 - In Hakikur Rahman & Isabel Ramos (eds.), Ethical Data Mining Applications for Socio-Economic Development. IGI Global. pp. 1-21.
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  24. The ethical imperatives of the COVID 19 pandemic: a review from data ethics.Gabriela Arriagada Bruneau, Vincent C. Müller & Mark S. Gilthorpe - 2020 - Veritas: Revista de Filosofía y Teología 46:13-35.
    In this review, we present some ethical imperatives observed in this pandemic from a data ethics perspective. Our exposition connects recurrent ethical problems in the discipline, such as, privacy, surveillance, transparency, accountability, and trust, to broader societal concerns about equality, discrimination, and justice. We acknowledge data ethics role as significant to develop technological, inclusive, and pluralist societies. - - - Resumen: En esta revisión, exponemos algunos de los imperativos éticos observados desde la ética de datos en (...)
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  25. (1 other version)Enabling posthumous medical data donation: an appeal for the ethical utilisation of personal health data.Jenny Krutzinna, Mariarosaria Taddeo & Luciano Floridi - 2019 - Science and Engineering Ethics 25 (5):1357-1387.
    This article argues that personal medical data should be made available for scientific research, by enabling and encouraging individuals to donate their medical records once deceased, similar to the way in which they can already donate organs or bodies. This research is part of a project on posthumous medical data donation developed by the Digital Ethics Lab at the Oxford Internet Institute at the University of Oxford. Ten arguments are provided to support the need to foster posthumous (...)
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  26.  82
    Journal of Medical Ethics at 50: a data-driven history.Vilius Dranseika, Piotr Bystranowski & Tomasz Żuradzki - forthcoming - Journal of Medical Ethics.
    In this paper, we take a data-driven approach to analyse intellectual trends over the first five decades of theJournal of Medical Ethics(JME). Our data set, comprising all texts published in theJMEsince 1975, reveals not only the most distinctive topics of theJMEin comparison to other key journals with similar profiles but also diachronic fluctuations in the prominence of certain topics. Overall, the distribution of topics shifted gradually, with each editorial period at theJMEshowing continuity with its immediate predecessor. However, (...)
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  27. Data frauds, health risks, and the growing question of ethics during the COVID-19 pandemic.Vuong Quan-Hoang, Le Tam-Tri & Nguyen Minh-Hoang - manuscript
    In this essay, we advocate that the issue of health data ethics should no longer be considered on the level of individual scientists or research labs, but rather as a problem involving all stakeholders, from publishers, funders, ethical committees to governments, for the sake of research integrity.
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  28. The Temptation of Data-enabled Surveillance: Are Universities the Next Cautionary Tale?Alan Rubel & Kyle M. L. Jones - 2020 - Communications of the Acm 4 (63):22-24.
    There is increasing concern about “surveillance capitalism,” whereby for-profit companies generate value from data, while individuals are unable to resist (Zuboff 2019). Non-profits using data-enabled surveillance receive less attention. Higher education institutions (HEIs) have embraced data analytics, but the wide latitude that private, profit-oriented enterprises have to collect data is inappropriate. HEIs have a fiduciary relationship to students, not a narrowly transactional one (see Jones et al, forthcoming). They are responsible for facets of student life beyond (...)
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  29. The Hobbesian Ethics of Hegel's Sense-Certainty.Jeffrey Reid - 2014 - Epoché: A Journal for the History of Philosophy 18 (2):421-438.
    In this paper, I explore the largely ignored ethical dimension in the first section of Hegel’s Phenomenology of Spirit, Sense-certainty, which tends to be understood exclusively as an epistemological critique of sense-data empiricism. I approach the ethical aspect of the chapter through Hegel’s analysis of language, there, as unable to refer to individual things. I then show that the position Hegel analyses is akin to the one presented by Thomas Hobbes in his Leviathan, as well as in his De (...)
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  30. Driven to extinction? The ethics of eradicating mosquitoes with gene-drive technologies.Jonathan Pugh - 2016 - Journal of Medical Ethics 42 (9):578-581.
    Mosquito-borne diseases represent a significant global disease burden, and recent outbreaks of such diseases have led to calls to reduce mosquito populations. Furthermore, advances in ‘gene-drive’ technology have raised the prospect of eradicating certain species of mosquito via genetic modification. This technology has attracted a great deal of media attention, and the idea of using gene-drive technology to eradicate mosquitoes has been met with criticism in the public domain. In this paper, I shall dispel two moral objections that have been (...)
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  31. The debate on the ethics of AI in health care: a reconstruction and critical review.Jessica Morley, Caio C. V. Machado, Christopher Burr, Josh Cowls, Indra Joshi, Mariarosaria Taddeo & Luciano Floridi - manuscript
    Healthcare systems across the globe are struggling with increasing costs and worsening outcomes. This presents those responsible for overseeing healthcare with a challenge. Increasingly, policymakers, politicians, clinical entrepreneurs and computer and data scientists argue that a key part of the solution will be ‘Artificial Intelligence’ (AI) – particularly Machine Learning (ML). This argument stems not from the belief that all healthcare needs will soon be taken care of by “robot doctors.” Instead, it is an argument that rests on the (...)
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  32. The Ethics of Prescription Drug Monitoring Programs.Ryan Ravanpak - 2023 - Voices in Bioethics 9.
    Prescription Drug Monitoring Programs (PDMPs) contain detailed information about which controlled medications physicians prescribe individuals, including where, when, how much, by whom, and more. The programs allow physicians to glimpse into the life of each patient that visits them — sometimes before a single word is exchanged between them. Every state has a PDMP, and almost all states share the data they collect through it. In this paper, I argue that informed consent should be required for recording of prescriptions (...)
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  33. Moral Implications of Data-Mining, Key-word Searches, and Targeted Electronic Surveillance.Michael Skerker - 2015 - In Bradley J. Strawser, Fritz Allhoff & Adam Henschke (eds.), Binary Bullets.
    This chapter addresses the morality of two types of national security electronic surveillance (SIGINT) programs: the analysis of communication “metadata” and dragnet searches for keywords in electronic communication. The chapter develops a standard for assessing coercive government action based on respect for the autonomy of inhabitants of liberal states and argues that both types of SIGINT can potentially meet this standard. That said, the collection of metadata creates opportunities for abuse of power, and so judgments about the trustworthiness and competence (...)
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  34. Reframing data ethics in research methods education: a pathway to critical data literacy.Javiera Atenas, Leo Havemann & Cristian Timmermann - 2023 - International Journal of Educational Technology in Higher Education 20:11.
    This paper presents an ethical framework designed to support the development of critical data literacy for research methods courses and data training programmes in higher education. The framework we present draws upon our reviews of literature, course syllabi and existing frameworks on data ethics. For this research we reviewed 250 research methods syllabi from across the disciplines, as well as 80 syllabi from data science programmes to understand how or if data ethics was (...)
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  35. Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.G. Owen Schaefer, E. Shyong Tai & Shirley Sun - 2019 - Asian Bioethics Review 11 (3):275-288.
    As opposed to a ‘one size fits all’ approach, precision medicine uses relevant biological, medical, behavioural and environmental information about a person to further personalize their healthcare. This could mean better prediction of someone’s disease risk and more effective diagnosis and treatment if they have a condition. Big data allows for far more precision and tailoring than was ever before possible by linking together diverse datasets to reveal hitherto-unknown correlations and causal pathways. But it also raises ethical issues relating (...)
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  36. An Ethics Framework for Big Data in Health and Research.Vicki Xafis, G. Owen Schaefer, Markus K. Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth, Tamra Lysaght, Cameron Stewart, Shirley Sun, Graeme T. Laurie & E. Shyong Tai - 2019 - Asian Bioethics Review 11 (3):227-254.
    Ethical decision-making frameworks assist in identifying the issues at stake in a particular setting and thinking through, in a methodical manner, the ethical issues that require consideration as well as the values that need to be considered and promoted. Decisions made about the use, sharing, and re-use of big data are complex and laden with values. This paper sets out an Ethics Framework for Big Data in Health and Research developed by a working group convened by the (...)
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  37. Public Preferences about Fairness and the Ethics of Allocating Scarce Medical Interventions.Govind Persad - 2017 - In Meng Li & David P. Tracer (eds.), Interdisciplinary Perspectives on Fairness, Equity, and Justice. Springer. pp. 51-65.
    This chapter examines how social- scientific research on public preferences bears on the ethical question of how those resources should in fact be allocated, and explain how social-scientific researchers might find an understanding of work in ethics useful as they design mechanisms for data collection and analysis. I proceed by first distinguishing the methodologies of social science and ethics. I then provide an overview of different approaches to the ethics of allocating scarce medical interventions, including an (...)
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  38. Soft ethics: its application to the General Data Protection Regulation and its dual advantage.Luciano Floridi - 2018 - Philosophy and Technology 31 (1):163-167.
    In previous works (Floridi 2018) I introduced the distinction between hard ethics (which may broadly be described as what is morally right and wrong independently of whether something is legal or illegal), and soft or post-compliance ethics (which focuses on what ought to be done over and above existing legislation). This paper analyses the applicability of soft ethics to the General Data Protection Regulation and advances the theory that soft ethics has a dual advantage—as both (...)
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  39. “Giving something back”: a systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland.Jessica Stockdale, Jackie Cassell & Elizabeth Ford - 2019 - Wellcome Open Research 3 (6).
    Background: Use of patients’ medical data for secondary purposes such as health research, audit, and service planning is well established in the UK. However, the governance environment, as well as public understanding about this work, have lagged behind. We aimed to systematically review the literature on UK and Irish public views of patient data used in research, critically analysing such views though an established biomedical ethics framework, to draw out potential strategies for future good practice guidance and (...)
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  40. Introduction to Data Ethics.James Brusseau - 2018 - In Introduction to Data Ethics. Boston, USA: Boston Academic Publishing / Flatworld Knowledge. pp. 349-376.
    An Introduction to data ethics, focusing on questions of privacy and personal identity in the economic world as it is defined by big data technologies, artificial intelligence, and algorithmic capitalism. -/- Originally published in The Business Ethics Workshop, 3rd Edition, by Boston Acacdemic Publishing / FlatWorld Knowledge.
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  41. The commercialization of patient data in Canada: ethics, privacy and policy.Sheryl Spithoff, Jessica Stockdale, Robyn Rowe, Brenda McPhail & Nav Persaud - 2022 - Canadian Medical Association Journal 194 (3).
    KEY POINTS In Canada, commercial data brokers collect deidentified patient data from pharmacies, private drug insurers, the federal government and medical clinics without patient consent. Although pharmaceutical companies are the data brokers’ primary customers, academics and nonprofit and public entities also use commercial data sets, given the absence of a coordinated public approach to collecting these data across Canada. Risks of commercialized patient data include loss of anonymity, surveillance and marketing, discrimination and violation of (...)
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  42. The Ethical Implications of Personal Health Monitoring.Brent Mittelstadt - 2014 - International Journal of Technoethics 5 (2):37-60.
    Personal Health Monitoring (PHM) uses electronic devices which monitor and record health-related data outside a hospital, usually within the home. This paper examines the ethical issues raised by PHM. Eight themes describing the ethical implications of PHM are identified through a review of 68 academic articles concerning PHM. The identified themes include privacy, autonomy, obtrusiveness and visibility, stigma and identity, medicalisation, social isolation, delivery of care, and safety and technological need. The issues around each of these are discussed. The (...)
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  43. Consent and the ethical duty to participate in health data research.Angela Ballantyne & G. Owen Schaefer - 2018 - Journal of Medical Ethics 44 (6):392-396.
    The predominant view is that a study using health data is observational research and should require individual consent unless it can be shown that gaining consent is impractical. But recent arguments have been made that citizens have an ethical obligation to share their health information for research purposes. In our view, this obligation is sufficient ground to expand the circumstances where secondary use research with identifiable health information is permitted without explicit subject consent. As such, for some studies the (...)
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  44. Mapping the Ethical Issues of Digital Twins for Personalised Healthcare Service.Pei-Hua Huang, Ki-hun Kim & Maartje Schermer - 2022 - Journal of Medical Internet Research 24 (1):e33081.
    Background: The concept of digital twins has great potential for transforming the existing health care system by making it more personalized. As a convergence of health care, artificial intelligence, and information and communication technologies, personalized health care services that are developed under the concept of digital twins raise a myriad of ethical issues. Although some of the ethical issues are known to researchers working on digital health and personalized medicine, currently, there is no comprehensive review that maps the major ethical (...)
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  45. Big Data Ethics in Education and Research.Nicolae Sfetcu - 2023 - It and C 2 (3):26-35.
    Big data ethics involves adherence to the concepts of right and wrong behavior regarding data, especially personal data. Big Data ethics focuses on structured or unstructured data collectors and disseminators. Big data ethics is supported, at EU level, by extensive documentation, which seeks to find concrete solutions to maximize the value of big data without sacrificing fundamental human rights. The European Data Protection Supervisor (EDPS) supports the right to privacy (...)
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  46. Indignity of Nazi data: reflections on the utilization of illicit research.Iman Farahani & Joel Janhonen - 2024 - Medicine, Health Care and Philosophy (3):381-387.
    Human rights may feel self-apparent to us, but less than 80 years ago, one of the most advanced countries at the time acted based on an utterly contrary ideology. The view of social Darwinism that abandoned the idea of the intrinsic value of human lives instead argued that oppression of the inferior is not only inevitable but desirable. One of the many catastrophic outcomes is the medical data obtained from inhuman experiments at concentration camps. Ethical uncertainty over whether the (...)
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  47. Ethical Decision Making in Organizations: The Role of Leadership Stress.Marcus Selart & Svein Tvedt Johansen - 2011 - Journal of Business Ethics 99 (2):129 - 143.
    Across two studies the hypotheses were tested that stressful situations affect both leadership ethical acting and leaders' recognition of ethical dilemmas. In the studies, decision makers recruited from 3 sites of a Swedish multinational civil engineering company provided personal data on stressful situations, made ethical decisions, and answered to stress-outcome questions. Stressful situations were observed to have a greater impact on ethical acting than on the recognition of ethical dilemmas. This was particularly true for situations involving punishment and lack (...)
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  48. Clinical Ethics Consultations in the Opinion of Polish Physicians.Marek Czarkowski, Joanna Różyńska, Bartosz Maćkiewicz & Jakub Zawiła-Niedźwiecki - 2021 - Journal of Bioethical Inquiry 18 (3):499-509.
    Clinical Ethics Consultations are an important tool for physicians in solving difficult cases. They are extremely common in North America and to a lesser extent also present in Europe. However, there is little data on this practice in Poland. We present results of a survey of 521 physicians practising in Poland concerning their opinion on CECs and related practices. We analysed the data looking at such issues as CECs’ perceived availability, use of CECs, and perceived usefulness of (...)
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  49. Data, Privacy, and the Individual.Carissa Véliz - 2020 - Center for the Governance of Change.
    The first few years of the 21st century were characterised by a progressive loss of privacy. Two phenomena converged to give rise to the data economy: the realisation that data trails from users interacting with technology could be used to develop personalised advertising, and a concern for security that led authorities to use such personal data for the purposes of intelligence and policing. In contrast to the early days of the data economy and internet surveillance, the (...)
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  50. Big Data Ethics.Nicolae Sfetcu - manuscript
    Big Data ethics involves adherence to the concepts of right and wrong behavior regarding data, especially personal data. Big Data ethics focuses on structured or unstructured data collectors and disseminators. Big Data ethics is supported, at EU level, by extensive documentation, which seeks to find concrete solutions to maximize the value of Big Data without sacrificing fundamental human rights. The European Data Protection Supervisor (EDPS) supports the right to privacy (...)
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